Remember Me

Bob B.

15 Apr 2026

Contributed by Lukas

We're back from our mid-season break with a story of a young couple - Erin and Bob. Erin shares the journey to an FTD diagnosis after many misdiag...

Faye

25 Mar 2026

Contributed by Lukas

In our last episode before the mid-season break, Shane, takes to the mic , and both of us were eager to hear his story with his late wife, Faye. This ...

Barbara

18 Mar 2026

Contributed by Lukas

Today you'll meet Susan and her late wife, Barbara. Susan joined us all the way from Mexico, where we saw her beautiful Milagro wall as she spoke ...

Doug

11 Mar 2026

Contributed by Lukas

Karen sits down with us for this week's episode and the conversation took right off. Karen spoke openly, albeit delicately, about the changes she ...

Maureen

04 Mar 2026

Contributed by Lukas

Today we welcome Michael as he shares his journey with his wife Maureen. Maureen was diagnosed with FTD after a misdiagnosis of psychiatric disorders ...

Larry

25 Feb 2026

Contributed by Lukas

We are excited to share this weeks guest, Elin with all of you. During our conversation, Elin openly shared her feelings and her confusion as her husb...

Al

18 Feb 2026

Contributed by Lukas

Welcome to Season 12. We are so happy you’re back and if you’re joining us for the first time, welcome in. This season, our stories are all being ...

"This is what it's all about"

17 Dec 2025

Contributed by Lukas

Our season 11 finale - a chat with just us - reflecting on the season, our journey of building RM + our latest project: The Remember Me Foundation. We...

FTD Real Talk with Kelsey Cook

10 Dec 2025

Contributed by Lukas

Get ready—comedian Kelsey Cook joins us for a powerful Real Talk episode all about Frontotemporal Dementia (FTD), caregiving, grief, and finding ...

Managing the Behaviors No One Prepares You For

03 Dec 2025

Contributed by Lukas

Allison Lindauer, PhD, APRN joins us to tackle the challenges of navigating behavioral changes caused by Frontotemporal Degeneration (FTD). We talk ...

The Unexpected Journey with Emma Heming Willis

19 Nov 2025

Contributed by Lukas

Emma Heming Willis is here! Powerhouse FTD advocate, loving wife and care partner to her husband Bruce, devoted mama to her two young daughters - entr...

Should I get genetic testing?

05 Nov 2025

Contributed by Lukas

We’re tackling the question - Should I get genetic testing?We have the incredible return guest - Erynn Gordon, CGC, program manager at Progranulin I...

The end isn't always scary

29 Oct 2025

Contributed by Lukas

Today we talk about 'the end' - our experiences, our fears + how peaceful it ended up being. We call in our friend Katie Duncan, nurse practit...

Anticipatory grief is brutal

22 Oct 2025

Contributed by Lukas

We talk about the type of grief we feel like people don't understand: Anticipatory Grief. Losing someone bit by bit, and always waiting for the ne...

FTD changed my family

15 Oct 2025

Contributed by Lukas

One of the hardest parts of the wreckage that FTD leaves in its wake is the effect it has on families. In today's episode, we open up about the dy...

Losing A Parent While Becoming A Parent

08 Oct 2025

Contributed by Lukas

We got robbed. And we want to talk about it. The ways we coped - the ways we didn't. Where we found joy, and where we didn't. The awkwardness ...

Real Talk - 5 Years of Reflections...

01 Oct 2025

Contributed by Lukas

Welcome to Season 11 - we're reflecting on 5 years of this crazy journey -- meeting by chance, losing our parents, building Remember Me, learning ...

Season 11 Trailer | REAL TALK

29 Sep 2025

Contributed by Lukas

....a quick look into our 11th Season of Remember Me. This season is all about our reflections on our personal journeys and how we've learned and ...

World FTD Awareness Week Special | FTD Research Updates with Dr. Darby of Vanderbilt

24 Sep 2025

Contributed by Lukas

Surprise! Coming to you a few weeks before our Season 11 launch with a BONUS episode to celebrate World FTD Awareness Week. We chatted with Dr. Ryan D...

Tommy

01 Jul 2025

Contributed by Lukas

In our Season 10 finale, Alyssa describes the FTD journey with her father, Tommy - starting from her perspective at 11 years-old. She weaves us throug...

Family Dynamics 101 with Dr. Adam, Professor of Interpersonal & Family Communication

24 Jun 2025

Contributed by Lukas

Dr. Adam a professor of Interpersonal & Family Communication (and host of one of Maria's favorite podcasts The Sister Wives Professor) is here...

