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Pádraig O'Sullivan

👤 Speaker
85 total appearances

Appearances Over Time

Podcast Appearances

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

But every couple of months, every six months, you solve a drug or a drug gets reimbursed and people typically, politicians especially, campaign for a certain drug or a certain cohort of patients that might be constituents of theirs.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

But we're not dealing with the crux of the matter here.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

The crux of the matter is our process is broken.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

Simon Harris himself, when he was Minister for Health in 2017, said the process isn't working.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

But the process hasn't changed since 2017.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

It's the same process.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

And it's those inordinate delays that are unacceptable, they're inhumane, they're cruel.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

And I got to know Craig because he did an interview on local radio.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

He's not a constituent of mine, but I felt so moved by his initial interview, I reached out to him.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

And from that, to be fair, the campaign has, you know, over the last few weeks, it's going viral.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

And I've been saying that for five years.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

We can resolve this situation for this cohort of patients.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

I'm also working with Senator Theresa Costolo

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

on the Duchenne muscular dystrophy patients' desire to get Givinostat.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

Like, we're going to have campaign after campaign and it's going to be Groundhog Day unless we get to the crux of the matter.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

And the statistics I'm quoting are EU statistics.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

They're not just industry statistics.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

They come from the EU Commission as well.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

Ireland ranks below Luxembourg, Denmark, Slovenia, Cyprus, Iceland, Norway, Estonia and Cyprus, sorry, in terms of wait times for processing of drugs.

The Claire Byrne Show
My son has Friedreich's Ataxia and something needs to change

They're similar sized economies, similar sized populations.