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The Voices of MED13L

Science

Activity Overview

Episode publication activity over the past year

Episodes

Growing Up With MED13L: Life at 16

13 Mar 2026

Contributed by Lukas

In this episode of Voices of MED13L, we begin our series Growing Up with MED13L with a powerful, in-depth look at the teenage years. Host Vanessa Dias...

Why the MIND Study Matters: Building Clinical Trial Readiness for MED13L with Abigail Svedeen

03 Mar 2026

Contributed by Lukas

Why the MIND Study Matters: Building Clinical Trial Readiness for MED13LIn this powerful and informative episode of Voices of MED13L, Vanessa sits dow...

Growing Up With MED13L: Life at 11

12 Feb 2026

Contributed by Lukas

Growing Up with MED13L: Life at 11 (with Anna Fracalossi)Welcome back to The Voices of MED13L, the official podcast of the MED13L Foundation. I’m In...

Growing Up With MED13L: Life at 12

14 Jan 2026

Contributed by Lukas

Growing Up With MED13L: Life at Age 12In this episode of The Voices of MED13L, we launch our new Growing Up With MED13L series with a powerful and hon...

Intro to Growing Up With MED13L

02 Jan 2026

Contributed by Lukas

Welcome to The Voices of MED13L, the official podcast of the MED13L Foundation.In this special trailer, host Vanessa Dias introduces Growing Up with M...

Citizen Health: 13 Minutes With MED13L

15 Dec 2025

Contributed by Lukas

Mini Episode: 13 Minutes with MED13LIn this first-ever 13 Minutes with MED13L mini-episode, Foundation Chair Katie Boychuck walks families step-by-ste...

Introducing Phil Buta & The Importance of Surveys

01 Dec 2025

Contributed by Lukas

Episode 2: Introducing Phil Buta & Why Surveys MatterIn this episode, we welcome Phil Buta, the newest leadership voice at The MED13L Foundation. ...

Community Checklist: Make Sure You are Making a Difference in MED13L

22 Oct 2025

Contributed by Lukas

Episode Highlights1️⃣ Seek Support from Specialists – Learn which specialists to see: cardiologist, neurologist, developmental pediatrician, ort...

The Voices of MED13L

06 Oct 2025

Contributed by Lukas

Episode 1: Welcome & Where We’re HeadedHosted by Vanessa Dias & Katie BoychuckIn this trailer episode, we introduce the hosts and The MED13L...

The Voices of MED13L Coming Soon!

24 Aug 2025

Contributed by Lukas

Officially Launching in October 2025!Welcome to The Voices of MED13LThe Voices of MED13L Podcast is brought to you by The MED13L Foundation and co-hos...