Sarcoma Stories
Episodes
Kate & Kristen
02 Apr 2026
Contributed by Lukas
In this episode, we sit down with Kate DeForge, who was diagnosed with undifferentiated pleomorphic sarcoma as a young adult. Kate opens up about what...
Simone Cheatham
05 Mar 2026
Contributed by Lukas
On this episode, we’re joined by Simone Cheatham, a member of the Race to Cure Sarcoma Chicago Committee. Simone became actively involved after her ...
Julie Harp
06 Feb 2026
Contributed by Lukas
In this episode, we speak with Julie Harp, who shares her experience as a care partner to her son, Don, during his sarcoma journey and as he approache...
Crystal Malaka
09 Jan 2026
Contributed by Lukas
We return from winter break and are joined by Crystal Malaka, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial m...
Carol Haslam
26 Nov 2025
Contributed by Lukas
In this episode, we sit down with Carol Haslam of Sarcoma Cancer Ireland. Carol not only is a board member and driving force behind the organization’...
Joel & Amanda Stetler
12 Nov 2025
Contributed by Lukas
On today’s episode, we’re joined by Joel and Amanda Stetler — a dynamic couple from California. Joel has been knowingly living with a low-grade ...
Chris Barry
29 Oct 2025
Contributed by Lukas
On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco ...
Andrey Ivchenko
10 Sep 2025
Contributed by Lukas
On this episode of Sarcoma Stories, we’re joined by actor Andrey Ivchenko as he shares his powerful journey through a chondrosarcoma diagnosis.While...
SFA's Founders
05 Sep 2025
Contributed by Lukas
We’re back from our summer hiatus with a very special episode to kick off Season 2!August 2025 marked the beginning of SFA’s 25th anniversary year...
Breon and Leia Glass
11 Jul 2025
Contributed by Lukas
On this episode, we speak with Breon and Leia Glass. Breon, a 29-year-old synovial sarcoma survivor and law enforcement officer, found his tumor while...
Emily Oberst
13 Jun 2025
Contributed by Lukas
On this episode, we’re joined by Emily Oberst, an Ewing sarcoma survivor. Emily shares her experience navigating childhood cancer — from the decis...
Dan Rubin
30 May 2025
Contributed by Lukas
On this episode, we sit down with Dan Rubin, who was diagnosed with Ewings sarcoma in 2017 and has since navigated many, many different types of thera...
Brian Fugere
16 May 2025
Contributed by Lukas
On this episode, we speak with Brian Fugere, who is a synovial sarcoma survivor of 20 years. Brian shares his perspective on what the sarcoma landscap...
Shaun Nerney
24 Apr 2025
Contributed by Lukas
On this episode of Sarcoma Stories, we welcome Shaun Nerney—actor, singer, performer, Dorito enthusiast and avid Knicks fan—to share his journey a...
Margaret Livermore
09 Apr 2025
Contributed by Lukas
On this episode, we speak with Margaret Livermore, a member of SFA's Public Policy Committee and a dedicated advocate for the sarcoma community. Marga...
Katie Wintergerst
19 Mar 2025
Contributed by Lukas
Join us as we speak with Katie Wintergerst, who shares her personal experience with synovial sarcoma. Katie discusses the importance of seeking multip...
Jenny Sage
05 Mar 2025
Contributed by Lukas
On this episode we speak with Jenny Sage, a parent of a pediatric sarcoma survivor, Gracie. Jenny shares her perspective on advocating for children wi...
Mike Cacioppo
19 Feb 2025
Contributed by Lukas
Mike Cacioppo, diagnosed with osteosarcoma in 2021, shares his experience of being a part of the sarcoma community as well as the amputee community an...
Maria Peña
05 Feb 2025
Contributed by Lukas
On this episode, Maria shares the sarcoma journey of her daughter Aubrie, who was diagnosed with CIC-DUX4. Maria speaks about the diagnosis experience...
The Brenneman Family
22 Jan 2025
Contributed by Lukas
In this episode, we speak with the Brenneman family who lost their father and husband, David, 12 years ago. We discuss the care partner experience of ...
Susie Donohue
09 Jan 2025
Contributed by Lukas
We're thrilled to welcome Susie Donohue, a uterine leiomyosarcoma survivor, for our third episode! We talk about navigating a new sarcoma diagnosis, w...
Jenna Pothier
20 Dec 2024
Contributed by Lukas
We're thrilled to welcome Jenna Pothier for our second episode! Join us as this DFSP survivor shares the importance of shared decision making between ...
Natasha Allen
06 Dec 2024
Contributed by Lukas
Join us for our first episode of our new podcast "Sarcoma Stories". We're thrilled to welcome our first guest, Natasha Allen! Join us as this synovial...