The Parkinson's Podcast

Dancing, Movement, Medications, and Living Well with Parkinson's with Pamela Quinn

21 Mar 2023

Contributed by Lukas

In this episode, professional dancer, Founder of PD Movement Lab, and person with Parkinson's Pamela Quinn talks about:   Her story of diagnos...

Why Do I Feel Faint and Dizzy with Parkinson's? Understanding nOH (Neurogenic Orthostatic Hypotension) with Dr. Salima Brillman

14 Mar 2023

Contributed by Lukas

In this episode, Dr. Salima Brillman discusses:   The what and why of nOH (neurogenic orthostatic hypotension)  Treatments for nOH  In...

Newly Diagnosed with Parkinson's: An Interview with Dr. Aaron Haug

07 Mar 2023

Contributed by Lukas

In this episode, Dr. Aaron Haug discusses:  How Parkinson's is diagnosed  The non-motor symptoms of Parkinson's  What's happening in the ...

Gait, Balance, and Falling: A Conversation with the Living with Parkinson's Meetup

28 Feb 2023

Contributed by Lukas

Episode Description:    In this episode, panelists from our monthly Living with Parkinson's Meetup discuss:  The what and why of falling...

From Care Partner to Care Giver: An Interview with Terri Pease

21 Feb 2023

Contributed by Lukas

In this episode, Terri Pease, a care partner to her husband Peter until his passing talks about:  Letting go of the feeling of "mutuality"  Learn...

Depression, Anxiety, and Mood Changes in Parkinson's with Dr. Joanne Hamilton

14 Feb 2023

Contributed by Lukas

In this episode, Dr. Joanne Hamilton discusses:  The difference between a bad mood and a clinical mood disorder  Not pathologizing normal emotion...

Living Well with Parkinson's and Re-defining Identity with Jan and Bill Grimes

07 Feb 2023

Contributed by Lukas

In this episode, Jan and her husband, Bill Grimes, share:  How their life has changed since Jan got diagnosed with Parkinson's  How Jan redefined...

Parkinson's Disease Psychosis (Hallucinations, Delusions, and Illusions): Part 2 with Dr. Dylan Wint

31 Jan 2023

Contributed by Lukas

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Be...

Parkinson's Disease Psychosis (Hallucinations, Delusions, and Illusions): Part 1 with Dr. Dylan Wint

24 Jan 2023

Contributed by Lukas

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Be...

Parkinson's is Hard: Part 2

17 Jan 2023

Contributed by Lukas

In this episode, the Living with Parkinson's Meetup panelists discuss:  The importance of self-compassion  Asking for help  Symptoms worsening ...

Parkinson's is Hard: Part 1

10 Jan 2023

Contributed by Lukas

In this episode, the Living with Parkinson's Meetup panelists discuss:  The fact that Parkinson's does progress, and treatments and techniques begi...

Deep Brain Stimulation (DBS), ON and OFF times, and Getting Through It with Heather Kennedy

03 Jan 2023

Contributed by Lukas

In this episode, Heather Kennedy, a person with Parkinson's who has been living with the diagnosis for 12 years discusses:  Three articles she's re...

The Value of Community, Meaning, and Purpose in Parkinson's

11 Oct 2022

Contributed by Lukas

In this episode, Living with Parkinson's Meetup panelists, Sree Sripathy, Kevin Kwok, Tom Palizzi, Kat Hill, Robynn Moraites, and Heather Kennedy as w...

Managing Motor Symptoms During OFF Times in Parkinson's

04 Oct 2022

Contributed by Lukas

In this episode, panelists Yasar Torres-Yaghi (movement disorder specialist), Amanda Craig (occupational therapist), and Joe Van Koeverden (person wit...

Freezing of Gait, Postural Instability, and Exercise in Parkinson's

27 Sep 2022

Contributed by Lukas

In this episode, Dr. Jay Alberts discusses: The connection between cognition and freezing of gait What you can do to improve your cognitive and phy...

