Corinne Vien
👤 SpeakerAppearances Over Time
Podcast Appearances
Like, I'm, like, talking like this. It's very hard for me to The day after Jake's 29th birthday, he was admitted to the hospital once again, this time to get a tracheostomy to help him breathe.
Like, I'm, like, talking like this. It's very hard for me to The day after Jake's 29th birthday, he was admitted to the hospital once again, this time to get a tracheostomy to help him breathe.
There had been some debate and some reservations within Jake's family as to whether they should go forward with this surgery, the tracheostomy, but with the threat of Jake potentially not being able to breathe, his wife, who was his healthcare proxy, opted to have it put in. Only three weeks had passed since Jake first met Dr. Venna.
There had been some debate and some reservations within Jake's family as to whether they should go forward with this surgery, the tracheostomy, but with the threat of Jake potentially not being able to breathe, his wife, who was his healthcare proxy, opted to have it put in. Only three weeks had passed since Jake first met Dr. Venna.
And at this point, Jake was no longer able to communicate verbally at all. Things were moving fast. Do you remember the moment that you could no longer speak?
And at this point, Jake was no longer able to communicate verbally at all. Things were moving fast. Do you remember the moment that you could no longer speak?
So your last words spoken were, I love you. Yeah. Now, in November of 2017, just six months after his diagnosis, Jake became completely paralyzed. Slipping into a coma would be right around the corner, should this disease progress like it had in every other known medical case. And once that happened, he died. Unless, of course, Dr. Venna was right.
So your last words spoken were, I love you. Yeah. Now, in November of 2017, just six months after his diagnosis, Jake became completely paralyzed. Slipping into a coma would be right around the corner, should this disease progress like it had in every other known medical case. And once that happened, he died. Unless, of course, Dr. Venna was right.
And not to spoil the story, but you are hearing Jake tell his own story. But this story isn't just about the miraculous recovery from a disease that was thought to be incurable. There's a lot more to it. And the cause of Jake's disease may not be what the doctors thought it was. Did Jake do this to himself? Or did someone else? Now paralyzed, Jake had a positional eye gaze.
And not to spoil the story, but you are hearing Jake tell his own story. But this story isn't just about the miraculous recovery from a disease that was thought to be incurable. There's a lot more to it. And the cause of Jake's disease may not be what the doctors thought it was. Did Jake do this to himself? Or did someone else? Now paralyzed, Jake had a positional eye gaze.
His eyes moved involuntarily. Most of the time, he was looking up at the ceiling, and Jake had been moved from his home and transferred to Spalding Rehabilitation Hospital, which was the hospital that Jake's wife had first set her eyes on shortly after they learned of his diagnosis. The clock in Jake's hospital room was out of his sightline, so he rarely knew what time it was.
His eyes moved involuntarily. Most of the time, he was looking up at the ceiling, and Jake had been moved from his home and transferred to Spalding Rehabilitation Hospital, which was the hospital that Jake's wife had first set her eyes on shortly after they learned of his diagnosis. The clock in Jake's hospital room was out of his sightline, so he rarely knew what time it was.
When nurses came in to turn him, he would take the opportunity to look around and see other areas of the room, try to get a better sense of his surroundings. And throughout this time period, Jake was transferred back and forth to various hospitals, to various care facilities, and he was rarely told where he was going.
When nurses came in to turn him, he would take the opportunity to look around and see other areas of the room, try to get a better sense of his surroundings. And throughout this time period, Jake was transferred back and forth to various hospitals, to various care facilities, and he was rarely told where he was going.
Sometimes a hospital monitor or a branded calendar would enter his sightline and he would be able to read where he was, which hospital, which department. The reason Jake was transferred so frequently was because he began to experience what is called autonomic storms.
Sometimes a hospital monitor or a branded calendar would enter his sightline and he would be able to read where he was, which hospital, which department. The reason Jake was transferred so frequently was because he began to experience what is called autonomic storms.
Do you know how many times this happened to you?
Do you know how many times this happened to you?