Pat

17 Jun 2025

Contributed by Lukas

Today's episode features Lauren - who tells the story of her mother Pat's journey with Alzheimer's - PPA and lung cancer. Lauren describes noticing he...

Terry

10 Jun 2025

Contributed by Lukas

Jackie von Salm, a chemist and Chief Scientific Officer at Psilera, shares her father Terry's journey with FTD. We loved how Jackie was so raw + h...

Family Dynamics & Legal Lessons with Elder Law Attorney Jerry Rothkoff

03 Jun 2025

Contributed by Lukas

This week's episode dives into the legal side of family dynamics with Elder Law Attorney Jerry Rothkoff. We cover all of our burning legal questions -...

Robert

20 May 2025

Contributed by Lukas

Our inaugural in-law guest on the podcast, Amber, eloquently discusses her experiences as a mother, wife, and caregiver to her father-in-law, Robert. ...

Bill

13 May 2025

Contributed by Lukas

Christy found a way to navigate her father's FTD diagnosis with poise -- From fighting for a diagnosis to navigating 4 different Memory Care facilitie...

Holly

06 May 2025

Contributed by Lukas

Today's episode feels like a conversation between 3 old friends. Genessee, openly shares her unique experience with her mother's complex menta...

Russ

29 Apr 2025

Contributed by Lukas

Continuing on our theme of family dynamics - a long-time listener and friend of the podcast, CJ, comes forward to share her story. We talk a lot about...

Peggy

15 Apr 2025

Contributed by Lukas

A young son and family member from NYT Magazine's “The Vanishing Family” speaks with us on today's episode. In what may be one of our mo...

Mike

07 Apr 2025

Contributed by Lukas

A beautiful blended family-- Janet's husband Mike was diagnosed with FTD during the pandemic -- and she shares with us how she navigates the heart...

Dominic

01 Apr 2025

Contributed by Lukas

We plunge head first into family dynamics with our extraordinary guest, Niki. Niki shares the story of her father, Dominic, detailing his journey with...

Family Dynamics

25 Mar 2025

Contributed by Lukas

SEASON 10! WHAT? 10 seasons in and we're finally ready to dive into the topic of Family Dynamics. Before diving into our guests stories, our first...

BONUS | Grief & Genetic Testing with Erynn Gordon, MS, CGC, Progranulin Information Navigator

05 Feb 2025

Contributed by Lukas

Surprise... another BONUS ep! The grief convo in Season 9, we felt, really needed to include the genetic piece of this disease, and so we are HONORED...

BONUS | A Conversation on Grief with the AFTD

28 Jan 2025

Contributed by Lukas

Surprise! We're back with a Season 9 Bonus Episode, and if you are so inclined, you can now WATCH this episode on Youtube. We sat down with our friend...

Craig

24 Dec 2024

Contributed by Lukas

In our Season 9 finale we hear from our friend Anna, wife to the incredible, confident, loving girl-Dad, Craig. Anna's strength and her love is so ins...

The Phenomenon of Grief with Rachael Martinez, MA, Grief Support Specialist

17 Dec 2024

Contributed by Lukas

Anticipatory Grief, Complicated Grief, Disenfranchised Grief... we cover it all + Rachael's explanation for her fascination with grief and all things ...

Diana | Part 2

10 Dec 2024

Contributed by Lukas

In Part 2 of this powerful story we discuss Kayla's coming back to her mom in the final year's of Diana's life. Kayla tells us all about her grief jou...

Diana | Part 1

03 Dec 2024

Contributed by Lukas

Here is part one of an episode we weren't sure what to title - and after you listen, we think you'll understand why. Kayla recounts and her 20 year e...

David

26 Nov 2024

Contributed by Lukas

Today's episode is told by Liz, who was 12 years old when her father passed away from FTD-ALS. Her perspective was both fascinating and inspiring and ...

Evan

12 Nov 2024

Contributed by Lukas

Today's episode is the first one this season told from the spouses perspective... and Allyson is such a special spouse to her husband Evan. From misdi...

Rosetta

05 Nov 2024

Contributed by Lukas

Ready to dive into all the feels? This may be our favorite convo on grief to date. In today's episode Aisha tells us about her mother's journey with F...

Eugene

29 Oct 2024

Contributed by Lukas

Long-time listener and "Re-member" Liz, shares her father Eugene's journey with FTD. A year plus since his passing, Liz shares her experience with gri...

End of Life Myths and Mysteries with Katie Duncan, MSN, AGPCNP-BC @deathcarecoach

22 Oct 2024

Contributed by Lukas

This week we have an amazing expert guest - Katie Duncan - a former Hospice Nurse turned End of Life Coach who answers all of our (mostly Rachael’s)...

