Dr. Bex
speaker
498 appearances
7 recordings
1 series
first heard Nov 2024
last heard Jun 2025
Dr. Bex’s voice in public audio — every appearance, attributed to the second.
Trend
recordings per month · last 12 monthsNo recordings in the last 12 months.Older appearances are listed below; set an alert to hear about the next one.
Appearances
It is on their page of groups that they're affiliated. It comes up in multiple locations.
I mean, it's a stretch. I mean, it becomes a bit of an ethical question where we've had, you know, these these families who say, you know, we understand the risk and we still want them to taste something that they love. It becomes very difficult. But truth is the physical ability to eat a potato chip is. Um, is questionable.
I mean, I've had, I've had patients tell me things like, oh, you know, I ate a whole this in one day, or they come in and they just talk about like their favorite foods and their favorite restaurants and their favorite this. And you kind of can feel the tension in the room. Cause it's like, they've been on TPN for five years. Like how would they remember going to these, right?
I mean, like things just start to unravel a little bit that this is a kid who probably does love eating at McDonald's. But if they say that, why are they on TPN? I mean, it's, it's just, it's questionable.
Because they can't eat by mouth, then they try a tube, the tube feeds the stomach, it still doesn't work, then we can actually feed the intestines, right? With a different type of tube, that doesn't work or there's a risk to doing so. So for instance, you just had a big abdominal surgery and your gut just isn't ready yet. You use TPN.
TPN is often a bridge, meaning like to get back to some type of feed through the stomach or the intestines. Kids with... very severe conditions where they don't have enough gut to absorb all this nutrition become TPN dependent for life. The thing is TPN has risk factors.
TPN will cause liver damage over time just because our bodies aren't meant to be fed, you know, in this way and can cause liver failure actually at some point. And it's just, having a line that can get infected, that can cause sepsis, that can clot and cause blood clots. There are so many risks to it that you take it under very strong consideration.
Is there any other way to get there that does not involve TPN? And I think...
Again, those kids, the other thing is if a kid is not eating, and I think I said this on a previous episode, if I don't eat for a week because I have a really bad stomach bug and I go to eat the day after I start feeling better and I eat a big burger and French fries, I might throw up again because my stomach just is not ready to take on that much.
Sometimes after we're sick, like milk products don't sit so well, right? So the argument would be made a child that supposedly has not eaten by mouth or tube in five years, comes in and we start to feed them and they are so excited to eat that they eat the entire plate and then ask for extra snacks and there's no vomiting and there's no diarrhea. That proves to me that the child was eating.
It's not just that. They're saying they couldn't. So they didn't feed them for five years. No, they were feeding them. I mean, this child was eating because there is just no way for your system to do that.
And actually, I'm trying to pull it up, but for some reason it's not logging me in. But there's a connection between that family and the Pelletier case. Because I think they're mentioned or they were possibly going to testify. I can't remember, but for some reason it's not letting me open the article. But this case came up during the Pelletier case. Yeah.
So and I think it's it's goes to this whole like they all are ending up in the same circles or on the same websites or on the same.
Correct. And I want I again, I want parents to be advocate for advocates for their children. And I want them to have information about how to be a parent of a chronically ill child. Like it is not easy. And I can tell you, I have some that should lead that group because they're amazing. You know what I mean? And they have a way of.
interacting that they absolutely come in and tell me, you know, my kid and you know that if we start feeds too fast, they're going to vomit. And why even do that? Let's go slow. You know, and I don't see it as being pushy or forcing my hand at all. It's a conversation, you know, and we're talking about knowing this child.
And again, as a physician who's been now in the same place for 12 years, I also know the patients. Right. So, I mean, that is interesting. they're just taking all of that away. Like those relationships that I've built with these families over time that we trust and respect each other, they're really just acting like that can't possibly exist in one of these cases.
And that does, that hurts my heart, honestly.
And it's so... It just... It sets us up to fail. It sets families who are actually coming in with, you know, good intention and true concerns to fail. It breaks the whole, you know, bond between patients and families. And it also... It negates the ones that really do. I mean, I said the family that got me.
I mean, I still remember it was actually the case that I wrote that switched me back to PEDS. I remember being in their room and a commercial came on TV about the news that night where there was a case at the hospital where we were of a child who was severely abused and that the parents had been arrested. It was this terrible case. And, you know, the parents of my patient turned and said...
why do some people get to be parents? You know what I mean? And here they are suffering through the worst days. I mean, they were losing their child and at the same time, they knew it was genetic so that they had a risk if they ever had another child of it having this condition. And they actually said to me, Does that kid need a family or need foster parents, right?
Showing 461–480 of 498 · page 24 of 25
← Previous
Next →