Emily Mullen
👤 PersonAppearances Over Time
Podcast Appearances
So what that means is that even if you personally haven't taken a DNA test, somebody in your family or extended family probably has, and you could be identified in that way.
Yeah. So despite selling a lot of tests over the years, this might come as a surprise for listeners to learn. But 23andMe has never been profitable. They never figured out how to really monetize the data. Oh, wow.
Yeah. So despite selling a lot of tests over the years, this might come as a surprise for listeners to learn. But 23andMe has never been profitable. They never figured out how to really monetize the data. Oh, wow.
Yeah. So despite selling a lot of tests over the years, this might come as a surprise for listeners to learn. But 23andMe has never been profitable. They never figured out how to really monetize the data. Oh, wow.
Right. So that's the big question, is what happens to all this data now? For now, 23andMe says its existing consumer privacy policies remain in place, and the company has not changed how it manages or protects consumer data. If the company comes under new ownership, they could revise those privacy policies for new customers and new data collection. But
Right. So that's the big question, is what happens to all this data now? For now, 23andMe says its existing consumer privacy policies remain in place, and the company has not changed how it manages or protects consumer data. If the company comes under new ownership, they could revise those privacy policies for new customers and new data collection. But
Right. So that's the big question, is what happens to all this data now? For now, 23andMe says its existing consumer privacy policies remain in place, and the company has not changed how it manages or protects consumer data. If the company comes under new ownership, they could revise those privacy policies for new customers and new data collection. But
If you're one of those people who previously opted into your data being used for research purposes and you haven't logged into 23andMe since you've taken a test and you've sort of forgotten about it, okay, well, your data could likely be used by whoever the new owner is for these purposes.
If you're one of those people who previously opted into your data being used for research purposes and you haven't logged into 23andMe since you've taken a test and you've sort of forgotten about it, okay, well, your data could likely be used by whoever the new owner is for these purposes.
If you're one of those people who previously opted into your data being used for research purposes and you haven't logged into 23andMe since you've taken a test and you've sort of forgotten about it, okay, well, your data could likely be used by whoever the new owner is for these purposes.
So if you have used 23andMe in the past and you want to change the way your data is being used, you can absolutely still go and do that right now. Yeah. Like how do you delete that data? Yeah. So when you log into 23andMe's website, you go to settings in your profile. Then you can scroll to 23andMe data and click view.
So if you have used 23andMe in the past and you want to change the way your data is being used, you can absolutely still go and do that right now. Yeah. Like how do you delete that data? Yeah. So when you log into 23andMe's website, you go to settings in your profile. Then you can scroll to 23andMe data and click view.
So if you have used 23andMe in the past and you want to change the way your data is being used, you can absolutely still go and do that right now. Yeah. Like how do you delete that data? Yeah. So when you log into 23andMe's website, you go to settings in your profile. Then you can scroll to 23andMe data and click view.
At this point, if you want to, you are able to download a copy of your genetic information so that you have that moving forward. Then you can scroll to delete data and click permanently delete data. You can also ask 23andMe to destroy the biological sample it used to extract your DNA data if you previously authorized the company to keep it.
At this point, if you want to, you are able to download a copy of your genetic information so that you have that moving forward. Then you can scroll to delete data and click permanently delete data. You can also ask 23andMe to destroy the biological sample it used to extract your DNA data if you previously authorized the company to keep it.
At this point, if you want to, you are able to download a copy of your genetic information so that you have that moving forward. Then you can scroll to delete data and click permanently delete data. You can also ask 23andMe to destroy the biological sample it used to extract your DNA data if you previously authorized the company to keep it.
So HIPAA is the Health Information Privacy Act that we often hear about. That protects information only when we're talking about health entities sharing data with each other. So in this case, 23andMe is a... company that sells genetic testing kits. They're not a health entity. So HIPAA does not protect your genetic information in this case.
So HIPAA is the Health Information Privacy Act that we often hear about. That protects information only when we're talking about health entities sharing data with each other. So in this case, 23andMe is a... company that sells genetic testing kits. They're not a health entity. So HIPAA does not protect your genetic information in this case.
So HIPAA is the Health Information Privacy Act that we often hear about. That protects information only when we're talking about health entities sharing data with each other. So in this case, 23andMe is a... company that sells genetic testing kits. They're not a health entity. So HIPAA does not protect your genetic information in this case.
There are a couple of states like California that do have more stringent protections, but there is no federal law that protects information collected in this way.