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Dr. Bex

๐Ÿ‘ค Speaker
1494 total appearances

Appearances Over Time

Podcast Appearances

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Because if you look back over the timeline, the story has only grown over time from they do these staring episodes to now they're turning blue and I need to give them CPR to now they're lasting 30 minutes and I have no way to stop them. So again, the story escalates and escalates and escalates until somebody gives them the medication. And then at the next place, it escalates even further.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Because if you look back over the timeline, the story has only grown over time from they do these staring episodes to now they're turning blue and I need to give them CPR to now they're lasting 30 minutes and I have no way to stop them. So again, the story escalates and escalates and escalates until somebody gives them the medication. And then at the next place, it escalates even further.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Because if you look back over the timeline, the story has only grown over time from they do these staring episodes to now they're turning blue and I need to give them CPR to now they're lasting 30 minutes and I have no way to stop them. So again, the story escalates and escalates and escalates until somebody gives them the medication. And then at the next place, it escalates even further.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And again, negative testing can prove certain things. ever disprove something completely. I mean, I'm sorry, I can't, but there are certain situations and I think the patterns show that there are certain conditions and certain things that do come up because they are those ones that leave gray area.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And again, negative testing can prove certain things. ever disprove something completely. I mean, I'm sorry, I can't, but there are certain situations and I think the patterns show that there are certain conditions and certain things that do come up because they are those ones that leave gray area.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And again, negative testing can prove certain things. ever disprove something completely. I mean, I'm sorry, I can't, but there are certain situations and I think the patterns show that there are certain conditions and certain things that do come up because they are those ones that leave gray area.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Like they have congenital heart disease and you're like, well, we did an echo. No, they don't. Right.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Like they have congenital heart disease and you're like, well, we did an echo. No, they don't. Right.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

Like they have congenital heart disease and you're like, well, we did an echo. No, they don't. Right.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And I think it's interesting that, so I am a huge fan of support sites for people.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And I think it's interesting that, so I am a huge fan of support sites for people.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And I think it's interesting that, so I am a huge fan of support sites for people.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So the idea of MitoAction is that it is a site to gain information for families, for those suffering from mitochondrial disease, for those who know people with mitochondrial disease, that they can get more information. Their mission statement is basically that we want people to learn more, understand more, and we want to be a source for them.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So the idea of MitoAction is that it is a site to gain information for families, for those suffering from mitochondrial disease, for those who know people with mitochondrial disease, that they can get more information. Their mission statement is basically that we want people to learn more, understand more, and we want to be a source for them.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So the idea of MitoAction is that it is a site to gain information for families, for those suffering from mitochondrial disease, for those who know people with mitochondrial disease, that they can get more information. Their mission statement is basically that we want people to learn more, understand more, and we want to be a source for them.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And we also want to give back to people who are suffering from this and, you know, help them get make a wish trips or, you know, fund different things that these families might need. So I think it's a beautiful concept. And this exists for pretty much every condition. under the sun now because of the internet and everything we can do.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And we also want to give back to people who are suffering from this and, you know, help them get make a wish trips or, you know, fund different things that these families might need. So I think it's a beautiful concept. And this exists for pretty much every condition. under the sun now because of the internet and everything we can do.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

And we also want to give back to people who are suffering from this and, you know, help them get make a wish trips or, you know, fund different things that these families might need. So I think it's a beautiful concept. And this exists for pretty much every condition. under the sun now because of the internet and everything we can do.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So I am concerned because there was a time when these support groups, I would say, were the best thing that happened. We have a camp here in Florida called Camp Boggy Creek.

Nobody Should Believe Me
Exploring the Disturbing World of Mitoaction.org

So I am concerned because there was a time when these support groups, I would say, were the best thing that happened. We have a camp here in Florida called Camp Boggy Creek.