Description
许多罕见病的关爱组织、病友群体常是由患者本人或家属发起成立，因为同病相怜，对于有类似经历的“患难者”能够给予更准确、充分的帮扶与关爱。本期为您请到北京协和医院神经科副主任戴毅教授、华大基因研发总监孙隽博士、北京杜氏肌营养不良关爱中心执行主任姚颜锁，讲述DMD患者家属的心路历程及DMD关爱组织的成长过程。
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