故事FM ❜ 第 557 期徐伟的孩子颢洋患了一种发生概率仅在5万到25万分之一的遗传性铜缺乏罕见病——Menkes综合症。为了延续孩子的生命，高中学历的徐伟从零开始了解Menkes综合症，甚至铤而走险开始了自己制备“药物”的过程。/Staff/讲述者 | 颢洋爸爸主播 | @寇爱哲制作人 | 佳文声音设计 | 孙泽雨运营 | Yoyo 冬冬特别感谢 | 八点健闻记者陈鑫/BGM List/01.Story FM Main Theme – 彭寒 （片头曲）02.going under- 彭寒 （确诊）03.Wood Writing Session （制作）04.X的组成关系- 桑泉（片尾曲）用你的声音，讲述你的故事。故事FM 是一档亲历者自述的声音节目，每周一三五更新。在以下渠道均可收听我们的节目：苹果播客 | 网易云音乐 | 喜马拉雅蜻蜓FM | 荔枝FM | 懒人听书小宇宙 | QQ音乐 | 酷狗音乐 | 酷我音乐Spotify | Google Podcast
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