The Voices of MED13L
Episodes
Voices of MED13L - June 2026 Research Update
15 Jun 2026
Contributed by Lukas
In this special research update episode of Voices of MED13L, Rowan Dias opens with reflections from the World Orphan Drug Congress and the MED13L Foun...
May is MED13L Awareness Month
11 May 2026
Contributed by Lukas
An Honest Look at MED13L, Our Community, and the Foundation Behind ItSeason X | MED13L Awareness Month Special | May 2026This Awareness Month, host Va...
Growing Up With MED13L: Life at 14
16 Apr 2026
Contributed by Lukas
Growing Up with MED13L: Life at 14In this episode of Voices of MED13L, we continue our Growing Up with MED13L series with an honest look at the teenag...
Growing Up With MED13L: Life at 16
13 Mar 2026
Contributed by Lukas
In this episode of Voices of MED13L, we begin our series Growing Up with MED13L with a powerful, in-depth look at the teenage years. Host Vanessa Dias...
Why the MIND Study Matters: Building Clinical Trial Readiness for MED13L with Abigail Svedeen
03 Mar 2026
Contributed by Lukas
Why the MIND Study Matters: Building Clinical Trial Readiness for MED13LIn this powerful and informative episode of Voices of MED13L, Vanessa sits dow...
Growing Up With MED13L: Life at 11
12 Feb 2026
Contributed by Lukas
Growing Up with MED13L: Life at 11 (with Anna Fracalossi)Welcome back to The Voices of MED13L, the official podcast of the MED13L Foundation. I’m In...
Growing Up With MED13L: Life at 12
14 Jan 2026
Contributed by Lukas
Growing Up With MED13L: Life at Age 12In this episode of The Voices of MED13L, we launch our new Growing Up With MED13L series with a powerful and hon...
Intro to Growing Up With MED13L
02 Jan 2026
Contributed by Lukas
Welcome to The Voices of MED13L, the official podcast of the MED13L Foundation.In this special trailer, host Vanessa Dias introduces Growing Up with M...
Citizen Health: 13 Minutes With MED13L
15 Dec 2025
Contributed by Lukas
Mini Episode: 13 Minutes with MED13LIn this first-ever 13 Minutes with MED13L mini-episode, Foundation Chair Katie Boychuck walks families step-by-ste...
Introducing Phil Buta & The Importance of Surveys
01 Dec 2025
Contributed by Lukas
Episode 2: Introducing Phil Buta & Why Surveys MatterIn this episode, we welcome Phil Buta, the newest leadership voice at The MED13L Foundation. ...
Community Checklist: Make Sure You are Making a Difference in MED13L
22 Oct 2025
Contributed by Lukas
Episode Highlights1️⃣ Seek Support from Specialists – Learn which specialists to see: cardiologist, neurologist, developmental pediatrician, ort...
The Voices of MED13L
06 Oct 2025
Contributed by Lukas
Episode 1: Welcome & Where We’re HeadedHosted by Vanessa Dias & Katie BoychuckIn this trailer episode, we introduce the hosts and The MED13L...
The Voices of MED13L Coming Soon!
24 Aug 2025
Contributed by Lukas
Officially Launching in October 2025!Welcome to The Voices of MED13LThe Voices of MED13L Podcast is brought to you by The MED13L Foundation and co-hos...