SMA News & Perspectives
Episodes
$1M Raised for ‘SpawnTogether,’ Disabled Gamers Project & DeAnn's Jaco Robotic Arm
06 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how $1 million has been raised by a Spinal Muscular Atrophy (SMA) patient for a d...
Some SMA Patients Unable to Walk Unassisted May Have Trouble Chewing
02 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how some Spinal Muscular Atrophy (SMA) patients unable to walk unassisted may hav...
Behind-the-Scenes of #31DaysofSMA
31 Aug 2021
Contributed by Lukas
#InstagramLive here: https://www.instagram.com/tv/CTBDgwbBFm5/ Ally Macgregor chats with Kevin Schaefer (@kevinschaefer19), Katie Napiwocki (@whee...
SMA UK Network Helps Patients Navigate Adulthood
30 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses an SMA UK network which helps patients navigate adulthood, living longer, attendi...
Most Parents Surveyed in Japan Support SMA Newborn Screening
27 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses newborn screening for Spinal Muscular Atrophy (SMA) in Japan and it’s support b...
SMA Type 1 Affects Sensory Nerves as Children Age, Small Study Shows
25 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) Type 1 affects sensory nerves as children age. ...
‘Best Possible Outcome’ for SMA? Newborn Screening, Then Zolgensma
23 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the best possible outcome for infants with Spinal Muscular Atrophy (SMA) is newbo...
Zolgensma Helps Mobility of SMA Children in Qatari Real-world Study
20 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the gene therapy Zolgensma helps improve mobility in young children with Spin...
FDA Lifts Hold on Clinical Trials of Intrathecal OAV-101 & Self-Acceptance and Rejecting Ableism
18 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the FDA lifting its partial hold on clinical trials of Intrathecal OAV-101 for th...
#88: SMA Awareness Month & 31 Days of SMA 2021
17 Aug 2021
Contributed by Lukas
In episode 88, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and Katie Napiwocki. They discuss this year’s 31 Day...
Zolgensma-Evrysdi Combo Likely Beneficial for SMA Type 1
16 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the Zolgensma-Evrysdi combination is likely beneficial for patients with Spin...
Inviting People to Sit at the Table of My Disabled Life & 31 Days of SMA Thus Far
13 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Katie Napiwocki, A Wildflower in the Wheelderness, “Inviting People t...
Muscular Dystrophy Canada Funds Projects on Newborn SMA Screening
11 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the award of funds by Muscular Dystrophy Canada for Spinal Muscular Atrophy (SMA)...
Spinraza Improves Lung Function in SMA Type 2 Child, Report Says
09 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses improved lung function with Spinraza in a Spinal Muscular Atrophy (SMA) Type 2 ch...
Why My Journey With Disability Pride Isn’t Linear & 31 Days of SMA Initiative
06 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup at a Time, “Why My Journey With Disabilit...
Novartis Stopping Work on Branaplam as Oral SMA Therapy & 31 Days of SMA
04 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Novartis stopping work on the development of Branaplam as an oral treatment for S...
#87: Interview with Allie Williams, Vocal Coach and Disability Advocate
03 Aug 2021
Contributed by Lukas
In episode 87, host Kevin Schaefer talks with Allie Williams from Stillwater, Oklahoma. Allie is a vocal coach and she has SMA Type II. She talks abou...
Early Work Supports Apitegromab’s Safety as SMA Muscle Therapy & Jaco Robotic Arm Approval
02 Aug 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses early work that supports Apitegromab’s safety as a Spinal Muscular Atrophy (SMA...
SadBaby Crowdfunding Aims to Help SMA Families & Accessibility, Disability Pride and Success
30 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses SadBaby, an organization raising donations to support children with Spinal Muscul...
Partnership Aims to Lower Out-of-Pocket Costs for Rare Disease Meds
28 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a partnership which aims to lower out-of-pocket costs for rare disease medication...
