My journey with Parkinson's
Episodes
Waiting at the 'After Hours' a Podcast and a poem - Episode 86
19 Apr 2025
Contributed by Lukas
For once in my household it was my husband, not me that needed to be checked out at 'After Hours'. All is well, after a long wait, so to fill ...
Comorbidities confusing cause - Episode 85
10 Apr 2025
Contributed by Lukas
When you have a bunch of different health issues - ie. Comorbidities - it is sometimes difficult to know the cause of a new ache or pain and/or who to...
Perfection is over-rated and Should and Shouldisms - Episode 84
08 Apr 2025
Contributed by Lukas
Striving for perfection is not something I consciously do, however much my previous boss used to call me a perfectionist! Instead, I strive to be the ...
Where is the little boy - a poem Episode 83
06 Apr 2025
Contributed by Lukas
This is a poem that reminds us that the elderly person sitting in a chair before has a life and a history. I wrote this quite a few years ago now, but...
Tell your story before it's too late - Episode 82
06 Apr 2025
Contributed by Lukas
I have edited this down from the last download as the first draft was a bit long. The edit is a bit clumsy in places, but hopefully the revised conten...
Hang on to hope - Never say never - Episode 81
31 Mar 2025
Contributed by Lukas
A beloved cat turns up after three years. What next?
Don't wait for a special occasion - Episode 80
29 Mar 2025
Contributed by Lukas
When asked if we were going out for dinner for a special occasion, we responded that we just wanted to go out for dinner together, no 'special'...
I am the old woman - A poem - Episode 79
28 Mar 2025
Contributed by Lukas
Just a light hearted look at realising that I am an old woman. Grey hair, arthritis and a walking stick all point to that being the case! I hope you e...
My teenage crushes - reminiscing Episode 78
26 Mar 2025
Contributed by Lukas
Feeling nostalgic and listening to songs I haven't listened to in years. Also, some songs and artists that have stayed with me always. My most loved i...
Parkinson's Brave - A poem - Episode 77
25 Mar 2025
Contributed by Lukas
Just a wee poem I wrote today about being brave.
Being Brave Again - Episode 76
25 Mar 2025
Contributed by Lukas
Just some thoughts on being brave. It's something we all try to be, I'm sure. Not always easy with the hand we've been dealt.
Keeping up with language and meaning - Episode 75
22 Mar 2025
Contributed by Lukas
Every age and stage, every era has it's own language and popular culture. This can make communication challenging at times. But an awareness that ...
Don't wrap me in cotton wool - Episode 74
22 Mar 2025
Contributed by Lukas
Sometimes there's a fine line between supporting someone and making decisions for them. Even out of kindness, to protect someone you love, this can be...
Boom and Bust - Episode 73
22 Mar 2025
Contributed by Lukas
Some advice from my experience of many operations that I have needed to recover from. It might help you not to make the same mistakes I have in the pa...
To medicate or not to medicate that is the question - Episode 72
18 Mar 2025
Contributed by Lukas
Reading various posts on FB and other media, there is always quite a lot of discussion about medication and when or if to start medications for Parkin...
Lets talk about memory, dementia and ski holidays - Episode 71
16 Mar 2025
Contributed by Lukas
A rather eclectic mix but loosely tied together with the thread of memory. There is a difference of course between memory when it is applied to day-to...
A quote from the podcast on Elder Abuse - Episode 70
14 Mar 2025
Contributed by Lukas
This is a quote from Greta Bond who speaks from the heart about supporting people as they age.
Some thoughts on ageing - Episode 69
13 Mar 2025
Contributed by Lukas
Some thoughts on ageing and peoples' reaction to those of us with grey hair. For some to be aged is to be reduced in worth and not seen as a person wi...
An interview with Greta Bond, Age Concern re Elder Abuse - Episode 68
12 Mar 2025
Contributed by Lukas
Despite some technical hitches - I sound like I'm in a tunnel at times - this is a great interview. Greta is passionate about the work that she do...
Greta Bond CEO, Age Concern Canterbury - Interview Episode 67
12 Mar 2025
Contributed by Lukas
Greta was a wonderful source of information about the services Age Concern provides. There will be another interview to follow in relation to Age Conc...
A health stocktake - Episode 66
08 Mar 2025
Contributed by Lukas
Just checking in with myself today in this my fifth year post diagnosis and looking at what symptoms I have.
I've been watching you... A poem - Episode 65
08 Mar 2025
Contributed by Lukas
Just a wee poem I wrote the other day about my inability to get back to bowls just yet. I can't wait till September when I am recovered and fitter...
