Corinne Vien
👤 SpeakerAppearances Over Time
Podcast Appearances
I'm picturing when they save the whales and they like transport whales back into.
I'm picturing when they save the whales and they like transport whales back into.
Did the scans show that you were brain dead?
Did the scans show that you were brain dead?
Locked-in syndrome is a rare neurological disorder characterized by paralysis of voluntary muscles. People with locked-in syndrome remain fully conscious, alert, and have their usual cognitive abilities, but they're trapped in this pseudocoma.
Locked-in syndrome is a rare neurological disorder characterized by paralysis of voluntary muscles. People with locked-in syndrome remain fully conscious, alert, and have their usual cognitive abilities, but they're trapped in this pseudocoma.
In many cases, people with locked-in syndrome are still able to control their vertical eye movement, so their eyes moving up and down, and they can communicate using assistive technologies.
In many cases, people with locked-in syndrome are still able to control their vertical eye movement, so their eyes moving up and down, and they can communicate using assistive technologies.
There is a form of locked-in syndrome where the body experiences complete paralysis, including the loss of eye movement, but healthcare providers can tell that a person still has cognitive function by examining cortical function with an EEG, basically measuring a person's brainwaves to see if they're still thinking and reasoning and still aware of what's going on.
There is a form of locked-in syndrome where the body experiences complete paralysis, including the loss of eye movement, but healthcare providers can tell that a person still has cognitive function by examining cortical function with an EEG, basically measuring a person's brainwaves to see if they're still thinking and reasoning and still aware of what's going on.
But Jake's EEG did not suggest that he had any sort of functioning cognition whatsoever, and nobody knew that he was still aware. Death was on the horizon, and it was looking like he'd die alone, isolated, stuck in his own mind, in a barely functioning body, just existing in the background of others' lives.
But Jake's EEG did not suggest that he had any sort of functioning cognition whatsoever, and nobody knew that he was still aware. Death was on the horizon, and it was looking like he'd die alone, isolated, stuck in his own mind, in a barely functioning body, just existing in the background of others' lives.
In January 2018, Jake was transferred once more back home, this time to receive hospice care. At home, Ellen managed his care, she managed their home, who had access to Jake. And so the visitor list may have started getting smaller and smaller after his Uncle Michael's visit to the hospital with that bottle of vodka, but now the list was extremely small.
In January 2018, Jake was transferred once more back home, this time to receive hospice care. At home, Ellen managed his care, she managed their home, who had access to Jake. And so the visitor list may have started getting smaller and smaller after his Uncle Michael's visit to the hospital with that bottle of vodka, but now the list was extremely small.
Jake recalls a few painful memories while he was in hospice, being cared for at home by his wife and his dad, and occasionally a few other relatives who came and tried to help.
Jake recalls a few painful memories while he was in hospice, being cared for at home by his wife and his dad, and occasionally a few other relatives who came and tried to help.