‘Wearable Cyborg’ Helps Improve Walking Ability And Muscle Strength
26 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a wearable cybernetic leg significantly improves walking ability for people w...
VRK1 Mutations Were Found in Two Adult-Onset SMA Hispanics & the SSI Restoration Act of 2021
23 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how VRK1 mutations were found in two adult-onset Spinal Muscular Atrophy (SMA) Hi...
COVID-19 Infection Turns Severe in SMA Type 1 Child & Treating Your Body Right
21 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a COVID-19 infection turns severe in a Spinal Muscular Atrophy (SMA) Type 1 c...
#86: Price Wooldridge, The Voice Behind the SMA Flash Briefings
20 Jul 2021
Contributed by Lukas
In episode 86, host Kevin Schaefer talks with Price Wooldridge from Fort Worth, Texas. Price is a voiceover contributor for the SMA News Today flash b...
Sma Treatment May Be More Effective by Altering an Underlying Molecule & Having a Service Dog
19 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) treatment may be more effective by altering an ...
Spinraza Improves Motor Function in Children And Adults With SMA Type 3 Children
16 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor function in Spinal Muscular Atrophy (SMA) Type 3 chil...
Stem Cell Therapy May Benefit Some Type 1 Infants & Disability Pride Month
14 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a stem cell therapy which may benefit some Spinal Muscular Atrophy (SMA) Type 1 i...
People in UK Urged to Sign Petition Adding SMA to Newborn Screening
12 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the UK SMA Newborn Screening Alliance calling on people to take action and sign a...
US Pediatricians Often Overlook Steps in Diagnosing SMA, Surveys Show
09 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how many U.S. pediatricians fail to use developmental screening tools in diagnosi...
Texas Adds SMA to Its Newborn Screening Program
07 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Texas adding Spinal Muscular Atrophy (SMA) to its newborn screening program. Als...
#85: Interview With Mikey and Noelle Hazel, Siblings with SMA
06 Jul 2021
Contributed by Lukas
In episode 85, host Kevin Schaefer talks with Mikey and Noelle Hazel from Union, New Jersey. Mikey and Noelle are siblings who both have SMA Type II. ...
Japan Approves Evrysdi as First At-home, Oral SMA Treatment
05 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Japan’s approval of Evrysdi as the first at-home, oral Spinal Muscular Atrophy ...
Major Developmental Milestones Met in Infants, Zolgensma Data Show
02 Jul 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgensma treatment demonstrating major milestones being met in infants with Spin...
Newborn Screening in Massachusetts Seen as Highly Accurate And Effective
30 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses newborn screening for Spinal Muscular Atrophy (SMA) in Massachusetts being seen a...
Spinraza Leads to Better Swallowing, Farther Walking & Weekly Wins: Sharing Wins in Our Forums
28 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses children with Spinal Muscular Atrophy (SMA) taking Spinraza, leanding to better s...
Apitegromab Safely Increases Motor Abilities in SMA Types 2, 3
25 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses meaningful improvements in motor abilities evident with apitegromab treatment in ...
Evrysdi Linked to Improved Motor Function in 2 Trials & Finding Community Support
23 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi being linked to motor function improvements in a broad range of people wi...
SMA Added to North Carolina’s Newborn Screening Program
21 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses adding a Spinal Muscular Atrophy (SMA) newborn screening program in North Carolin...
NICE Favors Zolgensma Being Added to England’s Public Health Program
18 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses NICE issuing its final Zolgensma appraisal for eligible Spinal Muscular Atrophy (...
Navigating the Past Year Without Caregivers Has Been Challenging
16 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup At a Time, “Navigating the Past Year With...
#84: Scholar Rock Updates and Embracing the Growing Pains of New Wheels
15 Jun 2021
Contributed by Lukas
In episode 84, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and DeAnn Runge. They discuss some topics from the 202...
