MND Matters by the MND Association
Episodes
MND Matters: Episode 39 – Love, loss and the power of pets
14 Apr 2026
Contributed by Lukas
“Sometimes the companionship of a dog is better than human company. They don't judge you. You don't have to sort of speak. They're...
MND Matters: Episode 38 – Shaped by you: our five-year research goals
04 Feb 2026
Contributed by Lukas
Meet Rick and Ali – our hosts for this special episode of MND Matters. Rick is a biologist, educator, advocate and artist living with PLS - a slo...
Episode 37 - Eating and drinking
28 Aug 2025
Contributed by Lukas
In this powerful episode, host Domonique is joined by Lorraine Redmond, who lives with MND, Emma Wood, a clinical lead dietitian, and Jonathan Phang, ...
MND Matters Episode 36: Driving change for the MND community
07 Jul 2025
Contributed by Lukas
In this episode of MND Matters, Chief Executive Tanya Curry and Director of Engagement Richard Evans reflect on a transformative year for the MND As...
MND Matters Episode 35 - Transforming MND research with AI: Longitude Prize on ALS
26 Jun 2025
Contributed by Lukas
In this episode of MND Matters, Helen is joined by Tris Dyson from Challenge Works, and the MND Association’s Dr Mike Rogers and Dr Brian Dickie, ...
MND Matters Episode 34: Behind the curtain with Michael Patrick and Oisín Kearney
10 Oct 2024
Contributed by Lukas
Eighteen months after announcing his diagnosis of MND, actor and writer Michael Patrick gives us an insight into his starring role in a special adapt...
MND Matters Episode 33: Q&A with Coronation Street’s Dan Brocklebank and Peter Ash
12 Sep 2024
Contributed by Lukas
Coronation Street actors Dan and Peter answer your questions in this special episode of MND Matters. Go behind the scenes of Peter’s award-winning ...
MND Matters Episode 32: Caring for someone with MND
13 Jun 2024
Contributed by Lukas
"One of the things we’ve said is - as long as we laugh more times than we cry, we're winning.” Carers of people with motor neurone diseas...
MND Matters Episode 31: Tanya Arnold sits down with Tanya Curry
29 Feb 2024
Contributed by Lukas
Sports journalist and West Yorkshire branch patron Tanya Arnold sits down with Chief Executive Tanya Curry, who recently marked one year in post at th...
MND Matters Episode 30: The Love Inside - The Making of our Campaign
01 Feb 2024
Contributed by Lukas
Have you seen our new awareness campaign, The Love Inside? In this episode, host Helen chats to the MND Association’s Director of External Affairs C...
MND Matters Episode 29: Cultural challenges with MND
03 Aug 2023
Contributed by Lukas
In this thought-provoking episode of the MND Matters podcast, Yvonne Johnson, living with MND, and author Liv Little, whose dad died with MND in 2022,...
MND Matters Episode 28: Eddie Redmayne meets Lesley Connor
21 Jun 2023
Contributed by Lukas
In this captivating episode of the MND Matters podcast, Academy Award-winning actor Eddie Redmayne takes the reins as he sits down with the incredible...
MND Matters Episode 27: Rob Burrow Leeds Marathon
25 May 2023
Contributed by Lukas
This month's episode was recorded on location at the very first Rob Burrow Leeds Marathon, which took place on Sunday 14 May. Our Press Officer, A...
MND Matters Episode 26: What is motor neurone disease (MND)?
27 Apr 2023
Contributed by Lukas
What is motor neurone disease? Is there a cure? What causes it? Who does it affect? In this episode, our host Helen, is joined MND Association Head o...
MND Matters Episode 25: Wheelchairs
30 Mar 2023
Contributed by Lukas
Did you know that it's estimated that 80% of people living with MND will need a wheelchair during their time living with the condition? In this i...
MND Matters Episode 24: Support MND Carers ft. Charlotte Hawkins
02 Mar 2023
Contributed by Lukas
This month we're joined by special guest host, Good Morning Britain’s Charlotte Hawkins. Charlotte speaks with Kuai Peng and David who discuss their...
MND Matters Episode 23 (4): Julie's fundraising story #TakeOverMND
26 Jan 2023
Contributed by Lukas
This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for ...
MND Matters Episode 23 (3): Richard's fundraising story #TakeOverMND
19 Jan 2023
Contributed by Lukas
This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for ...
MND Matters Episode 23 (2): Abi's fundraising story #TakeOverMND
12 Jan 2023
Contributed by Lukas
This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for ...
MND Matters Episode 23 (1): Luke's fundraising story #TakeOverMND
05 Jan 2023
Contributed by Lukas
This month, MND Matters is a little different. Instead of one episode, we're sharing four short stories. Each features someone who has fundraised for ...
MND Matters Episode 22: Sally Light - Reflecting on 10 years as CEO
15 Dec 2022
Contributed by Lukas
“This has been the job of my life.” Sally Light, Chief Executive, sat down with host Steph to reflect on ten eventful years leading the MND Associ...
MND Matters Episode 21: Kevin Sinfield's Ultra 7 in 7
26 Nov 2022
Contributed by Lukas
Seven days. 280 miles. More than £2 million raised. In this special episode of MND Matters, we went behind the scenes and followed our patron Kevin S...
