Dr. Bex
speaker
498 appearances
7 recordings
1 series
first heard Nov 2024
last heard Jun 2025
Dr. Bex’s voice in public audio — every appearance, attributed to the second.
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some of the you know long-term consequences and complications of these are actually getting a little bit lost in the shuffle because there are all these places and all these doctors you know that are diagnosing these things kind of in different ways and maybe using different criteria and in a way it's it's kind of what happened with covid with adhd diagnoses right where things are getting diagnosed now even on the internet by other people and the people who are truly suffering from these things at times are now facing drug shortages
inability to get care from providers because of all of this. So I think that's more, I think what Andrea was trying to say is that these conditions exist and they can be debilitating and there's concerns with it. It's just, it's more that how do we kind of find a place where everybody's getting the care they need, but the appropriate care, you know, in the appropriate places. So.
okay so madison goes to new york um to see this specialist dr boling they say so what is his he's a specialist in ellers danlos like what does he specialize in so he is a neurosurgeon by training and it sounds like over time he's kind of gotten into this niche of ehlers-danlos syndrome and his specific what he is specifically looking at is the connection between ehlers-danlos and what's called a chiari malformation which is
where part of your brain the cerebellum actually hangs a little bit lower into your spinal canal and at some point based on measurements it can start to have symptoms or things associated with it and then there's the tethered cord syndrome that he questions or thinks about in this case which is where your spinal cord is actually attached to the tissues surrounding
it in the canal and it can cause symptoms basically from your waist down. And then the other one is something called cranial cervical instability, where basically your skull and your cervical spine, there's kind of instability and that can have its own set of symptoms. So it seems like those three diagnoses that he works most specifically on and then their links to Ehlers-Danlos syndrome.
And he works with a neurologist, Dr. Kula, who I believe since has retired, according to the website. But at that time when Madison went, it was Dr. Balagnesi and Dr. Kula. And it's not extremely clear in the court documents what testing was done or how much was done when she was there. But they do give us a list of diagnoses that came out of that visit.
So to start with, they do say they agree with the Ehlers-Danlos diagnosis. The other one that we had already spoken about was the diagnosis of POTS or postural orthostatic tachycardia syndrome. And at least from the documents, it seems like a tilt table test was done in New York that did, according to them, confirm the POTS diagnosis.
And the one thing that was mentioned, which again is what Dr. Bolognese seems to specialize in, is that there were concerns she may have what's called a tethered cord. And that really seems to be the focus of his research is this connection between Ehlers-Danlos and these different other conditions.
Correct. And at this point, Kaiser Permanente San Diego has been in communication with Rady Children's. And the decision was made that based on Madison's complexity, that when she returned to San Diego, she would be admitted to Rady Children's as opposed to back to Kaiser Permanente.
As I was saying on the first episode, that that did occur even when I practiced in Southern California, where if there are specialists or if there are things that a child needs that are not available at Kaiser Permanente, they will reach out to whatever the local children's hospital is and potentially transfer patients.
So at this point, Madison is transferred back from New York to Rady Children's. And we again meet Dr. Shaylin Niinau, who is a child abuse pediatrician associated with Rady Children's. So we're now in January and Madison is back in San Diego, but now at Rady Children's. And we're going to go into a little bit of what happens now during this stay at Rady.
This is where the question of covert video surveillance comes into play. And I speculate or kind of assume that this is going to be a big part of the court process going forward because it has shown up multiple times in the complaints filed by the parents as to this timeframe during which Madison and her family were under this covert video surveillance within the room.
So when they arrived back to Rady Children's, they were placed in a room that has the capability for video surveillance.
because there was the report made prior that had been closed for, it sounds like the investigator, it was closed after an evaluation for not having enough evidence at that time to proceed.
So now that she's at Rady and they have the ability to do video surveillance in the rooms, a discussion was had, again, that depending on which side we're hearing kind of different stories, but whatever it's worth, video surveillance began in the patient's room at that time when she was placed at Rady's and carried on for, Over 30 days.
There's times where it says 36 and times where it says 38, but it was 24 hours a day, seven days a week for at least 30 days or over 30 days. Andrea and I have talked about this a little bit about using video surveillance in these cases. And maybe you can speak a little bit to your experience with video surveillance being used.
And I think it's important to say, too, that doing video surveillance is not to falsify evidence of medical child abuse or munchausen by proxy. So just placing the camera in and of itself is not forcing evidence to occur, right? The idea is you have an eye in the room, and you can see behaviors and patterns and things that may stand out. It doesn't mean you're going to find any.
It means it's a tool, like you said, to use, because it's often
varying versions of the same story right there's the medical record there's social media there's what the parents are reporting there's what the child is reporting and you may have two doctors who got two different stories as well so part of it is i think in the world we live in people want to see evidence people want to see clear concise evidence that is going to say this is what is happening and i have no doubt it's 100 and that just doesn't exist in this you know in this world but
The idea of covert video surveillance, if you do capture something, it may mean you're able to save or help the child if you have this piece of evidence. So you're not making something happen. You're doing it as another piece of your, I think, investigation. And what's most important is every state has their own laws as to how covert video surveillance can be used.
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