Debbie

15 Oct 2024

Contributed by Lukas

Today's story is about a woman who was very aware of her disease and the fact that she was changing. Told from her daughter Kyra's perspective, Debbie...

Jerry

08 Oct 2024

Contributed by Lukas

Today's story is shared with the perspective of 20 years in the rear view mirror. Cindy joins us to tell the story of her father Jerry's journey with...

Anticipatory Grief: Victoria's Story

01 Oct 2024

Contributed by Lukas

Victoria openly shares the brutality of anticipatory grief, the unending love she has for her mama and the ways she got to know herself in the darknes...

Steve

24 Sep 2024

Contributed by Lukas

Our first episode of the season belongs to our new pal Scott. Through an open letter to his grief and the most beautiful love for his Dad, Scott open...

On The Road with HFC | Reflections On The Caregiving Journey

12 Sep 2024

Contributed by Lukas

We wrap up our special summer series with a heartfelt conversation on both our time on the road and our time as caregivers. Thank you to HFC for thi...

On The Road with HFC | Music, Grief + Dementia with Karen Pearson at Amoeba Music

23 Aug 2024

Contributed by Lukas

We stopped at the ICONIC Amoeba Music... and we had the most tender conversation on music and grief with Co-Owner Karen Pearson. We loved hearing abou...

On the Road with HFC | The Brain Donation Decision with Lauren Miller Rogen

15 Aug 2024

Contributed by Lukas

A very special sit-down interview with Lauren Miller Rogen, actress, screenwriter, director AND co-founder of ⁠⁠HFC⁠⁠ alongside her husband Se...

On The Road with HFC | A Little Summer Adventure

15 Aug 2024

Contributed by Lukas

Surprise! Here to share all about being on the road with ⁠HFC⁠ AKA Hilarity for Charity. Have no idea what we're talking about? Take a seat. From ...

BONUS: Understanding Different Aspects of FTD Research with Dr. Irwin and Dr. Massimo

20 Jun 2024

Contributed by Lukas

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is #2 of the TWO bonus episodes we produced for Season 8! In this episode ...

BONUS: Understanding Clinical Trials for FTD with Dahlia Kamel, Penn FTD Center

20 Jun 2024

Contributed by Lukas

Y’all thought we’d stay away this long??? We’re baaaccckkk! And this is one of TWO bonus episodes we produced for Season 8! In this episode we ...

Season Finale: In Conclusion...with Rachael + Maria

16 Apr 2024

Contributed by Lukas

In conclusion...it's our season finale... and we're wrapping up this series with our own little bow. Make sure to listen til the very end. And stay in...

Understanding Guardianship, Power of Attorney + More with Kate Lietz, MSW, LSW

09 Apr 2024

Contributed by Lukas

This week we talk all about Guardianship, Power of Attorney, Long Term Care... and other "scary" and confusing terms that can come up when planning ca...

Disease Trajectory with Lauren Massimo, PhD, CRNP, Co-Director of the Penn FTD Center

26 Mar 2024

Contributed by Lukas

Are there stages of FTD? What can you "expect"? This week we walk through disease trajectory with Dr. Lauren Massimo (also featured on Episode 2 - Und...

Understanding Hyperorality and Alcohol Use with Dr. Sara Manning, Penn FTD Center

19 Mar 2024

Contributed by Lukas

This episode revolves around the symptoms of hyperorality -- with a focus on the very common symptom of alcohol use (and abuse). Have a listen as th...

Understanding Loss of Empathy with Dr. Emma Rhodes

12 Mar 2024

Contributed by Lukas

This week we dive into loss of empathy with Dr. Emma Rhodes. We discuss how this behavior so often reveals itself with birth and death announcements a...

Understanding FTD and ALS with Corey McMillan, Phd, Co-Director of the Penn FTD Center

05 Mar 2024

Contributed by Lukas

WE'RE BACK! With a very important interview with the brilliant Corey McMillan, Co-Director of the Penn FTD Center. This week we tackle ALS and FTD - ...

Disinhibition, Impulse Control & Hypersexuality with Dr. Katya Rascovsky, Penn FTD Center

13 Feb 2024

Contributed by Lukas

In our last episode before our mid-season break, we talk to the incredible Dr. Katya Rascovsky about some of the most heartbreaking behaviors in FTD: ...