Seeing your GP, Specialist or Physio/Allied Health - Episode 64
05 Mar 2025
Contributed by Lukas
For those of us whose lives are affected by Parkinson's, the trips to see the GP, Specialist or Allied Health are very important. It can sometimes...
Interview with Linda - MS & Parkinson's - Episode 63
05 Mar 2025
Contributed by Lukas
Support is incredibly important when you have a condition such as MS or Parkinson's. This is a conversation with Linda who works at MS & Parkinson...
When is old, old? - Episode 62
04 Mar 2025
Contributed by Lukas
Just some thoughts of how various health conditions - including Parkinson's - impact on us and whether we are an 'old 64 year old' or a 'young 64 year...
Farewell to my shiny red e-bike - Episode 61
03 Mar 2025
Contributed by Lukas
Well, today was the sad day I said goodbye to my shiny red e-bike. I so enjoyed riding it, but I need to minimise risk. The sadness was lessened somew...
Trying to be a patient patient - Episode 60
01 Mar 2025
Contributed by Lukas
Some thoughts on my Parkinson's after my operation. I wonder if the anaesthetic impacted on my Parkinson's.
We can pat ourselves on the back - Episode 59
26 Feb 2025
Contributed by Lukas
Just a few thoughts about the culture I was brought up in where it was not done to 'blow your own trumpet'. I think with the complexity of this life w...
My caring husband - not my carer - An interview Episode 58
23 Feb 2025
Contributed by Lukas
As I called for other people with Parkinson's to come forward for an interview and to be heard, to start things off I interviewed my husband Ade.It wa...
Podcasts - anyone keen on being interviewed? Episode 57
22 Feb 2025
Contributed by Lukas
Following on from my blog I have written for the past four years and which I have now written over 600 posts, I decided to try my hand at podcasting. ...
Progression and impressions and looking to a brighter future - Episode 56
20 Feb 2025
Contributed by Lukas
I am at home now recovering from back surgery. It's hard to sit, or stand, or lie down or basically take any position for too long, so writing this is...
This might help you, I know it helped me! Episode 55
20 Feb 2025
Contributed by Lukas
Thank you for checking out my podcasts. This is a relatively new venture for me and an expansion of my Blog 'Parkies and me - my journey with Parkinso...
Some future proofing thoughts - Episode 54
18 Feb 2025
Contributed by Lukas
I have talked about this before in my blog. Discussing how we made the decision that the time was right to move into a single storey smaller home. For...
We are not 'us' at the moment - Episode 53
15 Feb 2025
Contributed by Lukas
A bit of a sad, reflective post today. But that is what this podcast and my blog have been created for. Not just for the happy times, but also the bar...
Accepting our limits as we age - Episode 52
14 Feb 2025
Contributed by Lukas
This title may sound defeatist or downbeat at first reading. It is not meant to sound that way. It is, however, my acknowledgement of what my body nee...
Social Work ears - Episode 51
12 Feb 2025
Contributed by Lukas
Some musings from my time in hospital
Just a small prick - Episode 50
12 Feb 2025
Contributed by Lukas
Woohoo! I have made it to 50 podcasts. Pretty good going I say! I hope you enjoy this one. It is the first of the podcasts that came to me whilst in h...
Memories are marvellous - Episode 49
10 Feb 2025
Contributed by Lukas
Just a few thoughts on memories and what can spark them for me. There are lots of things, music, smells, tastes all sorts of ways that memories can be...
Shop to shop hopping - A poem - Episode 48
10 Feb 2025
Contributed by Lukas
Just returned from surgery and just on a week in hospital. Working things up gently, so short podcasts in the interim, as pain permits. This one is ab...
Pride goeth before a fall - Episode 47
01 Feb 2025
Contributed by Lukas
Thinking about my operation on Monday and getting ready. Hair done. Shaved my legs and pits. New Pyjamas purchased. All coming together. There is a po...
The Bloodsucker's Curse - Episode 46
31 Jan 2025
Contributed by Lukas
I don't know why I have never in all these years thought to write a poem about the nightmare that is my giving a blood sample. I have defeated many a ...
Hospital, Health and Harrahs -Episode 45
30 Jan 2025
Contributed by Lukas
Another silly poem to lighten my mood as I nervously await my surgery on Monday. Feeling a bit stressed, I admit. The Harrah bit is after a term my hu...
The evolution of underwear (A poem) - Episode 44
30 Jan 2025
Contributed by Lukas
I mistakenly bought a pack of women's full briefs. I had thought I was my normal knickers and got home and found that I had bought knickers like m...
Shopportunity - Episode 43
28 Jan 2025
Contributed by Lukas
I think sometimes when you are trying not to think too deeply about an uncertain future, there is much to be said for looking back with fondness. My c...
