The Secret Life of Parkinson's
Episodes
#60: Employment advice when living with Parkinson's
15 May 2023
Contributed by Lukas
If you've been diagnosed with Parkinson's and don't know how to talk to your employer or when to talk to your employer, listen to the advi...
#59: The good and bad: Reactions from family & friends to my Parkinson's diagnosis
24 Apr 2023
Contributed by Lukas
Telling family and friends about your diagnosis can be difficult. Did they deny it, accept it, or feel like they could fix it? Communicate, communicat...
#58: A therapists journey with Parkinson's
24 Apr 2023
Contributed by Lukas
Liz Miller is a psychotherapist and shares her Parkinson's diagnosis journey. Acting out dreams, depression, tremors, and finding a PD community.S...
Episode 57: The Ripple Effect: How a Woman's Fundraiser Created a Parkinson's Community
07 Apr 2023
Contributed by Lukas
The Secret Life of Parkinson's: In this episode, you'll hear from Bethany Richards, the Founder of Bike Box Project. A simple idea she had yea...
Episode 56: Parkinson's patient making a difference globally and locally
30 Mar 2023
Contributed by Lukas
I can't say enough about Dr. Soania Mathur. To put it simply, she is extraordinary. She has been living with Parkinson's since she was 28...an...
Episode 55: Answering (and asking for) your Parkinson's questions!
30 Mar 2023
Contributed by Lukas
Brian and I take a few minutes to answer questions that some of you have asked in our comments! We are also asking what questions you may have that we...
Episode 54: MRI guided Focused Ultrasound (FUS) for Parkinson's Disease
30 Mar 2023
Contributed by Lukas
If you haven't heard about MRI-guided Focused Ultrasound (FUS), listen to our guest, Mark, a 60-year-old living with Parkinson's for 14 years,...
Episode 53: Parkinson's and Pickleball...and a different approach to DBS
30 Mar 2023
Contributed by Lukas
In this episode, Marcus Woodhouse joins us to talk about his adventures with pickleball and Parkinson's. It's a sport he picked up 1 year befo...
Episode 52: Everyday with Parkinson's is different
30 Mar 2023
Contributed by Lukas
The Secret Life of Parkinson's: BRIAN IS BACK! In this episode, we spend a little time just catching up on how we are feeling. While we might look...
Episode 51: What is the Parkinson's Progression Marker Initiative (PPMI) and what are we learning?
30 Mar 2023
Contributed by Lukas
In this episode, I met with Jennifer, a Clinical Research Coordinator from the Cleveland Clinic in Ohio, who is working on an MJFF-sponsored research ...
Episode 50: When Parkinson's is in the family
17 Feb 2023
Contributed by Lukas
In this episode, you'll meet one of my first young-onset friends, a young-onset woman that was diagnosed 3 years ago...just about the same age tha...
Episode 49: Experiencing new pain with Parkinson’s
10 Feb 2023
Contributed by Lukas
We don’t always remember how our first symptom felt, but when new symptoms occur, we are reminded…again, and again, and again. We might look like ...
Episode 48: 5 things to bring to your next PD appointment
02 Feb 2023
Contributed by Lukas
Are you bringing all the right things to your PD appointment to make the most out of the time you have? Jessica and her Neurologist, Dr. Andrea Malone...
Episode 47: Parkinson's and your voice
25 Jan 2023
Contributed by Lukas
I had no idea that over 75% of us (people with PD) will develop speech or voice problems at some point along our PD journey. We learned about voice ex...
Episode 46: There are no standards for Parkinson's Disease
20 Jan 2023
Contributed by Lukas
We welcome Dr. Patel, MDS from OhioHealth, back to our podcast. In this episode, we discuss why there is a lack of standardization when it comes to me...
Quick Parkinson’s Highlights - 2022 Year End
02 Jan 2023
Contributed by Lukas
The Secret Life of PD: What a great year! While many people don’t think of Parkinson’s as a blessing, we do. 2022 brought us connections with peop...
