Emily O'Reilly
👤 SpeakerAppearances Over Time
Podcast Appearances
The HIV clinic would not give me access to his records, you know, privacy and Brian wouldn't have wanted it.
And Brian wouldn't have wanted his sexual health records released.
And I said, I don't want his sexual health records.
I want his health records released.
But every other hospital just flooded my inbox with them.
I mean, there was no curating.
I mean, I remember at one point there were so many coming in and they were very detailed.
And so I could read my details of my brother's death, those last hours, second by second, intervention by intervention.
And that was hard to read.
And I remember thinking, who the hell asked for these?
I had asked for them.
So I got them and I spent, you know, every few months I'd look through them and, you know, trying to get to grips with the medical language.
I'm fairly good on science and medicine and all of that in terms of basic technology or basic vocabulary.
And I did get to see, I got to see his HIV consultant, but shortly after Brian had died.
Yeah, so this was the thing as well that set me off on this particular journey, as they say.
I met his HIV consultant and actually all I wanted to do then was to talk about Brian because Brian adored him.
And he was the doctor who was kind of who most, who best knew Brian.
Yeah.
Well, he certainly would have been emailing the various consultants and so on.
But