Putting my house in order - Episode 42
27 Jan 2025
Contributed by Lukas
Just a few thoughts and things to do before I have surgery on Monday 3/2. As someone who is very much a planner, I like to know that I have planned as...
Anything goes - A poem podcast - Episode 41
27 Jan 2025
Contributed by Lukas
A brief poem written by me for a change of pace. Because life isn't all about Parkinson's and life is too short not to take time out for the s...
Property Administrator or Property Manager - Whats the difference? - Episode 40
25 Jan 2025
Contributed by Lukas
Welcome back Louise Taylor, Lawyer with some really useful information regarding Property Administration vs Property Manager. What is the difference?...
When EPOA goes wrong - Episode 39
25 Jan 2025
Contributed by Lukas
Louise Taylor joins us again to talk about 'when EPOA goes wrong' As ever, this is an engaging interview with a very experienced and down to e...
Be a legend in your own lunchtime - Episode 38
25 Jan 2025
Contributed by Lukas
This was a saying in our family growing up. It sounds far less grand than being a legend in your lifetime! This podcast episode has come about because...
I'm a hugger - Is this a Parkies thing? - Episode 37
21 Jan 2025
Contributed by Lukas
I've noticed over the past year or so I have become more of a hugger. As someone who almost never got hugs growing up, this is an interesting thing. I...
I love my husband - A poem not about Parkinson's! - Episode 36
20 Jan 2025
Contributed by Lukas
Every now and then, I like to step away from writing and thinking about Parkinson's and write a poem and share it. This poem was inspired by a chat to...
For Parkinson's - A hidden issue - Episode 35
19 Jan 2025
Contributed by Lukas
I've written about this issue before in my Blog. Having a condition that is not necessarily visible at first, can make it challenging for both the...
There are no experts in Parkinson's - Oh yes there are - Episode 34
18 Jan 2025
Contributed by Lukas
I read on another person's blog 'there are no experts in Parkinson's' I beg to differ. Those of us with Parkinsons' and those that support us, are ex...
Acts of service - love in a fruitcake - Episode 33
16 Jan 2025
Contributed by Lukas
Sometimes those three little words - I love you - can be difficult for people to say. Notice the things that they do for you, big or small and they ma...
Tears for Breakfast - Episode 32
15 Jan 2025
Contributed by Lukas
I had a bit of a blue day yesterday, so this reflects that mood. In line with my intentions to always be authentic and real, I will post even when the...
Why I think I'm qualified to talk about Parkinson's - Episode 31
13 Jan 2025
Contributed by Lukas
This podcast gives some background to me as a podcaster and why I feel I am qualified to talk about Parkinsons.
Maybe I've been a bit harsh - Episode 31
12 Jan 2025
Contributed by Lukas
A lesson in judgements that we can all be guilty of.
Parkinson's peculiarities or Morphine madness - Episode 30
11 Jan 2025
Contributed by Lukas
Just in a reflective mood and that shows in this podcast, where it's not as upbeat as most others have been. I wrote it a couple of days ago and it do...
Culling my Facebook friends - nothing beats a real hug - Episode 29
08 Jan 2025
Contributed by Lukas
Social media is all very well, but sometimes I think it causes us to be lazy. Giving a hug emoji when someone is going through stuff, is nothing compa...
A bucket of joy - not a bucket list - Episode 28
06 Jan 2025
Contributed by Lukas
I was in a reflective mood this afternoon and thought about 'Bucket Lists' and how people sometimes create one when they are told they have little tim...
The weird things you need to know about me - Episode 27
05 Jan 2025
Contributed by Lukas
I think we all have weird things that we prefer in life. Like my sandwiches have to be cut corner to corner or they are not right. Or, the toilet roll...
I pity those who support me - Episode 26
03 Jan 2025
Contributed by Lukas
Why I pity those....? Well, I know I must be difficult to live with. For oh so many reasons, but Parkies is certainly one of them. One minute I am say...
Two poems - 'Where is the little boy?' and 'Have you seen your mother naked?' - Episode 25
02 Jan 2025
Contributed by Lukas
As the names suggest, these are two quite different poems. As they are short I thought I would record them together. I wonder if at the end of the fir...
Pods and Blogs and Odds and Sods - Episode 24
01 Jan 2025
Contributed by Lukas
This is a podcast inspired by my seeking information about what structure people usually have for their podcasts. How many series, how many episodes e...
Legal Stuff - Enduring Powers of Attorney - Episode 23
31 Dec 2024
Contributed by Lukas
Hi, this is the second interview with Louise Taylor, a well-respected lawyer whom I have known for several years. It emphasises the importance of a Wi...
