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趙小僑很有事

張旭鎧/罕見疾病雷特氏症_認識篇

06 Mar 2024

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最新的《趙小僑很有事》節目內容, 都在這裡喔!⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠https://ilisten.page.link/nqrT⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ 💋 合作請洽節目製作人 藍鈞儀 ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠[email protected]⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ --- 本集節目重點: *阿鎧爸爸家中有個蕾蕾女兒的心路歷程。 *什麼是雷特氏症?有什麼樣的症狀? *這個疾病算是罕見疾病嗎?發病比例高不高?男生女生發病的比例有沒有差別?小朋友的壽命多長? 其他相關資訊可以參考:社團法人臺灣雷特氏症病友關懷協會

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