Sofia Levin
๐ค SpeakerAppearances Over Time
Podcast Appearances
now that it's been a little bit.
With the studies, I knew the names of the neurologists.
I knew everything.
I knew the things on the internet that were illegal, that were supposedly good for the disease.
I did everything.
I went and got as much information and tried as much as you can.
Because when you get a diagnosis like that, you will.
You'll try all available avenues to you.
So that was my coping mechanism.
But then we just kept spending time as a family.
We went on a couple more trips than usual together, but we've always been a really tight family.
So it wasn't like, oh, we need to change our behaviour and the way that we connect because our time is now limited.
It was just about making...
the best memories that we could with the limited time that we knew dad had.
So that's what we did.
Yeah.
And it took us to different parts of the world, just different parts of Victoria, Airbnbs here and here.
And we just made sure that we spend lots of time together.
The goal for MND Victoria is to not exist because MND Vic, they look after the care component.
So you asked me before, you know, how do you deal with that sort of diagnosis as a family?