Legal Stuff - Wills - Episode 22
31 Dec 2024
Contributed by Lukas
Welcome to my first interview on My Journey with Parkinson's. The interview is with a well-respected lawyer, Louise Taylor who I have known for severa...
To my love - Episode 21 - a poem
29 Dec 2024
Contributed by Lukas
A sentimental poem this time. Written some time ago, when I was neither old, nor gray.
Now I'm retired - a poem - Episode 20
29 Dec 2024
Contributed by Lukas
I wrote this poem shortly after retiring. It felt so free to be able to have control of my life, with no boss telling me what to do, my time was my ow...
The next generation - Episode 19
29 Dec 2024
Contributed by Lukas
Spending time with my children and grandchildren this Christmas, gave me an opportunity to see what my children and grandchildren might want in the wa...
Perfect imperfection and Parkies - Episode 18
27 Dec 2024
Contributed by Lukas
I have never strived for perfection. Instead, I have tried to be the best I can and that can change moment to moment, day to day and hour to hour. It ...
Who am I? - Episode 17
26 Dec 2024
Contributed by Lukas
Another poem. This time, about identity. Who we are, and how we are seen can have a huge impact on our sense of self.
Pills, pills, pills - A poem - Episode 16
26 Dec 2024
Contributed by Lukas
This is a poem that many will identify with. The endless amount of pills we seem to be prescribed will be familiar to many I'm sure.
What do we leave our children? Memories, Money and Mayhem - Episode 15
25 Dec 2024
Contributed by Lukas
Sharing Christmas with my two children, my daughter-in-law and my six grandchildren. Reflecting on what I might pass on to them one day and telling th...
Christmas 2024 - Episode 14
21 Dec 2024
Contributed by Lukas
I thought I would write a quick poem about Christmas to share with you. I hope you like it. I'd love to hear your comments on this or any of my podcas...
I have a confession to make - Episode 13
19 Dec 2024
Contributed by Lukas
A conversation with my husband yesterday made me think about my future and when I might have to face leaving this home and my husband. I hope that is ...
Going down memory lane - Episode 12
19 Dec 2024
Contributed by Lukas
This is one of the podcasts that doesn't directly relate to Parkinson's itself perhaps, but in a way everything in life is affected by having this con...
'Ode to shopping for shoes and finding a mate - a poem' - Episode 11
18 Dec 2024
Contributed by Lukas
I wrote this many years ago as part of my degree course. Internet dating was very new at the time and I was on a dating site myself. So, I wrote this ...
'What's precious?' - Episode 10
18 Dec 2024
Contributed by Lukas
How do we know what is precious, if we don't ask and how can we be annoyed/angry at someone who couldn't possibly know that it is more than just a thi...
My 4th Anniversary with Parkinson's - Episode 9
15 Dec 2024
Contributed by Lukas
On 15/12/2020 I was diagnosed with Parkinson's. It has changed my life in so many ways, while I remain a 'slow burner' as it hasn't made me deteriorat...
Christmas, 'Loved Ones' and Parkies Anniversaries - Chapter 8
13 Dec 2024
Contributed by Lukas
In this podcast I talk about Christmas and an awareness that it is not always a happy time for people. Also, the term 'Loved Ones' that I have always ...
Party Priorities - Men vs Women Episode 7
12 Dec 2024
Contributed by Lukas
This is one of many poems I have written over time. I have been writing poetry since I was 5 years old. Strangely, since being diagnosed with Parkinso...
Ducking and Diving and Downright hiding - Episode 6
12 Dec 2024
Contributed by Lukas
I am using a walker due to pain issues with a back injury. I hate it if I think people think my Parkies has progressed. I don't know why, there is no ...
Sometimes it's hard to socialise - Episode 5
10 Dec 2024
Contributed by Lukas
I've been retired since early May this year. So, I am at home on my own much more. I am trying to keep busy, but with my pain issues that's not always...
Where am I now - four years on from diagnosis? - Episode 1
08 Dec 2024
Contributed by Lukas
It's always good to stop and review how things are going I think. To take a step back and ask yourself how life is from time to time. Am I still doing...
Making memories - Episode 3 Podcast
08 Dec 2024
Contributed by Lukas
One of the things that was important to me when I was diagnosed was a sense that I didn't want to waste any time that I had and I wanted to spend more...
Discussing the future - Episode 4
08 Dec 2024
Contributed by Lukas
One topic that comes up often when talking to newly diagnosed people, is have they discussed the future with anyone close to them. They can present at...
My road to diagnosis and who did you tell? - Episode 2
08 Dec 2024
Contributed by Lukas
I am a second generation person with Parkinson's . Both my parents had it and so I grew up knowing about this condition. I started a blog to help me p...