Kathy Lord
๐ค SpeakerAppearances Over Time
Podcast Appearances
And there was an autism self-advocate and then a bunch of other people from different agencies.
When I say group home, I'm thinking of like four or five people who live in a house with like two other people who are helping take care of them.
I felt like they didn't understand that these are people that have nowhere to live except with their parents who are getting older and can't take care of them.
But I think the idea that they were representing autism
as if they were experts on all forms of autism.
That was certainly something that I had a hard time with that I won't forget.
So we were, I mean, Lancet offered us the opportunity to set up an international commission across disciplines.
And then there was a lot of discussion about what on earth we call this.
I do think it has backfired to some degree.
The whole idea of autism awareness, those are things that are really good, but I do think that we have contributed unwittingly to having diagnoses that are very complicated.
I mean, I don't know what to do, you know, how to solve this, because I think the solution is not linear.
It's not going to be you're in this group, you're in that group.
I mean, there aren't two groups.
I don't think we could agree on three groups.