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Craig Coady

๐Ÿ‘ค Speaker
178 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
A father plea for drug for rare disease

um, something new again.

The Claire Byrne Show
A father plea for drug for rare disease

Um, so they brought him into, cause it's, it's, it's new school.

The Claire Byrne Show
A father plea for drug for rare disease

They have a relaxation room.

The Claire Byrne Show
A father plea for drug for rare disease

They brought him in there and he fell asleep.

The Claire Byrne Show
A father plea for drug for rare disease

So I felt I need to do something.

The Claire Byrne Show
A father plea for drug for rare disease

Um, that's when I went on here, um, in the Neil Prendergast show, um, back about, I think it was two months ago.

The Claire Byrne Show
A father plea for drug for rare disease

And, um, I just felt I need to do something here because the, um, back in, uh,

The Claire Byrne Show
A father plea for drug for rare disease

In December, the NCPE declined.

The Claire Byrne Show
A father plea for drug for rare disease

Well, there's people...

The Claire Byrne Show
A father plea for drug for rare disease

um, that have Fidrix attacks here in America, Australia, and in Europe are, are on this medication and it's, it's, it's working for them.

The Claire Byrne Show
A father plea for drug for rare disease

So I don't see where they're saying it's not look, it's obviously it's down to money with the, um, HSE.

The Claire Byrne Show
A father plea for drug for rare disease

Um, it is a costly drug.

The Claire Byrne Show
A father plea for drug for rare disease

Um, but do you have to push, look, if it was your child, what would you do?

The Claire Byrne Show
A father plea for drug for rare disease

Wouldn't you, you know, if it was any of the government's child, wouldn't they, wouldn't they, um,

The Claire Byrne Show
A father plea for drug for rare disease

reimbursing us you know it's not easy clear to be here every day and to see your son can only walk 10 minutes and you know walk like a drunken trial child to be honest he no longer plays with his friends he doesn't go out he's just so conscious on he's on himself um so like

The Claire Byrne Show
A father plea for drug for rare disease

if it's down to money with the government, you know, and the HSE about children, well, then we're in a sad place.

The Claire Byrne Show
A father plea for drug for rare disease

Look, this drug is even in Cyprus.

The Claire Byrne Show
A father plea for drug for rare disease

I'm sure France, Germany, all these big countries, great countries, they're rebirthing it after three months, and I'm sure they have done their homework on it.

The Claire Byrne Show
A father plea for drug for rare disease

I was optimistic after, to be fair, with Portugal Sullivan, he was optimistic after that, you know, there was questions asked.

The Claire Byrne Show
A father plea for drug for rare disease

But again, you know, it's into the day, it's down to the Minister of Health and the Taoiseach.