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Anne Rabbitte

👤 Speaker
120 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Like as part of a programme for government, we have said early access programmes, please give us access to the early access on this drug.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Yes, absolutely.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And I would turn around that on its head and I would flip it on the top of a hairpin and say the cost of care for these people who continue to deteriorate, the cost of care if they have to go into residential care is far above that.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And Craig Cody, when he was with our parliamentary party, spoke about it.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

He spoke about the lived experience.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

He knows the cost of care for his wife who is suffering and who is dying.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

who is in residential care in Bloomfield.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

He knows the cost of care.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

As a former minister, I know the cost of care.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And I know that the cost of care, absolutely, if we do an early intervention, an early access programme, we can prevent it getting to that stage, Clare.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And actually it'll outweigh it because people can live a more wholesome full life.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

They can participate in the workforce.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And at the end of the day, we prevent people from accessing residential care.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

So there's a whole campaign around wasted lives.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Like we've seen young people under 65 going into nursing homes.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

We can prevent this by the access, the early access to this drug.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Absolutely.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

But I go back again to innovation and science.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Science and innovation is moving all of the time.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

So if it can pause or slow down the progression of that disease, over time, science will come along with another solution as well, Clare.