The Positive Twist - a podcast about dystonia
Activity Overview
Episode publication activity over the past year
Episodes
The Pros and Cons of DBS Surgery, with DBS Patient Amybel Taylor
20 Feb 2025
Contributed by Lukas
In this episode, we sit down with DBS patient Amybel Taylor as she shares her journey of being diagnosed with dystonia at a very young age. After year...
Mikko Juutinen on Pivoting Your Career and Hobbies With Dystonia
23 Jan 2025
Contributed by Lukas
In this episode we meet Dr Mikko Juutinen, a former practicing dentist who has been diagnosed with dystonia in his hands, legs, calves and back. His d...
Dr. Michael Zech on Dystonia Research and Receiving the David Marsden Award 2023
21 Nov 2024
Contributed by Lukas
In this episode we meet Dr Michel Zech from the Institute of Human Genetics, Technical University of Munich and the Institute of Neurogenomics, Helmho...
Jenny Sixt Shares All About Alexander Technique - A Fascinating Alternative Therapy for Dystonia
17 Oct 2024
Contributed by Lukas
In this episode of The Positive Twist Podcast Jenny Sixt joins us to share about a fascinating therapy called Alexander Technique. "The Alexander...
DBS Treatment and The Importance of Team Effort with Prof. Alfonso Fasano
19 Sep 2024
Contributed by Lukas
In this episode of The Positive Twist Podcast we have an informative and fascinating conversation about dystonia and DBS with Professor Alfonso Fasano...
Beyond the Diagnosis: Living Day-to-Day with Dystonia, Featuring Adam Kalinowski
29 Jan 2024
Contributed by Lukas
This episode is in remembrance of Adam Kalinowski, who passed away just over a year ago. Dystonia Europe honors his profound impact and enduring legac...
Finding Answers in the Patient Community With Merete Avery
08 Nov 2023
Contributed by Lukas
In this episode Merete Avery, a board member from Dystonia Europe shares her dystonia story from first symptoms to diagnosis and finding the right tre...
Jan's Journey With DBS, Featuring DBS Nurse Russell
25 Sep 2023
Contributed by Lukas
In this episode we meet dystonia patient Jan Farnworth and DBS nurse Russell Mills. Jan shares her story of living with dystonia and Russell about ser...
The Road Back to Running - A Dystonia Patient Journey With Jukka Sillanpää
28 Aug 2023
Contributed by Lukas
In this episode of the Positive Twist Podcast we meet Jukka a successful career man and runner who was diagnosed with dystonia in the middle of life. ...
A Dystonia Love Story - What Good Relationships Mean For Coping Well, With Gill and John Ainsley
31 Jul 2023
Contributed by Lukas
In this episode we meet with Gill and John Ainsley who tell the story of how Gill was diagnosed with dystonia in her forties. They were in the middle ...
Finding Success in Career, Love and Life, in Spite of Living With Cervical Dystonia, Featuring Emmanuel Dalmas
24 Mar 2021
Contributed by Lukas
In this episode we get to know Emmanuel Dalmas from France. He tells his very inspiring story of finding success in all aspects of life, in spite of l...
The Importance of Physiotherapy and a Collaborative Approach to Treatment of Dystonia, With Physiotherapist Johanna Blom
24 Feb 2021
Contributed by Lukas
In this episode we meet with Johanna Blom a physiotherapist who has specialized in helping patients with dystonia. She tells us about how she works wi...
Ten Years of The David Marsden Award, an Interview With Recipients Prof. Mark Edwards and Asst. Prof. Niccolo Mencacci
27 Jan 2021
Contributed by Lukas
In this episode of the Positive Twist we meet with Professor Mark Edwards from St George's in London, and Assistant Professor Niccolo Mencacci at...
Living With a Neurological Disorder During The Covid-19 Pandemic, A Talk With Donna Walsh and Marjan Jahanshahi
22 Dec 2020
Contributed by Lukas
In this episode we talk to Donna Walsh from EFNA, the European Federation of Neurological Associations and Professor Emeritus Marjan Jahanshahi from U...
How Dystonia Europe Came to Be, and What a Life's Work in Patient Advocacy Has Brought Alistair Newton
25 Nov 2020
Contributed by Lukas
In today's episode we hear Alistair Newton tell his dystonia story, as well as share with us his important involvement in the dystonia communit...
Making Dystonia Your Friend, with Monika Benson
29 Oct 2020
Contributed by Lukas
In this episode we sit down with Monika Benson, Executive Director of Dystonia Europe. Monika has been living with cervical Dystonia for 19 years, and...
How DBS surgery transformed a life, with Stephen Batey
23 Sep 2020
Contributed by Lukas
Stephen Batey from Newcastle, UK experienced his first symptoms of dystonia as a seven year old. It started in his right foot and eventually spread to...