Science didn't understand my kids' rare disease until I decided to study it | Sharon Terry - TED Talks Daily | Transcription & Insights

Audio

Description

Meet Sharon Terry, a former college chaplain and stay-at-home mom who took the medical research world by storm when her two young children were diagnosed with a rare disease known as pseudoxanthoma elasticum (PXE). In this knockout talk, Terry explains how she and her husband became citizen scientists, working midnight shifts at the lab to find the gene behind PXE and establishing mandates that require researchers to share biological samples and work together.For a chance to give your own TED Talk, fill out the Idea Search Application: ted.com/ideasearch.Interested in learning more about upcoming TED events? Follow these links:TEDNext: ted.com/futureyouTEDSports: ted.com/sportsTEDAI Vienna: ted.com/ai-viennaTEDAI San Francisco: ted.com/ai-sf Hosted on Acast. See acast.com/privacy for more information.

Transcription

This episode hasn't been transcribed yet

Help us prioritize this episode for transcription by upvoting it.

0 upvotes

🗳️ Sign in to Upvote

Popular episodes get transcribed faster

TED Talks Daily

Science didn't understand my kids' rare disease until I decided to study it | Sharon Terry

This episode hasn't been transcribed yet

Other episodes from TED Talks Daily

Can you picture things in your mind? I can't | Alex Rosenthal

Beyond the Talk: Pico Iyer on silence and stillness

Is inviting everyone to the meeting killing global cooperation? | Qahir Dhanani

How to introduce yourself — and get hired | Rebecca Okamoto

How to live a meaningful life | Brian S. Lowery (re-release)

A 3-step guide to believing in yourself | Sheryl Lee Ralph (re-release)

Sign in to Audioscrape

Share this moment