Dr. Bex

It's a little bit hard to see what is it, the forest for the trees or whatever that, you know, you assume if someone's there, there's already certain things that line up and then you're doing your whatever review and then doing your testing. But again, all of that can be clouded by them being there kind of in the first place, if that makes sense.

Like they walk through the door, there must be something bringing them there. And once we get into clinical diagnoses, these ones that there is not a gene test for, they're that even though there is a test like an MRI for, these ones don't meet that normal criteria, it becomes very subjective.

Like they walk through the door, there must be something bringing them there. And once we get into clinical diagnoses, these ones that there is not a gene test for, they're that even though there is a test like an MRI for, these ones don't meet that normal criteria, it becomes very subjective.

Like they walk through the door, there must be something bringing them there. And once we get into clinical diagnoses, these ones that there is not a gene test for, they're that even though there is a test like an MRI for, these ones don't meet that normal criteria, it becomes very subjective.

And that's when I get a little bit worried that whether intentional or unintentional, it is easier to see the thing that you work on every single day. It's a bias, like no matter what. And so you have to have that grounding. But if your entire center institute, everyone, this is all they ever see, and this is all they do, And then it leads to the surgery that brings in, to be fair, more money.

And that's when I get a little bit worried that whether intentional or unintentional, it is easier to see the thing that you work on every single day. It's a bias, like no matter what. And so you have to have that grounding. But if your entire center institute, everyone, this is all they ever see, and this is all they do, And then it leads to the surgery that brings in, to be fair, more money.

And that's when I get a little bit worried that whether intentional or unintentional, it is easier to see the thing that you work on every single day. It's a bias, like no matter what. And so you have to have that grounding. But if your entire center institute, everyone, this is all they ever see, and this is all they do, And then it leads to the surgery that brings in, to be fair, more money.

And then there's the follow ups. And then that's your research. You know, there's these centers that it's also they're the ones doing the research on this niche medication, niche surgical procedure. So then their results become the research that then furthers more, that then brings more to their clinic. It's this cyclical thing where nobody is outside of this. Yeah.

And then there's the follow ups. And then that's your research. You know, there's these centers that it's also they're the ones doing the research on this niche medication, niche surgical procedure. So then their results become the research that then furthers more, that then brings more to their clinic. It's this cyclical thing where nobody is outside of this. Yeah.

And then there's the follow ups. And then that's your research. You know, there's these centers that it's also they're the ones doing the research on this niche medication, niche surgical procedure. So then their results become the research that then furthers more, that then brings more to their clinic. It's this cyclical thing where nobody is outside of this. Yeah.

And of course, as a physician, I want to believe there was a point at which they saw some connection between Ehlers-Danlos and these things, and they felt like they were the ones that were maybe having worse outcomes or maybe weren't getting the care they needed. I worry about parents, patients who are just looking for answers and reasons for why do I hurt so bad every day?

And of course, as a physician, I want to believe there was a point at which they saw some connection between Ehlers-Danlos and these things, and they felt like they were the ones that were maybe having worse outcomes or maybe weren't getting the care they needed. I worry about parents, patients who are just looking for answers and reasons for why do I hurt so bad every day?

And of course, as a physician, I want to believe there was a point at which they saw some connection between Ehlers-Danlos and these things, and they felt like they were the ones that were maybe having worse outcomes or maybe weren't getting the care they needed. I worry about parents, patients who are just looking for answers and reasons for why do I hurt so bad every day?

Why are my headaches so bad all the time? and they find this website and it seems like the freaking like light from heaven goes on and you're like, oh my God, this is me. So you go and they offer something and it's not until you're what five, I mean, some of these people had greater than 20 surgeries done. You know, that like how many surgeries are you like, oh, what did I do?

Why are my headaches so bad all the time? and they find this website and it seems like the freaking like light from heaven goes on and you're like, oh my God, this is me. So you go and they offer something and it's not until you're what five, I mean, some of these people had greater than 20 surgeries done. You know, that like how many surgeries are you like, oh, what did I do?

Why are my headaches so bad all the time? and they find this website and it seems like the freaking like light from heaven goes on and you're like, oh my God, this is me. So you go and they offer something and it's not until you're what five, I mean, some of these people had greater than 20 surgeries done. You know, that like how many surgeries are you like, oh, what did I do?

You know, if you really still believe in this. And then there's also the flip of that where there are parents and are patients who are specifically finding these places because they know you don't have to go through the same pipeline or series of events again. to get there. And he says he reviews the medical records.

You know, if you really still believe in this. And then there's also the flip of that where there are parents and are patients who are specifically finding these places because they know you don't have to go through the same pipeline or series of events again. to get there. And he says he reviews the medical records.

You know, if you really still believe in this. And then there's also the flip of that where there are parents and are patients who are specifically finding these places because they know you don't have to go through the same pipeline or series of events again. to get there. And he says he reviews the medical records.

Maybe that is to make sure you've done X, Y, and Z, but that's not clearly delineated here. And we know specifically from other cases we've reviewed that it's going to the extreme. There's no timeline that makes sense. Like that, how in eight weeks a child has a GJ tube when they were a healthy baby eight weeks ago, like that timeline, there was not enough time to give things time to work.