Ciarán

And listen, we all accept that there are processes and there have to be processes and it can't necessarily be a free-for-all.

But what has it been like for the last two years watching the progress of the condition for Paudie knowing the drug is out there?

So you would just prefer that, you know, that I don't know, like on a daily basis, that it would be higher up on the news agenda, that there would be there would be evidence that it was taken more seriously as an issue.

Do you allow yourself to think about what it's going to be like in 12 months time?

Lots of people getting in touch, you know, about this issue.

Of course, you know, you always think the worst, don't you?

0874848888 is the WhatsApp number.

Des is on the line.

Des, do you think we should be acknowledging what's causing, the underlying cause of weather events like this more often?

Yeah.

That there should be like a version of, you know, planning and critical infrastructure, that there should be kind of a separate track for drugs like this compared to a weight loss drug.

I should say, just because you brought up, we did get onto the HSE as well for their view on this and that they say that the HSE is committed to providing access to as many medicines as possible.

Decisions on which medicines are reimbursed by the taxpayer are made on objective scientific and economic grounds.

They go through a timeline of their engagement with Biogen on this drug.

They say the decision-making authority is the HSE.

In the HSE is the senior management team

And they decide based on all the demands that it's faced with across all services, whether it can fund a new medicine or a new use of an existing medicine from the resources that have been provided to us in line with the Health Act.

And then from the Department of Health point of view on terms of resources.

You know, they talk about the money that's been committed in the past.

I don't think anybody is suggesting that we ever had stable weather and that climate change is now causing unstable weather.