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Claire Byrne

πŸ‘€ Speaker
5971 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
A father plea for drug for rare disease

I mean, what we hear from other jurisdictions is it improves quality of life, doesn't it?

The Claire Byrne Show
A father plea for drug for rare disease

Oh, just I can imagine the frustration, you know, knowing that it's there, that you just have to get your hands on it.

The Claire Byrne Show
A father plea for drug for rare disease

So the next step for you now is a meeting with MicheΓ‘l Martin, is it?

The Claire Byrne Show
A father plea for drug for rare disease

Is that happening this week?

The Claire Byrne Show
A father plea for drug for rare disease

Did Potty start his junior cert this week?

The Claire Byrne Show
A father plea for drug for rare disease

I'm sure he is, like all of the rest of him, but of the people in his class.

The Claire Byrne Show
A father plea for drug for rare disease

He's able, though, to go and sit in the exams and get through them, you hope?

The Claire Byrne Show
A father plea for drug for rare disease

Gosh, it's progressing quickly, Craig, isn't it?

The Claire Byrne Show
A father plea for drug for rare disease

It's also such a big deal for you to, you know, to speak like this about your family.

The Claire Byrne Show
A father plea for drug for rare disease

These are really private things.

The Claire Byrne Show
A father plea for drug for rare disease

But you feel you've no choice?

The Claire Byrne Show
A father plea for drug for rare disease

If this drug were approved today, let's say, imagine that happened, what's the timeline like?

The Claire Byrne Show
A father plea for drug for rare disease

Do you know, Craig, from approval to you getting it for party?

The Claire Byrne Show
A father plea for drug for rare disease

No, but I mean, getting access to the drug.

The Claire Byrne Show
A father plea for drug for rare disease

So let's just imagine for a second that a decision was made today.

The Claire Byrne Show
A father plea for drug for rare disease

The decision was, let's approve Skyclarus for Friedreich's ataxia patients in Ireland.

The Claire Byrne Show
A father plea for drug for rare disease

How quickly does that mean you could get your hands on it for Poddy?

The Claire Byrne Show
A father plea for drug for rare disease

Like, would there be a massive delay between approval and him getting it?

The Claire Byrne Show
A father plea for drug for rare disease

Okay.

The Claire Byrne Show
A father plea for drug for rare disease

Anyway, you want to find out because, you know, you want this approved.