What Not to Say to a Person with Parkinson's

20 Sep 2022

Contributed by Lukas

In this episode, Living with Parkinson's Meetup (formerly the YOPD Council) panelists discuss:  Common hurtful phrases they hear from people without...

The What and Why of Parkinson's Motor Symptoms and How to Manage Them

13 Sep 2022

Contributed by Lukas

In this episode, movement disorder specialist, Dr. Suketu Khandhar discusses: The neurological cause of motor symptoms Slowness of gut The subtypes ...

A Conversation with Dave Iverson on Being a Caregiver for 10 Years

06 Sep 2022

Contributed by Lukas

In this episode, author, filmmaker and producer, and retired broadcast journalist, Dave Iverson shares: Why he chose to write the book Winter Stars ...

Managing the Role of Parkinson's Care Partner

30 Aug 2022

Contributed by Lukas

In this episode, panelists Juwairiya Syed, Bud Rockhill, Barb Ankenman, Mary Gail Anderson, John Paul Lederach, and Angela Robb discuss: Maintaining...

Getting "Away" From Parkinson's

23 Aug 2022

Contributed by Lukas

In this episode, panelists Soania Mathur, Wayne Gilbert, Robynn Moraites, and Sarah Zenner discuss: The fact that there's no such thing as getting "...

Urinary Dysfunction and Parkinson's

16 Aug 2022

Contributed by Lukas

In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, discusses: The differences in urinary dysfunction between d...

Traveling with Parkinson's

09 Aug 2022

Contributed by Lukas

In this episode, Living with Parkinson's panelists discuss: Packing lists   Airport tips, tricks, and suggestions  The importance of taking your t...

How Can I Use Parkinson's for Good? The Importance of Community and Mindset in Living Well with YOPD with Allan Cole

02 Aug 2022

Contributed by Lukas

In this episode, Allan Cole, a professor and published author in social work and counseling, and a person living with young onset Parkinson's discuss...

For Care Partners: Managing Your Own Mental Health and Well-Being

26 Jul 2022

Contributed by Lukas

In this episode, social worker Jessica Shurer, discusses: What self-care for care partners actually means The complexities of mental health for Parki...

Managing Depression and Anxiety with Greg Pontone

19 Jul 2022

Contributed by Lukas

In this episode, Dr. Gregory Pontone discusses:  What mental health, wellness, and well-being really mean Understanding the definition of mental il...

Think Like a Dancer to Live Well with Parkinson's

12 Jul 2022

Contributed by Lukas

In this episode, David Leventhal, a program director and founding teacher of Dance for PD, a dance program for people with Parkinson's, talks to us ab...

Pain in Parkinson's

05 Jul 2022

Contributed by Lukas

In this episode, Dr. Jori Fleisher discusses a very prevalent but rarely talked about symptom of Parkinson's, pain. Dr. Fleisher discusses how pain is...

Autonomic Dysfunction in Parkinson's

28 Jun 2022

Contributed by Lukas

In this episode, Dr. Lucy Norcliffe-Kaufmann, an expert in autonomic dysfunction in Parkinson's speaks to the numerous aspects of Parkinson's symptom...

Medical Myths and Parkinson's

21 Jun 2022

Contributed by Lukas

In this episode, we talk to Dr. Benzi Kluger about many of the myths you may have read regarding Parkinson's, the proliferation of medical bullsh*t (B...

Men and Parkinson's

14 Jun 2022

Contributed by Lukas

In this episode, Allan Cole, Danny Bega, Michael S. Fitts, Arun Mather, and Kent Toland discuss: Common concerns and challenges  "Plumbing" issues ...

Women and Parkinson's

07 Jun 2022

Contributed by Lukas

In this episode, Kat Hill, Karen Jaffe, Soania Mathur, and Nabila Dahodwala discuss: Hormonal life stages and Parkinson's (including premenstrual, p...

Neuroplasticity, Exercise, and Parkinson's

31 May 2022

Contributed by Lukas

In this episode, we sat down with Mike Studer to talk about neuroplasticity, exercise, sleep, and how important they are to living well with Parkinson...

