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Anne Rabbitte

👤 Speaker
120 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

To be honest with you, we need to start with what we have at the moment.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

We know that we have a drug that will slow it down by a minimum of 55%.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

So I talk about Aoife Quinn, like Aoife at the moment is mobile.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Aoife at the moment has got her speech.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

If Aoife could get access to this drug at this moment in time or as soon as possible, she would prevent herself accessing a wheelchair.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

She will actually prevent her speech deteriorating.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

She will hold on to the functions of her hands.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Absolutely.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And that's the whole point of this whole campaign.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And I have to compliment and say for all of them that have told their personal stories, and they are very personal stories to every single one of them, they have brought it home to roost with me as a public representative, but with the community, as you say, over 600,000 people have looked at your views.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Actually, imagine that Craig's son not being able to ask for a

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And I think that resonates with any of us that are parents, that any grandparents to see your son, your daughter, your grandson, your granddaughter actually deteriorate knowing that this drug is made below in Cork.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Absolutely.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

But I feel privileged to be part of a government party as well, Clare, in the sense that we have two things put into the programme for government.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

It's the early access and it's the review of the reimbursement.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I know myself the work that the Taoiseach and the Minister for Health did in relation to GFINISTAT and in actual getting the further information.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

And both of them met with their counterparts when they were in Italy to ensure that the company put in further information, that they did the follow up, not just

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

What they did last September when they put in sort of like a scoping exercise about the drug.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

They actually went and insured.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Would you get in your application, lads?