Dr. Bex
speaker
498 appearances
7 recordings
1 series
first heard Nov 2024
last heard Jun 2025
Dr. Bex’s voice in public audio — every appearance, attributed to the second.
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Appearances
So again, these good people who are going through, and again, mitochondrial disease is in my heart because of that case. So I sometimes struggle.
with being a little offended because of what I know it can mean and again they were so appalled that there are parents that don't just love their kid and want them to not be sick and want them to know they're going to kindergarten into school and all the things they never got with their child and I think That has stuck with me.
And maybe that is actually why I why I find myself so passionate, because our bond was like nothing. You know what I mean? That what we went through was life changing for me, literally. I mean, I went back to pediatrics because of it. So the fact that they're saying, you know, that I just walk in with this eye of wanting to. you know, break up these families and accuse them of things.
It's just not true. And bad doctors aside, you cannot work in a pediatric hospital every day of your life and have that be your goal. I mean, it just would not be compatible with a career.
And I think if the website was saying like safety on social media, right? Like your child is in the hospital. These things are happening. Be aware, right? I mean like that site on social media and online interactions, like that's what I want them to say. But instead they start in light of the frequent use of social media used in child protection cases. Like what are we talking about?
You know what I mean? Again, it's, there is safe social media use and there is smart social media use. in all cases when you have children. You know, and it's a decision you as a parent 100% get to make. But understanding that and knowing what that can mean and reminding you that there are not good people out there.
I mean, I've had people, you know, post like their MRI results and stuff, like true patients who have conditions. And I've had patients bring in like, you know, copies of someone else's MRI, you know, because there's no name on it. And they say, oh, this is what they gave me. And it's like, no, that's not what they gave me. You know what I mean? So just be aware.
It is the same as any other thing that you're posting on social media.
Or even Beata's blogs, right? With Maya, when she was in the coma, like she had no choice. She was absolutely sedated. That was not her smiling for a photo, her dancing in her wheelchair. That was her in a coma. Yeah.
And I think one other piece that we didn't mention, but just for those who want to go down rabbit holes, is that look at the medical advisory committee for this website, because it is Richard Bowles. It is Mark Corson from the Pelletier case. It is Frances Kendall, who is the one who diagnosed Maxine Eichner's daughter.
For those who've listened to all of our episodes, the names start coming up multiple times. And again, I read some of the backgrounds on some of the other doctors and I was floored. I mean, they sound like they have amazing backgrounds and good research, but those names coming up, it's just... It's notable. Yes. It's just worth noticing.
And does not have medical child abuse. Like, it's not just that they have mitochondrial disease. It's that it's not medical child abuse.
And I think it's because like that's your path. It's the same way for me with these physicians, though. I think it's because it's our world, right? I mean, yeah, you're a writer, you're a pod, you know, you have the podcast and your heart is in
I said, I want to like sit and have a beer with Kirkpatrick or with, you know, Chopra or any of these people. Like, I want to see them in the real world. Like, do they hold up this narrative?
And I think that's the hardest piece to get to even as a physician or when I'm talking to like my residents and my students is end of the day, I think this is why maybe I am so invested or that I am so willing to kind of go so deep into this is it is one of the hardest things I think as a human being, as a parent, as someone who has friends who are parents, right?
Who knows a child, anything that it could ever get to that point. And I mean, it's honestly, it makes for... some lost sleep over how this really plays out and how like to be a fly on the wall in their homes to see what it's really like. And that's why I think Jordan's story is so important because they can actually tell us what happened or what it was like.
Although every home is different, you know, we really want to know what it's like, especially as a pediatrician. I want to know what these kids' lives are truly like, because I think I haven't seen the tip of the iceberg.
Sounds fun. I'll be there.
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