Understanding Primary Progressive Aphasia with Naomi Nevler, MD

06 Feb 2024

Contributed by Lukas

This week we dive into more of Maria's experience with her mom as we discuss Primary Progressive Aphasia (PPA) with ⁠Naomi Nevler, MD from the Penn ...

Ritualistic Behaviors with Gillian Bradley MA, BSN, RN, Penn FTD Center

30 Jan 2024

Contributed by Lukas

This week we tackle ritualistic behaviors with Gillian Bradley MA, BSN, RN from the Penn FTD Center. Gillian works with caregivers and families to und...

Understanding Aggression and Agitation in FTD with Dr. Jeff Maneval, Neurologist at the Penn FTD Center

23 Jan 2024

Contributed by Lukas

In this episode, we dive into the challenging behaviors of Agression, Agitation... and also Paranoia. Past guest and friend of the podcast, Evan, reca...

Apathy with Lauren Massimo, PhD, CRNP, Co-Director of the Penn FTD Center

16 Jan 2024

Contributed by Lukas

In this episode, we tackle one of the most common FTD symptoms, apathy. We do this first with Maria's Mother's best friend Melina, who shares the apat...

Intro to Season 8 with Dr. David Irwin, Co-Director of the Penn FTD Center

09 Jan 2024

Contributed by Lukas

We are so thrilled to be back behind the mic for SEASON 8! (I know!! Crazy, right??). We launch this innovative season, where we match the stories to ...

The Tale of The Tour of 3 Cities

21 Nov 2023

Contributed by Lukas

The tale has finally been told. Tune in to hear all the ins and outs of Remember Me's first tour... and we hope this light bonus episode helps get you...

BONUS: Re-Release of Frankie

10 Nov 2023

Contributed by Lukas

To honor Frank on the 3rd anniversary of his passing, we are re-releasing our very first episode... and with a little intro / checkin from your favori...

BONUS EP: Adventures, Sky Cries + BIG PLANS for World FTD Awareness Week

12 Sep 2023

Contributed by Lukas

SURPRISE! We miss you all + we're here to fill you in on our upcoming adventure. We hope you enjoy this BONUS episode! LEARN MORE ABOUT THE TOUR FOR ...

An Update on FTD Research with Dr. Brad Boeve

30 May 2023

Contributed by Lukas

We close out season 7 with an update on FTD research from world renown neurologist Dr. Bradley Boeve. Dr. Boeve shares the importance advocacy and aw...

Do I Want To Know My Status?

23 May 2023

Contributed by Lukas

Rachael asks herself the question, "Do I want to know my genetic status?" Make sure you listen til the end for a very special clip... and tune in nex...

The M Family

16 May 2023

Contributed by Lukas

A physician shares his family's journey with FTD clinical trials. There are so many things to think about when getting involved in research and/or enr...

Lesley

09 May 2023

Contributed by Lukas

Our friend Lauren from across the pond joins us to share her mother Lesley's journey with FTD. Lauren takes us through the search for answers as to he...

Allison, Pt. 2

02 May 2023

Contributed by Lukas

Linde returns this week to dive into her journey with genetic testing following her mother Allison's passing. This may be one of the most raw conv...

Allison, Pt. 1

25 Apr 2023

Contributed by Lukas

And we're back with our 100th episode (!) of Remember Me with fierce FTD advocate and friend of the podcast, Linde Jacobs.Linde bravely shares her...

What is it like to work with a Genetic Counselor?

11 Apr 2023

Contributed by Lukas

Laynie Dratch of Penn Medicine comes onto the podcast to answer all of our burning questions about working with a genetic counselor. We loved chattin...

Julie

04 Apr 2023

Contributed by Lukas

Remember Sarah? The listener who inspired this season's theme? Today is her episode! This is a super-sized episode, because not only do we talk all ab...

Testing Positive: Peggy's Journey

28 Mar 2023

Contributed by Lukas

This week our guest Peggy openly shares the experience of living with the knowledge of testing positive for the Frontotemporal Degeneration (FTD) GRN ...

Mary

21 Mar 2023

Contributed by Lukas

Rachael shares her mother Mary's journey with FTD - Primary Progressive Aphasia - and also reveals her own personal journey of undergoing genetic test...

Sarah

14 Mar 2023

Contributed by Lukas

Wanda chronicles her mother Sarah's dementia journey in the 1980s - receiving the (mis)diagnosis of Alzheimer's at the age of 52. Sarah went on to bec...

Welcome to Season 7

07 Mar 2023

Contributed by Lukas

We're back for another season, and our main focus this season is GENETICS. In today's episode we dive into: - The latest news in the FTD world: Bruce ...

