故事FM ❜ 第 331 期 在收听今天的节目前,我们需要提醒一下大家,本期讲述者受到一种罕见疾病的影响,说话略有些吃力。这位讲述者的名字叫李虹,今天 47 岁,是一名「进行性肌营养不良症」患者。「进行性肌营养不良症」是一种罕见的遗传性疾病,随着年龄增长,患者的肌肉会逐渐萎缩,行动能力渐渐丧失,就像是被冰渐渐地冻起来一样,所以医学界把这些患者称为「渐冰人」。 /Staff/讲述者 | 李虹主播 | @寇爱哲制作人 | 梁珂声音设计 | 孙泽雨文字 | 梁珂运营 | 翌辰 /BGM List/01.Loved Ones02.Mark Isham – Crash03.Arcade Fire – Owl04.Pink Floyd – Goodbye Blue Sky05.LA3 – moby06.Various Artists – Memory Of A Music Box
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