The Embarrassing Side of Parkinson's

24 May 2022

Contributed by Lukas

In the following episode, Kat Hill and Kevin Kwok discuss how the symptoms of Parkinson's can be embarrassing, especially the ones that others can't ...

Ending Parkinson's and Living Well Now with Bas Bloem

17 May 2022

Contributed by Lukas

In the following interview, we have a conversation with Dr. Bloem about the book, Ending Parkinson's, about living well with Parkinson's today, about ...

New and Emerging Therapies for Parkinson's in 2022

10 May 2022

Contributed by Lukas

In this episode, Dr. Michael Okun shares the latest in 2022 for new and emerging therapies for Parkinson's. For more information and related resources...

Building Stronger Relationships Through Communication

03 May 2022

Contributed by Lukas

In this episode, panelists Pete Huley, Christa Ingle, Pat Donahoo, and Cidney Donahoo talk about how important effective communication has been in the...

Living Well Today and Detecting Medical Bullshit: Chapter 16 and Appendix of the Every Victory Counts Manual

26 Apr 2022

Contributed by Lukas

Listen to chapter 16, "Living Well Today," and the Appendix, "Detecting Medical Bullshit" of the newest edition of our Every Victory Counts® manual....

Long-Term Care and Financial Planning: Chapter 15 of the Every Victory Counts Manual

19 Apr 2022

Contributed by Lukas

Listen to chapter 15, "Long-Term Care and Financial Planning," of the newest edition of our Every Victory Counts® manual. This chapter will break do...

General Health and Wellness: Chapter 14 of the Every Victory Counts Manual

12 Apr 2022

Contributed by Lukas

Listen to chapter 14, "General Health and Wellness," of the newest edition of our Every Victory Counts® manual. In this chapter you will learn gene...

Social Connections, Relationships, and Community: Chapter 13 of the Every Victory Counts Manual

05 Apr 2022

Contributed by Lukas

Listen to chapter 13, "Social Connections, Relationships, and Community," of the newest edition of our Every Victory Counts® manual. In this chapter...

Emotional Health: Chapter 12 of the Every Victory Counts Manual

29 Mar 2022

Contributed by Lukas

Listen to chapter 12, "Emotional Health," of the newest edition of our Every Victory Counts® manual. This chapter discusses the mind-body connecti...

Nutrition: Chapter 11 of the Every Victory Counts Manual

22 Mar 2022

Contributed by Lukas

Listen to chapter 11, "Nutrition," of the newest edition of our Every Victory Counts® manual. This chapter will teach you what you need to know abo...

Complementary Therapies: Chapter 10 of the Every Victory Counts Manual

15 Mar 2022

Contributed by Lukas

Listen to chapter 10, "Complementary Therapies," of the newest edition of our Every Victory Counts® manual. Living well with Parkinson's requires a ...

Exercise: Chapter 9 of the Every Victory Counts Manual

08 Mar 2022

Contributed by Lukas

Listen to chapter nine, "Exercise," of the newest edition of our Every Victory Counts® manual. This chapter will review the importance of exercise in...

Surgical Therapies: Chapter 8 of the Every Victory Counts Manual

01 Mar 2022

Contributed by Lukas

Listen to chapter eight, "Surgical Therapies," of the newest edition of our Every Victory Counts® manual. As Parkinson's symptoms progress, surgical ...

Medication: Chapter 7 of the Every Victory Counts Manual 6th Edition

22 Feb 2022

Contributed by Lukas

Listen to chapter seven, "Medication," of the newest edition of our Every Victory Counts® manual. Medications for managing your Parkinson's should al...

Autonomic Non-Motor Symptoms of Parkinson's: Chapter 6 of the Every Victory Counts Manual 6th Edition

15 Feb 2022

Contributed by Lukas

Listen to chapter six, "Autonomic Non-Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter looks at the symptom...

