Corinne Vien

The picture appears to have been taken via Snapchat. Ellen sits over Jake, a kazoo in her mouth and black and gold feather boa around her neck. Jake lays in the bed, the feeding tube in his throat, and a Snapchat filter of a New Year's hat with fireworks and sparkles dances around his head.

The picture appears to have been taken via Snapchat. Ellen sits over Jake, a kazoo in her mouth and black and gold feather boa around her neck. Jake lays in the bed, the feeding tube in his throat, and a Snapchat filter of a New Year's hat with fireworks and sparkles dances around his head.

Jake had a positional eye gaze at this time and he was not able to control where he looked, but the camera is placed just so, so that Jake is looking directly into the camera. Not long after this memory, Jake was put on hospice, cared for at his father Derone's home with Derone and Ellen as his primary caretakers.

Jake had a positional eye gaze at this time and he was not able to control where he looked, but the camera is placed just so, so that Jake is looking directly into the camera. Not long after this memory, Jake was put on hospice, cared for at his father Derone's home with Derone and Ellen as his primary caretakers.

Jake's move to hospice would result in Derone and Ellen spending more and more time together. Derone and Ellen began to bicker and fight, and one of the issues that arose time and time again was about the house. Derone had initially told Jake and Ellen that they could pay rent, and those rent payments would work towards eventually buying the home from him.

Jake's move to hospice would result in Derone and Ellen spending more and more time together. Derone and Ellen began to bicker and fight, and one of the issues that arose time and time again was about the house. Derone had initially told Jake and Ellen that they could pay rent, and those rent payments would work towards eventually buying the home from him.

A few payments had been made, and Derone remembers a lot of discussions around this and other items that Derone owned. And this sort of division between what Derone owned and what Ellen had the right to, it became this sort of contentious and regular argument.

A few payments had been made, and Derone remembers a lot of discussions around this and other items that Derone owned. And this sort of division between what Derone owned and what Ellen had the right to, it became this sort of contentious and regular argument.

Derone tells me about Jake's first storming episode while at home on hospice.

Derone tells me about Jake's first storming episode while at home on hospice.

That did not go over well, and other people were brought in to help mediate.

That did not go over well, and other people were brought in to help mediate.

Eventually, Derone would not be allowed to see Jake, and even if he tried to sneak in, it would have been nearly impossible to not get caught.

Eventually, Derone would not be allowed to see Jake, and even if he tried to sneak in, it would have been nearly impossible to not get caught.

When Blink first launched, we held a launch party in Boston, inviting many of Jake's friends, family, professionals, nurses, and doctors who've helped him along the way. One of the nurses here shared with me how spooky and weird it was to be watched through these devices. And I will say, this story was told by many as an example of the need for control.

When Blink first launched, we held a launch party in Boston, inviting many of Jake's friends, family, professionals, nurses, and doctors who've helped him along the way. One of the nurses here shared with me how spooky and weird it was to be watched through these devices. And I will say, this story was told by many as an example of the need for control.

And when I first heard the story a few years ago, I thought it was totally crazy. But after a hospital stay with my infant where I had my husband bring in some extra monitoring devices for my own peace of mind, I don't think it's crazy. But perhaps all of you listening think I'm also crazy for that too.

And when I first heard the story a few years ago, I thought it was totally crazy. But after a hospital stay with my infant where I had my husband bring in some extra monitoring devices for my own peace of mind, I don't think it's crazy. But perhaps all of you listening think I'm also crazy for that too.

Terone recalls a very uncomfortable moment.

Terone recalls a very uncomfortable moment.