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Craig Coady

๐Ÿ‘ค Speaker
178 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
A father plea for drug for rare disease

Went to the shop after to get him a couple of treats.

The Claire Byrne Show
A father plea for drug for rare disease

Went home.

The Claire Byrne Show
A father plea for drug for rare disease

And he had his favorite fish and chips.

The Claire Byrne Show
A father plea for drug for rare disease

We watched the match together.

The Claire Byrne Show
A father plea for drug for rare disease

Played with his friends on the PlayStation.

The Claire Byrne Show
A father plea for drug for rare disease

Went to bed with his headphones on because he loves music.

The Claire Byrne Show
A father plea for drug for rare disease

And

The Claire Byrne Show
A father plea for drug for rare disease

Next morning, I noticed Paddy was up.

The Claire Byrne Show
A father plea for drug for rare disease

No sign of Rory.

The Claire Byrne Show
A father plea for drug for rare disease

And that's when I went into his room and I heard the music on, so I said, oh, he must be listening to music.

The Claire Byrne Show
A father plea for drug for rare disease

But I said, I'd better get him out of bed.

The Claire Byrne Show
A father plea for drug for rare disease

Unfortunately, he was no longer with us.

The Claire Byrne Show
A father plea for drug for rare disease

He had a severe heart attack in the middle of the night to do with the lower left muscle thickened in his heart to do with Frederick's ataxia.

The Claire Byrne Show
A father plea for drug for rare disease

Last 21st, yeah, it was Sunday morning.

The Claire Byrne Show
A father plea for drug for rare disease

Yes.

The Claire Byrne Show
A father plea for drug for rare disease

Look, I'm still in bits with Rory.

The Claire Byrne Show
A father plea for drug for rare disease

I'm still grieving very much.

The Claire Byrne Show
A father plea for drug for rare disease

And it was the Borderburn Secondary School, SNA, who phoned me one day to say that, look, Paddy is fatigued, very tired.

The Claire Byrne Show
A father plea for drug for rare disease

He asked, could he have a rest?

The Claire Byrne Show
A father plea for drug for rare disease

But this is part of Frederick's ataxia.