Takeda Rare Disorders Digest
Activity Overview
Episode publication activity over the past year
Episodes
Episode 3 – Clinical experience and challenges with treating post-transplant CMV infection
07 Dec 2022
Contributed by Lukas
We head to the clinic this week to hear about Prof. Joe Sasadeusz’s clinical experiences with treating CMV, and the common challenges faced when man...
Episode 2 – Diagnosis and Treatment of Post-Transplant CMV infection
07 Dec 2022
Contributed by Lukas
We chat with Prof. Joe Sasadeusz about current and upcoming approaches to diagnose and treat CMV infections. Prof. Sasadeusz also shares his thoughts ...
Episode 1 - Living with a lifelong Cytomegalovirus (CMV) infection
07 Dec 2022
Contributed by Lukas
CMV is a common and yet permanent infection that poses risks to people with weakened immune systems. In this episode, Prof. Joe Sasadeusz sets the sce...
Episode 4 – Case Studies
07 Dec 2022
Contributed by Lukas
In the last episode of this series on DS and LGS, Prof. Rima Nabbout shares details on several clinical cases involving DS and LGS and outlines her th...
Episode 3 – Diagnosis and treatment of LGS
07 Dec 2022
Contributed by Lukas
In this episode, Prof. Rima Nabbout describes the clinical presentation, and diagnosis of LGS. She also walks us through some of the available treatme...
Episode 2 – Diagnosis and treatment of DS
07 Dec 2022
Contributed by Lukas
Prof. Rima Nabbout deep dives into the aetiology of DS, including genetic alterations such as SCN1A mutations. She also tells us about diagnosing and ...
Episode 1 – Living with Dravet Syndrome (DS) and Lennox-Gastaut Syndrome (LGS)
07 Dec 2022
Contributed by Lukas
Prof. Rima Nabbout and patient advocate, Ms Lisa Foster, tell us more about DS and LGS, rare epileptic disorders that are associated with high morbidi...
Episode 4 – Case Studies
07 Dec 2022
Contributed by Lukas
In the last episode of this series on TTP, Dr Eng Soo Yap shares some of his clinical experiences with the diagnosis and management of immune-mediated...
Episode 3 – Treatment of TTP
07 Dec 2022
Contributed by Lukas
Dr Eng Soo Yap helps us understand more about the role of therapeutic plasma exchange (TPE) in treating iTTP and cTTP, and some of the challenges asso...
Episode 2 – Diagnosis of TTP
07 Dec 2022
Contributed by Lukas
Despite extensive research in this area, TTP diagnosis continues to be a challenging affair for clinicians. Dr Eng Soo Yap helps us understand more ab...
Episode 1 – Living with Thrombotic Thrombocytopenic Purpura (TTP)
07 Dec 2022
Contributed by Lukas
TTP is a life-threatening rare blood disorder requiring rapid diagnosis and treatment. Dr Eng Soo Yap and patient advocate, Ms Lisa Foster, help us un...