Dr. Bex

And so I think all of these counts get to the heart of if standard of care or if what is needed for this specific child with Ehlers-Danlos is seen differently by the parents and by the physicians taking care of her, how do you reach that joint decision-making?

And so I think all of these counts get to the heart of if standard of care or if what is needed for this specific child with Ehlers-Danlos is seen differently by the parents and by the physicians taking care of her, how do you reach that joint decision-making?

And so I think all of these counts get to the heart of if standard of care or if what is needed for this specific child with Ehlers-Danlos is seen differently by the parents and by the physicians taking care of her, how do you reach that joint decision-making?

And if the hospital or doctor is potentially going down the path of what they see the standard of care to be, or the hospital sees the standard of care to be, then how do you even play out one of, I think, one of these lawsuits in the sense of If we started from different points, can we ever kind of see it the same? And then the idea of this being a disability.

And if the hospital or doctor is potentially going down the path of what they see the standard of care to be, or the hospital sees the standard of care to be, then how do you even play out one of, I think, one of these lawsuits in the sense of If we started from different points, can we ever kind of see it the same? And then the idea of this being a disability.

And if the hospital or doctor is potentially going down the path of what they see the standard of care to be, or the hospital sees the standard of care to be, then how do you even play out one of, I think, one of these lawsuits in the sense of If we started from different points, can we ever kind of see it the same? And then the idea of this being a disability.

So I did look this up just so I could kind of speak a little bit to it. But Ehlers Danlos in and of itself is not in this blue book that the Social Security Administration puts out. for like standalone diagnoses that basically put you in the ability to be able to have like disability services. And so it is seen as a disability, but it is not in that book. It has to be Ehlers-Danlos plus.

So I did look this up just so I could kind of speak a little bit to it. But Ehlers Danlos in and of itself is not in this blue book that the Social Security Administration puts out. for like standalone diagnoses that basically put you in the ability to be able to have like disability services. And so it is seen as a disability, but it is not in that book. It has to be Ehlers-Danlos plus.

So I did look this up just so I could kind of speak a little bit to it. But Ehlers Danlos in and of itself is not in this blue book that the Social Security Administration puts out. for like standalone diagnoses that basically put you in the ability to be able to have like disability services. And so it is seen as a disability, but it is not in that book. It has to be Ehlers-Danlos plus.

So Ehlers-Danlos plus some like substantial functional impairment, inability to maintain walking or standing for long periods, chronic severe instability or pain, things that are actually interfering with your ability to, to work, your ability to, I think it says to perform, quote, substantial gainful activity.

So Ehlers-Danlos plus some like substantial functional impairment, inability to maintain walking or standing for long periods, chronic severe instability or pain, things that are actually interfering with your ability to, to work, your ability to, I think it says to perform, quote, substantial gainful activity.

So Ehlers-Danlos plus some like substantial functional impairment, inability to maintain walking or standing for long periods, chronic severe instability or pain, things that are actually interfering with your ability to, to work, your ability to, I think it says to perform, quote, substantial gainful activity.

So basically, does this diagnosis have enough of these other features to say that it would do that? And I know that's not really what these claims are saying, but the idea is they are claiming she does have a disability. So by that definition, she would meet those criteria. And then did the hospital, did the physicians consider

So basically, does this diagnosis have enough of these other features to say that it would do that? And I know that's not really what these claims are saying, but the idea is they are claiming she does have a disability. So by that definition, she would meet those criteria. And then did the hospital, did the physicians consider

So basically, does this diagnosis have enough of these other features to say that it would do that? And I know that's not really what these claims are saying, but the idea is they are claiming she does have a disability. So by that definition, she would meet those criteria. And then did the hospital, did the physicians consider

potentially withhold or discriminate against her in any way based on that disability. This is where one of the specifics comes up. The idea that they denied transfer to a facility that specializes in Ehlers-Danlos. I don't know what the specifics of that were. the use of an appropriate wheelchair, her use of her phone and her tablet were things that were mentioned.

potentially withhold or discriminate against her in any way based on that disability. This is where one of the specifics comes up. The idea that they denied transfer to a facility that specializes in Ehlers-Danlos. I don't know what the specifics of that were. the use of an appropriate wheelchair, her use of her phone and her tablet were things that were mentioned.

potentially withhold or discriminate against her in any way based on that disability. This is where one of the specifics comes up. The idea that they denied transfer to a facility that specializes in Ehlers-Danlos. I don't know what the specifics of that were. the use of an appropriate wheelchair, her use of her phone and her tablet were things that were mentioned.

And again, as a physician, I was thinking through this. If physical therapy evaluations are saying a child has the ability to walk and therefore we are working on them with that, We tend to opt for the least invasive and using maybe the other one as a backup or something like if it is needed, this can be a bit of a gray area.

And again, as a physician, I was thinking through this. If physical therapy evaluations are saying a child has the ability to walk and therefore we are working on them with that, We tend to opt for the least invasive and using maybe the other one as a backup or something like if it is needed, this can be a bit of a gray area.