Description
最近，一条关于“灵魂砍价”的新闻引起了大家的高度关注，这样一个治疗SMA的高价药物，从七十万降到三万三最终被纳入医保，足以看出国家为了罕见病群体同样付出了太多努力。什么是SMA呢？这种疾病如何预防和治疗呢？本期节目邀请到了云南省第一人民医院遗传诊断中心主任朱宝生教授和华大基因妇幼健康事业部研发技术总监孙隽博士共同为大家解答。
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