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Anne Rabbitte

👤 Speaker
120 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Would you give the further information?

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

They pressed their counterparts.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

So I feel privileged I'm in a government that I'm able to have the ears off.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

That will continue.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

But am I frustrated today on a Monday not knowing what's happening on a Wednesday?

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I'm as frustrated.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I really am.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

Absolutely.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

But I also think that that whole process that Professor Michael Barry has to stand over and review, I think it has to be totally reformed completely in its entirety.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I think we're out of kilter.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

with how we have, like we set 180 days and I know that the Minister for Health is trying, she has put them all around the table trying to work to that 180 days.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

But this drug, Skyclarus, is 510 days in the cooking pot.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

But if we wait another 100 days to September...

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

That's 600 days.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

That's 202 years.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

These people, it's the difference between walking and sitting in the chair.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

It's the difference between hearing and not hearing.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

It's the difference between having a voice and losing your voice.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

So I suppose privileged, yes, to be a governor within government because I have to advocate for the people who don't have that voice, Clare.

The Claire Byrne Show
The pressure is on for life-changing medicine for Friedrich’s Ataxia to be available.

I couldn't agree more with you and we should be.