Lia

06 Dec 2022

Contributed by Lukas

In our Season 6 finale, Maria bookends the season with a retelling of her mom's story -- over 2 years later. We chat all about how as time passes... o...

ISFTD in France: All About FTD Research with Penny Dacks

29 Nov 2022

Contributed by Lukas

This week's we share an interview we did at the International Society for Frontotemporal Dementias (ISFTD) Conference in Lille, France with Penny Dack...

Our Experience at the International FTD Conference in France

22 Nov 2022

Contributed by Lukas

You finally get to hear all about our trip to the International Society for Frontotemporal Dementias (ISFTD) Conference in Lille, France. This episode...

Connie

15 Nov 2022

Contributed by Lukas

Stephanie shares her experience with her mother's journey with FTD and the role reversal that comes with caring for a parent diagnosed with FTD. Steph...

Expert Chat: Advanced Care Planning with Katie Brandt, Director of Caregiver Support Services at MGH FTD Unit

08 Nov 2022

Contributed by Lukas

Let's welcome Katie Brandt back to Remember Me to speak on a very important topic - Advanced Care Planning.  Sounds scary, huh? Rest assured that Kat...

We're Off To France

01 Nov 2022

Contributed by Lukas

We're wheels up and on our way! Listen to learn more about our plans for the International Society for Frontotemporal Dementias (ISFTD) Conference in ...

Gloria

25 Oct 2022

Contributed by Lukas

This week's story comes to us all the way from the U.K. Kit shares her journey with her mother Gloria's Behavioral Variant FTD.  Kit's way of articu...

The B Family

18 Oct 2022

Contributed by Lukas

Today we are joined by Mike, who shares his family history of FTD.  Mike was a young boy in grammar school when his father started to change. He shar...

Expert Chat: All About Grief with Dr. Erica Srinivasan

11 Oct 2022

Contributed by Lukas

Today we are joined by Dr. Erica Srinivasan to talk all about our "favorite" topic... grief.   Anticipatory grief, ambiguous loss, coping strategies...

Diomi

04 Oct 2022

Contributed by Lukas

Maria's friend Evan joins the girls this week to share the story of his mother Diomi's journey with Primary Progressive Aphasia.   This is our first...

Cheryl

27 Sep 2022

Contributed by Lukas

It's World FTD Awareness week and we are honored to present an interview with talented model and incredible advocate, Nicole Petrie.  We are in awe o...

Frank

20 Sep 2022

Contributed by Lukas

Rachael tells the story of her father Frank's journey with Behavioral Variant FTD from a fresh new perspective... 2 years after our first episode of R...

FTD Research Mini-Series: All About Fluid Biomarkers with Dr. Adam Boxer of UCSF

30 Jun 2022

Contributed by Lukas

It's our last episode of our dementia research mini-series! And as a follow up to our recap of Day 4, we interviewed Dr. Adam Boxer to learn more abou...

FTD Research Mini Series: Day 4

28 Jun 2022

Contributed by Lukas

IT'S OUR LAST DAY OF RESEARCH! WE DID IT! As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael as the partic...

FTD Research Mini-Series: All About FTD with Dr. Brad Boeve of the Mayo Clinic

23 Jun 2022

Contributed by Lukas

As a follow up to our recap of Day 3, we interviewed world-renowned Dr. Brad Boeve to learn more about what we know about Frontotemporal Dementia, and...

FTD Research Mini Series: Day 3

21 Jun 2022

Contributed by Lukas

It's DAY 3! And there were a few surprises!  As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael as the pa...

FTD Research Mini-Series: All About MRIs with Dr. Howie Rosen of UCSF

16 Jun 2022

Contributed by Lukas

As a follow up to our recap of Day 2, we interviewed Dr. Howie Rosen to learn more about MRIs and how they're used in the ALLFTD Study and in diagnosi...

FTD Research Mini-Series: Day 2

14 Jun 2022

Contributed by Lukas

It's MRI Day! Our FTD Research mini-series continues! As you know at this point in the mini-series -- we participated in the ALLFTD Study -- Rachael a...

FTD Research Mini-Series: All About Neuropsych Testing with Psychometrist Steve Smith

09 Jun 2022

Contributed by Lukas

As a follow up to our recap of Day 1, we interviewed Steve Smith to learn more about Neuropsych testing. Steve explains what it’s like to administer...

FTD Research Mini-Series: Day 1

07 Jun 2022

Contributed by Lukas

It's finally here! Our FTD Research Mini Series.  We participated in the ALLFTD Study -- Rachael as the participant, and Maria as the study partner.....