Cognitive Non-Motor Symptoms of Parkinson's: Chapter 5 of the Every Victory Counts Manual 6th Edition

08 Feb 2022

Contributed by Lukas

Listen to chapter five, "Cognitive Non-Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter explores the cognit...

Emotional Non-Motor Symptoms of Parkinson's: Chapter 4 of the Every Victory Counts manual 6th ed.

01 Feb 2022

Contributed by Lukas

Listen to chapter four, "Non-Motor Symptoms (Emotional)," of the newest edition of our Every Victory Counts® manual. This chapter dives into the em...

Motor Symptoms: Chapter 3 of the Every Victory Counts manual 6th ed.

25 Jan 2022

Contributed by Lukas

Listen to the third chapter, "Motor Symptoms," of the newest edition of our Every Victory Counts® manual. This chapter explains the common motor ...

Parkinson's 101: Chapter 2 of the Every Victory Counts manual 6th ed.

18 Jan 2022

Contributed by Lukas

Listen to the second chapter, "Parkinson's 101" of the newest edition of our Every Victory Counts® Manual, 6th Edition. This chapter gives a brief ov...

You Have Parkinson's, Now What? Chapter 1 of the Every Victory Counts manual 6th ed.

11 Jan 2022

Contributed by Lukas

This is chapter one of the Every Victory Counts® Manual, 6th edition entitled "You Have Parkinson's, Now What?" Receiving a Parkinson's diagnosis can...

Foreword and Introduction: The Every Victory Counts Manual 6th Edition

04 Jan 2022

Contributed by Lukas

Listen to the introduction of the Every Victory Counts manual 6th edition, featuring a foreword by Bas Bloem, an explanation of how to use this manual...

Introducing the Every Victory Counts Manual 6th Edition

01 Jan 2022

Contributed by Lukas

Listen to hear what's coming next for the Podcast in 2022! This content is made possible by the generous support of listeners like you. If you would l...

A Story of Hope and Inspiration

21 Dec 2021

Contributed by Lukas

Linda Olson, a triple amputee, person with Parkinson's, author, and motivational speaker shares her story of the challenges she's overcome and how she...

Medications For Non-Motor Symptoms

07 Dec 2021

Contributed by Lukas

The non-motor symptoms of Parkinson's are vast and vary greatly from person to person, which means that treatment options are expansive as well.  In ...

Non-Motor Symptoms Part 2: YOPD Council

01 Dec 2021

Contributed by Lukas

In this episode, The YOPD Council discusses depression, anxiety, and how to cope with "dark" days as a follow up to a conversation they had last month...

Formularies

08 Nov 2021

Contributed by Lukas

When a drug is added or removed from a formulary list, your insurance's coverage of the medication may change. In this interview with Derek Arnold, he...

Non-Motor Symptoms

01 Nov 2021

Contributed by Lukas

In this episode, The YOPD Council discusses their experience with the unseen non-motor symptoms of Parkinson's. For show notes, resources, and to sig...

The Latest Advancements in Deep Brain Stimulation for Parkinson's

24 Oct 2021

Contributed by Lukas

Deep brain stimulation (DBS) is a highly effective and reasonably safe treatment for Parkinson's; however, it's also frequently misunderstood. The suc...

Cultural Context and Parkinson's

08 Oct 2021

Contributed by Lukas

There is ample evidence that shows that including exercise, good nutrition, socialization, and more can help people with Parkinson's manage their symp...

Constipation and the Gut

29 Sep 2021

Contributed by Lukas

Movement disorder specialist Cherian Karunapuzha, MD, (better known as "Dr. K") discusses definitions relating to constipation, causes of constipation...

YOPD Council: Regaining Confidence in Young Onset Parkinson's

21 Sep 2021

Contributed by Lukas

During this session, our YOPD Council leaders discuss regaining confidence after losing it in personal, professional, and social settings with the ons...

OFF in Parkinson's

04 Sep 2021

Contributed by Lukas

Neurologist and Georgetown University Educator Yasar Torres-Yaghi explains OFF times in Parkinson's and how to manage them in easy to understand, rela...

