Claire Byrne

But she is campaigning relentlessly to get her hands on this drug and for everyone in your situation to get their hands on this drug.

Now, the National Centre for Pharmaco-Economics have looked at it and they have said that it's just too expensive for the benefits that it brings.

And I know that you will not agree with that.

And that's what your whole fight is for, is to get this medicine for your son.

Yeah.

What was the response at the Fianna Fáil parliamentary meeting last week when you said all of this?

There's a sense like and I've seen this happen in the past when conversations occur around expensive drugs.

There is a sense that all the pressure comes on the government, but that the drug companies are really pushing here when it comes to Ireland because we're sort of the end of the supply chain.

You know, you mentioned all the countries in Europe who have bought it.

that they really seem to push Ireland for maximum price on this money.

I mean, would you be encouraging the drug company that make this drug, Skyclarus, to meet the government, you know, to reduce their price so that it is affordable or reasonable or a commensurate price to what they're charging in other jurisdictions?

Wouldn't that be the most sensible thing, that there's an EU price negotiated?

Of course.

And it's just the urgency.

I mean, as you describe it there, you know, the exhaustion that Paddy is facing, the fact that he's not playing, he's not playing sport anymore, is he?

Yes.

No, you're right.

And that's the one, the standout one for me in terms of covering it was that drug for cystic fibrosis.

You want to sort of speed up all of that process, you know, that happened and get to the point where you can get it as soon as possible for podies.

I know, but it does.