NICE Initially Against Adding Evrysdi to UK Public Health System
14 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses England’s NICE recommending against adding Evrysdi to the UK’s Public Health ...
SMA and Sibling Relationships: A Brother’s Perspective & Sticking With Evrysdi
11 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Halsey Blocher, From Where I Sit, “SMA and Sibling Relationships: My...
Asuragen’s Lab Test Can Speed Up Diagnosis of SMA Carriers and Patients
09 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Asuragen’s lab test which can speed up diagnosis of SMA carriers and patients. ...
Stress-induced Protein May Serve as New SMA Biomarker in Infants
07 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a stress-induced protein may serve as a new Spinal Muscular Atrophy (SMA) bio...
Apitegromab, Muscle-directed Therapy for SMA, Put on FDA Fast Track
04 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Apitegromab being granted a fast track designation by the U.S. Food and Drug Admi...
SMN2 Copy Number and Rare Variant Influence SMA Severity
02 Jun 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the SMN2 copy number and a rare genetic variant influence the severity of Spi...
#83: Interview with Christine Getman and Scottie Foertmeyer, Couple and Magic Wheelchair Executives
01 Jun 2021
Contributed by Lukas
In episode 83, host Kevin Schaefer talks with Christine Getman and Scottie Foertmeyer from Portland, Oregon. Christine and Scottie are partners in lif...
SMA May Carry Higher Risk of Fluid Buildup in The Brain & Reflections on Memorial Day
31 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy may carry a higher risk of fluid buildup in the brain...
Apitegromab Safely Counters a Muscle Growth Suppressor in Patients With SMA
28 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Apitegromab safely counters a muscle growth suppressor in patients with Spina...
Cure SMA Offers US Patients Free Tools to Boost Their Independence & Managing Fatigue With SMA
26 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses free tools being offered by Cure SMA to boost the independence of Spinal Muscular...
Remembering to Prioritize Mental Health & Self-Esteem, Post Vaccination Plans and More
24 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads the column by Alyssa Silva, Life, One Cup At a Time, “I’m Remembering to Prioriti...
Neurofilaments May Not Be Biomarker for Older Patients & The New CDC Mask Recommendations
21 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how neurofilaments may not be a biomarker for older patients with Spinal Muscular...
Warning of TMA, Rare Blood Disorder, Added to Zolgensma’s Safety Label & Friendships and SMA
19 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses adding thrombotic microangiopathy (TMA) to the list of safety concerns for Zolgen...
#82: Interview with Hawken Miller, Journalist with Muscular Dystrophy
18 May 2021
Contributed by Lukas
In episode 82, host Kevin Schaefer talks with Hawken Miller from Newport Beach, California. Hawken is a features writer for SMA News Today’s parent ...
Sex And The Number of Copies of The SMN 2 Gene Can Influence Age of Onset for SMA Type 3 Patients
17 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how sex, and the number of copies of the SMN 2 gene influence age of onset for Sp...
UK NICE Expands Access to Spinraza for SMA Type 3 & The Disappointment of a Jaco Robotic Arm Denial
14 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how UK NICE expands access to Spinraza for Spinal Muscular Atrophy (SMA) Type 3 p...
German Study Urges Newborn SMA Screening, Citing Better Outcomes & Managing Chaos
12 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a German study which recommends newborn screening for Spinal Muscular Atrophy (SM...
Grant Awarded to Find Affordable Treatments for Children & SMA Would You Rather
10 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a grant awared to find affordable treatments for children with Spinal Muscular At...
Novartis Poised for Phase 3b SMART Study of Zolgensma & SMA Adventures
07 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Novartis is poised for their Phase 3b SMART study of Zolgensma. Also, DeAnn ...
Danish Family Races to Raise $2.4M for Daughter’s Zolgensma Therapy & Staying True To Yourself
05 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a Danish family raising $2.4 million for their daughter’s Zolgensma therapy. A...
