Claire Byrne
π€ SpeakerAppearances Over Time
Podcast Appearances
I mean, what we hear from other jurisdictions is it improves quality of life, doesn't it?
Oh, just I can imagine the frustration, you know, knowing that it's there, that you just have to get your hands on it.
So the next step for you now is a meeting with MicheΓ‘l Martin, is it?
Is that happening this week?
Did Potty start his junior cert this week?
I'm sure he is, like all of the rest of him, but of the people in his class.
He's able, though, to go and sit in the exams and get through them, you hope?
Gosh, it's progressing quickly, Craig, isn't it?
It's also such a big deal for you to, you know, to speak like this about your family.
These are really private things.
But you feel you've no choice?
If this drug were approved today, let's say, imagine that happened, what's the timeline like?
Do you know, Craig, from approval to you getting it for party?
No, but I mean, getting access to the drug.
So let's just imagine for a second that a decision was made today.
The decision was, let's approve Skyclarus for Friedreich's ataxia patients in Ireland.
How quickly does that mean you could get your hands on it for Poddy?
Like, would there be a massive delay between approval and him getting it?
Anyway, you want to find out because, you know, you want this approved.