Dementia and Later-Onset Parkinson's

23 Aug 2021

Contributed by Lukas

Parkinson's disease dementia (PDD) is a term used for dementia that develops after several or many years of living with Parkinson's. In nearly all cas...

Managing Mood and Anxiety

26 Jul 2021

Contributed by Lukas

Approximately 50-60% of people living with Parkinson's experience varying levels of depression and anxiety. It's important to know the difference betw...

YOPD Council: July 2021

18 Jul 2021

Contributed by Lukas

During this session, our YOPD Council leaders answered YOUR questions. This month's YOPD Council discussed: Finding meaning and purpose in your life ...

Health Disparities and Parkinson's: The LGBTQ+ Community

23 Jun 2021

Contributed by Lukas

Living well with Parkinson's takes support – from our families, communities, healthcare professionals, workplaces, government, and more. When those ...

YOPD Council: Nutrition

23 Jun 2021

Contributed by Lukas

One of the most common questions we're asked is this: "What should I eat now that I've been diagnosed with Parkinson's?" The answer is that there is n...

The Latest and Greatest on Boxing and Parkinson's

21 Jun 2021

Contributed by Lukas

If you've been living with Parkinson's for a while, chances are good that you've either heard about how beneficial boxing is for people with Parkinson...

Living Well with Parkinson's

14 Jun 2021

Contributed by Lukas

 In this genuine, inspiring, and relatable conversation, past professional athletes, Brian Grant and Davis Phinney talk about their experiences as at...

YOPD Women's Council: Relationships, Intimacy, and Parkinson's

08 Jun 2021

Contributed by Lukas

Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of com...

Grit: The Power of Passion and Perseverance

03 Jun 2021

Contributed by Lukas

In Angela Duckworth's book Grit, she examines why some people succeed and others fail, and why talent is hardly a guarantor of success. During this ep...

Structural Racism and Oppression

01 Jun 2021

Contributed by Lukas

Since 2020, the COVID-19 pandemic has exposed the myriad ways that structural racism and oppression affect healthcare and health outcomes, including w...

Sleep, Light, Nature, and Parkinson's

26 May 2021

Contributed by Lukas

The human body was built to work in partnership with the sun. Its light can transform our moods, focus, sleep, energy levels, immune systems, bone den...

Living Alone with Parkinson's

24 May 2021

Contributed by Lukas

Living alone while living with Parkinson's can be a blessing or a curse. Some people love their independence and love being able to direct their days ...

YOPD Women's Council: Diagnosis

10 May 2021

Contributed by Lukas

Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of com...

YOPD Council: Dementia and Young Onset Parkinson's

19 Apr 2021

Contributed by Lukas

Did you know that dementia in people diagnosed with young onset Parkinson's disease (YOPD) looks different than dementia in those diagnosed with later...

YOPD Women's Council: Period, Menopause, HRT, Hormones, and Parkinson's

13 Apr 2021

Contributed by Lukas

Receiving a Parkinson's diagnosis when you're young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of com...

HEALTH DISPARITIES AND PARKINSON'S: UNDERSTANDING THE ROLE OF TRUST

12 Apr 2021

Contributed by Lukas

Racial differences in Parkinson's treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearl...

Living Well with Chronic Pain and Illness

18 Mar 2021

Contributed by Lukas

In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide, author Toni Bernhard addresses a broad range of topics and how the practi...

Living Well Series: Telemedicine and Parkinson's

09 Mar 2021

Contributed by Lukas

Imagine if you had access to your doctor or movement disorder specialist via a computer was just a few clicks away. Or you could have an appointment v...

YOPD Council: Death, Dying, and Parkinson's

09 Mar 2021

Contributed by Lukas

Our YOPD Council leaders discussed: Parkinson's and its effect on their perspectives of death Strategies for managing feelings of loss How to effecti...