Episode 45: People with Parkinson's need to exercise their VOICES!
22 Dec 2022
Contributed by Lukas
Ever wonder what your vocal cords look like? Check out this episode as we talk to Steve, our podcast Producer and person with Parkinson's, along w...
Episode 44: Botulinum toxin (Botox) for Parkinson's symptoms? Really?
15 Dec 2022
Contributed by Lukas
Did you know people living with Parkinson's can receive botulinum toxin (aka Botox) injections to help relieve rigidity and in some cases tremors ...
Episode 43: How to enjoy the Holidays when living with Parkinson's
08 Dec 2022
Contributed by Lukas
The Secret Life of PD: This holiday season, if you are living with PD, give yourself a pass. Be a little selfish. Stick to your routines. The holidays...
Episode 42: People with Parkinson's managing "Freezing of Gait"
01 Dec 2022
Contributed by Lukas
The Secret Life of Parkinson's: Freezing of Gait (FOG) is just another potential symptom that people living with Parkinson's may experience. I...
Episode 41: #MOVEmber4PD with Jimmy Choi
23 Nov 2022
Contributed by Lukas
The Secret Life of Parkinson's welcomes Jimmy Choi! If you have Parkinson's and don't know Jimmy yet, you have to check this out. He has b...
Episode 40: People with Parkinson's running marathons
16 Nov 2022
Contributed by Lukas
The Secret Life of Parkinson's: Over the top. I used to think running a marathon was over the top. Joe Drake has now given over the top a new mean...
Episode 39: Things we wish we knew when we were diagnosed with Parkinson's
03 Nov 2022
Contributed by Lukas
The Secret Life of Parkinson's: What do you wish you knew when you were diagnosed with Parkinson's? Listen to what some people with Parkinson&...
Episode 38: How do people living with Parkinson's view the disease: a detour or a roadblock?
27 Oct 2022
Contributed by Lukas
The Secret Life of Parkinson's: People are scared when they hear they are diagnosed with Parkinson's. What scares us the most are stories we h...
Episode 37: The last steps of the DBS (deep brain stimulation) surgery - getting it turned on!
21 Oct 2022
Contributed by Lukas
The Secret Life of Parkinson's: Check out the last phase of Brian's DBS process - getting the program turned on! His journey with DBS continue...
Episode 36: Can a traumatic life experience accelerate a Parkinson's diagnosis?
13 Oct 2022
Contributed by Lukas
The Secret Life of Parkinson's: In 2020, Carrie Boorse was caring for her 14-year-old daughter who was diagnosed with cancer. During the 6 months ...
Episode 35: Why strength training is critical for Parkinson's patients
29 Sep 2022
Contributed by Lukas
The Secret Life of Parkinson's: Another great episode with Melissa Carlson, fitness instructor, and Owner of PDNextSteps. In this episode, Melissa...
Episode 34: How the Parkinson's Foundation can help people living with Parkinson's today!
22 Sep 2022
Contributed by Lukas
The Secret Life of Parkinson's: Did you ever wonder what the Parkinson's Foundation has to offer people living with Parkinson's and caregi...
Episode 33: Life with Parkinson's...and heart disease...and 2x breast cancer survivor
18 Sep 2022
Contributed by Lukas
The Secret Life of Parkinson's: Ever feel like life is just too hard with Parkinson's? While she may have hard days like the rest of us, Karen...
Episode 32: Light laser therapy for Parkinson's
07 Sep 2022
Contributed by Lukas
The Secret Life of PD: We would like to welcome Dr. Wayne Markman, CEO of Symbyx Biome in Australia. Wayne shares his knowledge of the history of lig...
Episode 31: Deep Brain Stimulation (DBS) surgery - before it's turned on
02 Sep 2022
Contributed by Lukas
The Secret Life of Parkinson's: In this episode, we check in with Brian who has gone through deep brain stimulation surgery: the right side in Jun...
Episode 30: A day in the life of Parkinson's - the play!
