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Dr. Bex

๐Ÿ‘ค Speaker
1494 total appearances

Appearances Over Time

Podcast Appearances

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And then along the way, when other diagnoses were suggested, they were kind of denied by the family. And then that you can't even kind of follow that path to find how this all came to be. And that's when I start to not necessarily get worried about medical child abuse, but I start to kind of want to know more or at least want to dig more in those scenarios.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And then along the way, when other diagnoses were suggested, they were kind of denied by the family. And then that you can't even kind of follow that path to find how this all came to be. And that's when I start to not necessarily get worried about medical child abuse, but I start to kind of want to know more or at least want to dig more in those scenarios.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Yes. And I think seizures are one of those things that I've actually gone down the rabbit hole a little bit as well, because I have also questioned the whole idea of how much are the doctors culpable, right? And this I'm sure is a touchy subject for some physicians, but I will stand here, sit here and say that I have been complicit before because I didn't know, or I

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Yes. And I think seizures are one of those things that I've actually gone down the rabbit hole a little bit as well, because I have also questioned the whole idea of how much are the doctors culpable, right? And this I'm sure is a touchy subject for some physicians, but I will stand here, sit here and say that I have been complicit before because I didn't know, or I

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Yes. And I think seizures are one of those things that I've actually gone down the rabbit hole a little bit as well, because I have also questioned the whole idea of how much are the doctors culpable, right? And this I'm sure is a touchy subject for some physicians, but I will stand here, sit here and say that I have been complicit before because I didn't know, or I

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

it was too small of a story at that time, or they came with a G-tube and G-tube feeds, so I continued them, right? So I can honestly say I have been complicit. At the same time, when does that become a true problem? And I think that's the same as when does medical child abuse become more your concern from just...

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

it was too small of a story at that time, or they came with a G-tube and G-tube feeds, so I continued them, right? So I can honestly say I have been complicit. At the same time, when does that become a true problem? And I think that's the same as when does medical child abuse become more your concern from just...

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

it was too small of a story at that time, or they came with a G-tube and G-tube feeds, so I continued them, right? So I can honestly say I have been complicit. At the same time, when does that become a true problem? And I think that's the same as when does medical child abuse become more your concern from just...

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

anxious parent someone who comes in and wants to know if their child's having a seizure and you hook them up to what's called an EEG and they have one of the episodes that mom is concerned about and you can say on the EEG this is not a seizure and you can see this light like their their shoulders you know relax that this idea that I can sleep at night knowing this is not a seizure and

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

anxious parent someone who comes in and wants to know if their child's having a seizure and you hook them up to what's called an EEG and they have one of the episodes that mom is concerned about and you can say on the EEG this is not a seizure and you can see this light like their their shoulders you know relax that this idea that I can sleep at night knowing this is not a seizure and

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

anxious parent someone who comes in and wants to know if their child's having a seizure and you hook them up to what's called an EEG and they have one of the episodes that mom is concerned about and you can say on the EEG this is not a seizure and you can see this light like their their shoulders you know relax that this idea that I can sleep at night knowing this is not a seizure and

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

The thing is, some of these patients have been on multiple EEGs multiple times, and a seizure has never been caught. Then they go home, and they come back, and they report the worst seizure that ever happened. The patient turned blue. They had to give them CPR.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

The thing is, some of these patients have been on multiple EEGs multiple times, and a seizure has never been caught. Then they go home, and they come back, and they report the worst seizure that ever happened. The patient turned blue. They had to give them CPR.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

The thing is, some of these patients have been on multiple EEGs multiple times, and a seizure has never been caught. Then they go home, and they come back, and they report the worst seizure that ever happened. The patient turned blue. They had to give them CPR.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And so any physician who is hearing these stories is going to start saying, OK, so the EEG is normal, but the story they're telling me is a child who could die of a seizure at home. So when do I start medication? Right. I mean, because there are times where an EEG can look completely normal unless you capture the event.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And so any physician who is hearing these stories is going to start saying, OK, so the EEG is normal, but the story they're telling me is a child who could die of a seizure at home. So when do I start medication? Right. I mean, because there are times where an EEG can look completely normal unless you capture the event.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And so any physician who is hearing these stories is going to start saying, OK, so the EEG is normal, but the story they're telling me is a child who could die of a seizure at home. So when do I start medication? Right. I mean, because there are times where an EEG can look completely normal unless you capture the event.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So if these events are happening once a month, do you hook them up for a whole month or do you hear the story and say that is concerning enough to me to start a medication? So that is where I think these kids do come to me already on two or three medications and.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So if these events are happening once a month, do you hook them up for a whole month or do you hear the story and say that is concerning enough to me to start a medication? So that is where I think these kids do come to me already on two or three medications and.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So if these events are happening once a month, do you hook them up for a whole month or do you hear the story and say that is concerning enough to me to start a medication? So that is where I think these kids do come to me already on two or three medications and.