YOPD Women's Council: Diagnosis and Symptoms

09 Mar 2021

Contributed by Lukas

Our YOPD Women's Council and special guest Kathleen Reardon discussed: The road to their Parkinson's diagnosis The differences between men and women ...

YOPD Women's Council: Medications and Treatments

09 Mar 2021

Contributed by Lukas

In this panel discussion, our YOPD Women's Council and special guests Dr. Jill Farmer and Vicki Dillon discuss everyone's unique journey with medicati...

Health Disparities and Parkinson's

16 Feb 2021

Contributed by Lukas

In this webinar, a panel of Parkinson's organization leaders serving people across the US discussed common issues that exist within urban communities ...

Speech, Voice, and Parkinson's with John Dean

04 Feb 2021

Contributed by Lukas

Speech and voice impairments are common among people living with Parkinson's. As many as 90% of people with Parkinson's experience difficulties such...

YOPD Council: Careers and Changing Paths

02 Feb 2021

Contributed by Lukas

Receiving a Parkinson's diagnosis when you're young is overwhelming enough as it is. Add the need to exercise daily, attend a variety of medical appoi...

Every Victory Counts - Part 18 - Parkinson's Planning for the Future

26 Nov 2020

Contributed by Lukas

In this final chapter, we share ways to plan for the financial impact of Parkinson's, as well as advice about long-term care planning for people with ...

Every Victory Counts - Part 17 - Parkinson's and the Family

26 Nov 2020

Contributed by Lukas

Learn how to navigate changing relationships within the family after a Parkinson's diagnosis and as it progresses. This content is made possible by th...

Every Victory Counts - Part 16 - Parkinson's Care Partners

26 Nov 2020

Contributed by Lukas

Care partners are essential members of the wellness team for a person with Parkinson's. Learn how to balance the many aspects of being a Parkinson's c...

Every Victory Counts - Part 15 - Parkinson's Surgical Therapies

26 Nov 2020

Contributed by Lukas

Hear in-depth information about the Duopa pump, deep brain stimulation, and more. This content is made possible by the generous support of listeners l...

Every Victory Counts - Part 14 - Parkinson's Connection, Community, and Hope

26 Nov 2020

Contributed by Lukas

Here, we share how helping others helps yourself and how creative arts, spirituality, and hope can bring joy to your life. This content is made possib...

Every Victory Counts - Part 13 - Parkinson's Emotional Health

26 Nov 2020

Contributed by Lukas

Learn how to live your best life by managing common Parkinson's symptoms like depression and anxiety through mindfulness, counseling, and other wellne...

Every Victory Counts - Part 12 - Parkinson's Hospital Stays and ER Visits

26 Nov 2020

Contributed by Lukas

What to know before checking in, what to ask before discharge, tips from individuals with Duopa or Deep Brain Stimulation, and information about medic...

Every Victory Counts - Part 11 - Parkinson's Diet and Nutrition

26 Nov 2020

Contributed by Lukas

Learn how changes to your diet can help manage certain symptoms, how protein can interfere with medications, and more. This content is made possible b...

Every Victory Counts - Part 10 - Living Well with Parkinson's

26 Nov 2020

Contributed by Lukas

Learn tips to live well with Parkinson's in any stage and with any symptoms. Here, we share advice on self-care; preventative screenings; dental, bone...

Every Victory Counts - Part 9 - Parkinson's Medication

26 Nov 2020

Contributed by Lukas

Listen to an overview of Parkinson's medications followed by detailed information about treatments for motor and non-motor symptoms. This content is m...

Every Victory Counts - Part 8 - Parkinson's and Exercise

26 Nov 2020

Contributed by Lukas

Learn why exercise is medicine and the many ways it can help you live your best life with Parkinson's. This content is made possible by the generous s...

Every Victory Counts - Part 7 - Parkinson's Complementary Therapies

26 Nov 2020

Contributed by Lukas

Learn how physical, occupational, speech-language, and creative therapies (and more) can help you live well with Parkinson's. This content is made pos...