25 Aug 2022
Contributed by Lukas
The Secret Life of Parkinson's: in this episode, Matthew Moore (artist, educator, and young-onset PD patient) shares his journey with Parkinson...
Episode 29: How the 5KforJK Parkinson's fundraiser connects the PD community
18 Aug 2022
Contributed by Lukas
In this episode, we welcome the co-founders of the 5KforJK walk for Parkinson's: Carrie Schaefer and Melissa Carlson (Michelle Adams was not avail...
Episode 28: Criteria Parkinson's patients can use to find the best Neurologist for them
11 Aug 2022
Contributed by Lukas
The Secret Life of Parkinson's: This episode was created because of a comment we received from one of our listeners. The question was: "I thou...
SPECIAL EPISODE: 5 Yoga movements Parkinson's patients can do in a chair
05 Aug 2022
Contributed by Lukas
The Secret Life of PD Special Episode: If you listened to our previous episode with Naomi Hoyt, you won't want to miss this one! Naomi, a Yoga ins...
Episode 27: How Yoga can help Parkinson's symptoms
29 Jul 2022
Contributed by Lukas
The Secret Life of Parkinson's: In this episode, we talk with Naomi Hoyt, a Yoga Instructor who specializes in adults over 50 years old. Naomi als...
Episode 26: PD patient's fears and excitement for DBS surgery
22 Jul 2022
Contributed by Lukas
On episode #26 of The Secret Life of Parkinson's, Brian Baker shares more details about his journey with Deep Brain Stimulation (DBS) surgery. He ...
Episode 25: Talking to your kids about Parkinson's
30 Jun 2022
Contributed by Lukas
Joining us today is my son Ben! He's 12 years old and going into 7th grade. Ben and his twin sister, Kate were 9 years old when I was diagnosed, b...
SPECIAL EDITION! DBS feedback from a patient - Brian!
27 Jun 2022
Contributed by Lukas
The Secret Life of PD: special edition!!!! Our very own Brian Baker talks to us 2-days post DBS! See his newly shaved head and hear how his first pro...
Episode 24: When DBS is turned on - update on Roz
23 Jun 2022
Contributed by Lukas
The Secret Life of Parkinson's: We got another update on Roz - now with her DBS connected and "turned on". She is doing great and has wond...
Episode 23: Tips from a Parkinson's Caregiver
17 Jun 2022
Contributed by Lukas
The Secret Life of PD: In this episode, we welcome Ruth Stenberg. Brian and I exercise with her husband Rick, who was diagnosed with Parkinson's a...
Episode 22: Parkinson's and your career
10 Jun 2022
Contributed by Lukas
The Secret Life of PD: It's not easy being at the peak of your career and then learning you have Parkinson's. Brian and I discuss our career p...
Episode 21: How to take Parkinson's Medication
03 Jun 2022
Contributed by Lukas
The Secret Life of PD: Many people don't realize HOW to take their Parkinson's medication...or I should say, how to start. First, don't ju...
Episode 20: Common signs of apathy and depression in Parkinson's patients
31 May 2022
Contributed by Lukas
The Secret Life of PD: While Brian and I may be cheerful today, there were and still are those "darker days" with Parkinson's. Over 50% of...
Episode 19: Why Bigger is Better with Parkinson's exercises
19 May 2022
Contributed by Lukas
The Secret Life of PD: In this episode, we talk about how "size matters" with Parkinson's. Melissa Carlson, owner of PDNextSteps share wit...
Episode 18: Things we fear with a Parkinson’s diagnosis
13 May 2022
Contributed by Lukas
The Secret Life of PD: Today Brian and I discuss fears we had when we were initially diagnosed with young-onset Parkinson's. Things like: will my ...
SPECIAL EPISODE: DBS Patient Update - Roz Parish
05 May 2022
Contributed by Lukas
The Secret Life of PD: In this SPECIAL episode, I get an update from Roz, (a Parkinson's friend) who shared her pre-DBS story in Episode #7. Now, ...