#81: Interview With Chaz Hayden - Writer and YouTuber with SMA
04 May 2021
Contributed by Lukas
In episode 81, host Kevin Schaefer talks with Chaz Hayden from Princeton, New Jersey. Chaz is a writer and YouTuber with SMA. He talks about growing u...
#AANAM – Zolgensma May Lead to Faster, Greater Gains Than Spinraza
03 May 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma may lead to faster, greater gains than Spinraza in Spinal Muscular ...
Neurofilaments Before Spinraza May Predict Motor Improvements & Reviewing The Sound of Metal
30 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses neurofilaments, before beginning Spinraza, may predict motor improvements in chil...
Health Canada Approves Evrysdi for At-home Treatment
28 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Health Canada’s approval of Evrysdi for at-home treatment in SMA patients. Als...
Immune Response to Zolgensma Can Be Common in Older SMA Children
26 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the immune reponse to Zolgensma can be common in older Spinal Muscular Atrophy (S...
Prenatal Enrollment Yields Faster Results from Newborn Screening
23 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses prenatal enrollment of newborns for Spinal Muscular Atrophy (SMA) leads to faster...
Apitegromab Improving or Stabilizing Motor Function in Children And Young Adults With Small
21 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Apitegromab improving or stabilizing motor function in children and young adults ...
#80: Updates on Apitegromab and Discussing SMA Columns
20 Apr 2021
Contributed by Lukas
In episode 80, host Kevin Schaefer talks with fellow SMA News Today contributors Michael Morale and DeAnn Runge. They discuss updates on Scholar Rock’...
European Alliance Calls for Newborn Screening & Allergy Season, Sleep Solutions and SMA Treatments
19 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the European Alliance for Newborn Screening calling on all European states to int...
Architecture Of The SMN Complex Is Altered In People With SMA & Comparing Wheel Drive Wheelchairs
16 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the architecture of the SMN complex, which is altered in people with Spinal Muscu...
Spinal Fluid Changes With Spinraza’s Use Mild, Possibly Due to Lumbar Puncture
14 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses spinal fluid changes with Spinraza’s use in patients with Spinal Muscular Atrop...
Evrysdi Approved in Europe as First Oral, At-home Treatment & The Evrysdi Chronicles
12 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi’s approval in Europe as the first oral, at-home treatment for Spinal Mu...
Benefits of SMA Newborn Screening Outweigh Disadvantages In New Survey & Everyday Struggles With SMA
09 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the benefits of Spinal Muscular Atrophy (SMA) newborn screening outweighing the d...
#79: Interview With Ainaa Farhanah, a Graphic Designer Living with SMA
08 Apr 2021
Contributed by Lukas
In episode 79, host Kevin Schaefer talks with Ainaa Farhanah from Kuala Lumpur, Malaysia. Ainaa is a graphic designer and art teacher with SMA. She ta...
Scholar Rock Wins US Patent for Apitegromab & Receiving The COVID-19 Vaccine And Getting Outside
07 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock winning a U.S. patent to Apitegromab for treating Spinal Muscular At...
Zolgensma Helped Pre-symptomatic Babies Achieve Age-Appropriate Motor Milestones
05 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgensma helped pre-symptomatic babies with Spinal Muscular Atrophy (SMA) ac...
Zolgensma Continues to Prevent Motor Function Decline for 5 Years
02 Apr 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Zolgenzma continues to prevent motor function decline for five years for pati...
Evrysdi Leads to Longer-term Benefits for SMA Types 2, 3, Data Show
31 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Evrysdi leads to longer-term benefits for Spinal Muscular Atrophy (SMA) patie...
Zolgenzma Found To Be Safe And Effective in SMA Toddlers & The Importance of Schedules And Routines
29 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being found safe and effective in Spinal Muscular Atrophy (SMA) toddler...
Evrysdi Safe in SMA Patients Previously Given Other Therapies & The Evolution of Technology
26 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how treatment with Evrysdi is safe in Spinal Muscular Atrophy (SMA) patients prev...