MND Matters Episode 20: NHS continuing healthcare (CHC)
27 Oct 2022
Contributed by Lukas
NHS Continuing Healthcare (CHC) is a complex subject, one that is often misunderstood, but can be hugely important for those living with motor neurone...
MND Matters Episode 19: Travelling with MND
27 Sep 2022
Contributed by Lukas
In this uplifting episode, Steph is joined by Ken Blackburn, who is living with MND, and Antonia Lee-Bapty. Ken films what he gets up to in his all-te...
MND Matters Episode 18: Your signature is more powerful than you think
01 Sep 2022
Contributed by Lukas
In this thought-provoking episode, Helen is joined by MND researchers; Professor Majid Hafezparast, Dr Greig Joilin, Libby Moody and MND Association B...
MND Matters Episode 17: Misha Grimes
28 Jul 2022
Contributed by Lukas
Becky is joined by social media influencer, Misha Grimes, who lost her dad, John, to motor neurone disease in August 2021. Misha became a carer for he...
MND Matters Episode 16: LGBTQ+ Pride Month
28 Jun 2022
Contributed by Lukas
Celebrate pride month with the MND Association. MND does not discriminate, it can affect anybody – including the LGBTQ+ community. In this episode w...
MND Matters Episode 15: Friendship
26 May 2022
Contributed by Lukas
Helen is joined by Jennie, who was diagnosed with MND in September 2021, and her friends Natalie, Amanda and Justine. Together these ladies have been ...
MND Matters Episode 14: How campaigning works
28 Apr 2022
Contributed by Lukas
In this episode we are joined by chair of the All-Party Parliamentary Group on MND, Andrew Lewer MBE MP, who discusses how he raises the profile of MN...
MND Matters Episode 13: MND Think Tank and Storybook
31 Mar 2022
Contributed by Lukas
Beck is joined by Nick Goldup, Director of Care Improvement at the MND Association, and Stuart Moss, Head of IT Innovation at Rolls Royce, who togethe...
MND Matters Episode 12: Home adaptations
24 Feb 2022
Contributed by Lukas
Beck and Chris are joined by Jane Smith, a Specialist Occupational Therapist, Tom, who is living with MND, and his wife Alice to talk about home adapt...
MND Matters Episode 11: Fundraising
20 Jan 2022
Contributed by Lukas
Fundraising is key to the work of the MND Association. In this episode, we chat with Jez, Tamara and Matt – all three are inspirational fundraisers ...
MND Matters Episode 10: International Symposium on ALS/MND
16 Dec 2021
Contributed by Lukas
This episode of MND Matters was recorded live at our 32nd International Symposium on ALS/MND earlier in December. Featured are interviews with some of...
MND Matters Episode 9: Dating after diagnosis
25 Nov 2021
Contributed by Lukas
Meet Mike: he is 36, lives in Grimsby, loves cars and on his quest to find love, applied for Channel 4’s TV show, First Dates. Mike made it on to th...
MND Matters Episode 8: Working and MND
28 Oct 2021
Contributed by Lukas
Steph and Becky speak to Chris Johnson, former Assistant Chief Constable for West Midlands Police. Chris was diagnosed with MND only six months follow...
MND Matters Episode 7: Managing emotions
28 Sep 2021
Contributed by Lukas
Receiving an MND diagnosis can feel devastating and is likely to bring mixed emotions. We know how people respond is very individual, so this episode ...
MND Matters Episode 6: Bereavement
26 Aug 2021
Contributed by Lukas
Talking about bereavement can be difficult, but not talking about it can be just as tough. In this episode of ...
MND Matters Episode 5: Research
28 Jul 2021
Contributed by Lukas
Becky and Nick are joined by Dr Brian Dickie, Director of Research Development at the MND Association. In this episode Brian takes a look at some of t...
MND Matters Episode 4: Voice banking
30 Jun 2021
Contributed by Lukas
Steph and Nick talk to Sue Lodge, who is living with MND, to find out why she banked her voice following her diagnosis. She shares what...
MND Matters Episode 3: Volunteering
27 May 2021
Contributed by Lukas
In this episode volunteers Liz Groundland, Mark Gately and Julia Peckham join Steph and Nick to mark Volunteers Week 2021. The Association is pr...
MND Matters Episode 2: Family support
28 Apr 2021
Contributed by Lukas
Steph and Nick speak to 22-year-old Megan Donoher, whose Dad was diagnosed with MND in April 2020. Megan gives a moving account of the impact his diag...
MND Matters Episode 1: Kevin Sinfield
01 Apr 2021
Contributed by Lukas
We're joined by Leeds Rhino's Director of Rugby, legend, and friend of Rob Burrow, Kevin Sinfield. In December 2020, Kevin and his team ran an incredi...
Coming soon | MND Matters Episode 1: Kevin Sinfield
26 Mar 2021
Contributed by Lukas
Welcome to the launch of the Motor Neurone Disease (MND) Association's brand new podcast - MND Matters. In our first episode, former Leeds Rhinos star...