Episode 17: Steps Parkinson's patients can take when experiencing freezing of gait
29 Apr 2022
Contributed by Lukas
The Secret Life of PD: In this episode, Joel Sivillo, a Physical Therapist, walks us through various tips and tricks that Parkinson's patients can...
Episode 16: Steve's DBS Party Trick
21 Apr 2022
Contributed by Lukas
In this episode, we welcome Steve Brandenburg back to talk about, and show us, his entire DBS (Deep Brain Stimulation) journey. While we may joke and ...
Episode 15: "Is There a Doctor in the house"
15 Apr 2022
Contributed by Lukas
In this episode, Brian and I have the opportunity to interview Dr. Patel, a Movement Disorder Specialist at OhioHealth here in Columbus, OH. What a gr...
Episode 14: "Live from New York!"
10 Apr 2022
Contributed by Lukas
In this episode, Melissa Carlson and I share what we learned at the Team Fox MVP Celebrations in New York City. Team Fox is the grassroots community f...
Episode 13: Steve's Story, "Pass the Kool Aid"
01 Apr 2022
Contributed by Lukas
In this episode, I share Steve Brandenburg's PD story, "Pass the Kool-Aid". Steve is a PD patient who has undergone DBS surgery (which we ...
Episode 12: The Journey of Young Onset
24 Mar 2022
Contributed by Lukas
In this episode, our special guest, Samantha Anderson, shares her diagnosis journey. As a 36-year-old Young-onset Parkinson's patient, Samantha ha...
Episode 11: Business Owners and Parkinson's
17 Mar 2022
Contributed by Lukas
In this episode, our special guest, Dave Kolbe, a local Construction business owner, talks about his journey with Parkinson's (and a cancer diagno...
Episode 10: Be Sad or be Stoic
10 Mar 2022
Contributed by Lukas
In this episode, our special guest, retired Major General Denny Laich, shares how the stoic philosophy helped in dealing with his recent Parkinson'...
Episode 9: Your Coming out Party
28 Feb 2022
Contributed by Lukas
In this episode, we share our personal stories of how we each talked to family, friends and co-workers. Each in our own way - as we say in our exercis...
Episode 8: Tricks of the Trade
25 Feb 2022
Contributed by Lukas
In this episode, we have a show and tell! As our disease progresses, our ability to do everyday tasks becomes more difficult. Brian shares a few of hi...
Episode 7: Prepping for DBS
21 Feb 2022
Contributed by Lukas
In this episode, we are joined by Roz Parish, a Parkinson's friend, who is preparing to undergo DBS surgery (Deep Brain Stimulation) two weeks fro...
Episode 6: "Jessie, why so many squats?"
19 Feb 2022
Contributed by Lukas
In this episode, our special guest, Melissa Carlson, owner of the gym, PDNexSteps, talks about the importance of adding exercise to our daily routine....
Episode 5: I want to cut off my toe!
15 Feb 2022
Contributed by Lukas
In this episode, we discuss how rigidity and dystonia in your feet affect our everyday lives. From how it feels to drive a car to not being able to we...
Episode 4: For the Love of Naps
11 Feb 2022
Contributed by Lukas
In this episode, we discuss the importance of sleep. Getting quality sleep is important for everyone - regardless of a diagnosis. For those with Parki...
Episode 3: Did you see that?
08 Feb 2022
Contributed by Lukas
In this episode, we discuss another side of Parkinson's that is not visible to others - hallucinations. PD patients who experience hallucinations ...
Episode 2: Joyless
02 Feb 2022
Contributed by Lukas
In this episode, we share our stories about feeling "Emotionless, Empty, and Joyless", even though we know we are happy with family, friends, ...
Episode 1: We Have Parkinson's
01 Feb 2022
Contributed by Lukas
This is our first podcast in "The Secret Life of PD". In this episode, we discuss symptoms leading up to our diagnosis, how we felt, and what ...