SMA Foundation and PTC Joint Efforts to Fund Regenerative Medicine Research
24 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the SMA Foundation and PTC Therapeutics joint efforts to fund regenerative medici...
Reldesemtiv Aids Motor and Respiratory Strength in Types 2 and 3, Early Trial Finds
22 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the therapy, Reldesemtiv, aids motor and respiratory strength in Spinal Muscu...
Zolgensma Available Soon to Eligible SMA Type 1 Patients in England, Scotland
19 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Zolgenzma being added to the list of eligible medications for Spinal Muscular Atr...
Muscles Controlling Eye Movements Not Affected by SMA & Never Give Up Searching for Your Advocates
17 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how adults with Spinal Muscular Atrophy (SMA) usually don’t experience weakness...
#78: Discussing Switching Treatments, News Stories, and Recent Columns
16 Mar 2021
Contributed by Lukas
In episode 78, host Kevin Schaefer talks with fellow SMA News Today contributor and Senior Director Michael Morale. They discuss Michael’s decision ...
The Challenges Of Life as a Teen And Young Adult With SMA & Being Denied Access to SMA Treatment
15 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the challenges of life as a teen and young adult with Spinal Muscular Atrophy (SM...
CHMP Favors EU Approval of Evrysdi as 1st Oral, At-home SMA Treatment & Discussing GI Issues
12 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the Committee for Medicinal Products for Human Use (CHMP) approval of Evrysdi as ...
Evrysdi Seen to Improve Survival, Motor Development of Infants with SMA Type 1
10 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Evrysdi improving survival and motor development in infants with Spinal Muscular ...
Mother Raises 4 Adopted Girls From China With SMA, Chronic Illnesses
08 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a mother who has adopted and is raising four girls from China with Spinal Muscula...
Brain Involvement in SMA Type 1 Still Poorly Understood & Struggling to Personalize New Wheelchair
05 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses why brain involvement in Spinal Muscular Atrophy Type 1 is still poorly understoo...
Study Finds Varying Perspectives From Parents on Spinraza Therapy for Children
03 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses the varying perspectives from parents on Spinraza therapy for their children. Fo...
#77: Interview With Jeremy Camp, SMA Parent and Advocate
02 Mar 2021
Contributed by Lukas
In episode 77, host Kevin Schaefer talks with Jeremy Camp from San Diego, California. Jeremy and his wife Amanda have three children, and their younge...
New SMN-boosting Molecule Shows Promise as Add-on Therapy & Rare Disease Day and New Forums Topics
01 Mar 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a new SMN-boosting molecule which shows promise as an add-on therapy for Spinal M...
Rare Case of SMA Linked With Myoclonic Epilepsy Detailed in Report
26 Feb 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a rare case of Spinal Muscular Atrophy linked with a progressive myoclonic epilep...
Assistive Devices Should Be Standard in Managing SMA Type 1 & I’m Grateful for My Friends
24 Feb 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses assistive devices which should be standard in managing Spinal Muscular Atrophy (S...
Quantitative MRI Is Sensitive Measure of Muscle Decline
22 Feb 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses quantitative MRI imaging showing itself to be a sensitive measure of decline in y...
Spinraza Improves Motor Function in Case of Teenager with Late-onset SMA
19 Feb 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improves motor function in the case of a teenager with late-onset Sp...
A ‘Miracle’: Spinraza Gives Boy a Chance to Grow Up & Life Is an Adventure, So Let’s Be Pioneers
17 Feb 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a “miracle” when Spinraza gives a boy, now 5 years old, a chance to grow up f...
#76: Discussing Treatment Updates, Vaccine Access, and Recent Columns
16 Feb 2021
Contributed by Lukas
In episode 76, host Kevin Schaefer talks with fellow SMA News Today contributor DeAnn Runge. They discuss news regarding increasing the dosage of Spin...