Susan Desmond-Hellmann
👤 SpeakerAppearances Over Time
Podcast Appearances
I triaged. I triaged in San Francisco. If you didn't need chemotherapy, but you had Kaposi's sarcoma, I didn't see you.
I triaged. I triaged in San Francisco. If you didn't need chemotherapy, but you had Kaposi's sarcoma, I didn't see you.
The simple one was vincristine. Vincristine is actually reasonably good against KS. I used it in Uganda a lot. It does cause some neuropathy, but if you're careful about how much, and then bleomycin. Again, you have to be careful because of the pulmonary toxicity. Good old-fashioned vincristine and bleo, and then Texel. Texel was approved for Kaposi's sarcoma after I left Uganda.
The simple one was vincristine. Vincristine is actually reasonably good against KS. I used it in Uganda a lot. It does cause some neuropathy, but if you're careful about how much, and then bleomycin. Again, you have to be careful because of the pulmonary toxicity. Good old-fashioned vincristine and bleo, and then Texel. Texel was approved for Kaposi's sarcoma after I left Uganda.
It wasn't a drug before then. I would see the patient and I would literally ask them and their family, can you walk? If you can walk.
It wasn't a drug before then. I would see the patient and I would literally ask them and their family, can you walk? If you can walk.
You're too healthy. We'll delay. There was triage because I only had on the shelf a certain amount of chemotherapy.
You're too healthy. We'll delay. There was triage because I only had on the shelf a certain amount of chemotherapy.
I have this philosophy, which I don't recommend it for others. It's just my philosophy. I love people. I love interacting with people. I love getting to know the patients who I care for. And it makes me happy to think I'm helping. Helping might be helping them get better. Helping might be helping with their pain or they can talk about dying with me because it doesn't make me scared.
I have this philosophy, which I don't recommend it for others. It's just my philosophy. I love people. I love interacting with people. I love getting to know the patients who I care for. And it makes me happy to think I'm helping. Helping might be helping them get better. Helping might be helping with their pain or they can talk about dying with me because it doesn't make me scared.
So I get a lot of joy in trying to contribute, even if I feel overwhelmed and if I step back and think, how can we cope with this? My coping is... Is leaning in. Yeah.
So I get a lot of joy in trying to contribute, even if I feel overwhelmed and if I step back and think, how can we cope with this? My coping is... Is leaning in. Yeah.
Well, first of all, my husband is more introverted and probably gets more sad, but we are also a good team because we are there for each other. And I think it's a special thing done in small amounts, not too much to be able to come home and say, boy, that was tough. Here's what I dealt with today, or I need to tell this story, or I want to talk about this.
Well, first of all, my husband is more introverted and probably gets more sad, but we are also a good team because we are there for each other. And I think it's a special thing done in small amounts, not too much to be able to come home and say, boy, that was tough. Here's what I dealt with today, or I need to tell this story, or I want to talk about this.
The other thing we did, which is I think so important is I do drive a lot of joy in trying to help, but I'm not a martyr. I don't believe in it. Okay, you worked hard, I worked harder. You suffered, I suffered more. I hate that. So we went to Greece. We still laugh about going to Greece and eating our way through Greece for a week. When we were in Uganda, we had a couple of other good trips.
The other thing we did, which is I think so important is I do drive a lot of joy in trying to help, but I'm not a martyr. I don't believe in it. Okay, you worked hard, I worked harder. You suffered, I suffered more. I hate that. So we went to Greece. We still laugh about going to Greece and eating our way through Greece for a week. When we were in Uganda, we had a couple of other good trips.
We went on a hilarious safari to a place that was Moya Lodge that had been closed to all tourists had just reopened. And it was so great. We saw hippos and elephants. And we realized we were the only what you call in Uganda, Amazungu, which is a white person there. So it was a grand adventure. So we had some grand adventures and played tennis, enjoyed friends.
We went on a hilarious safari to a place that was Moya Lodge that had been closed to all tourists had just reopened. And it was so great. We saw hippos and elephants. And we realized we were the only what you call in Uganda, Amazungu, which is a white person there. So it was a grand adventure. So we had some grand adventures and played tennis, enjoyed friends.
We did as much to keep our spirits up as one can.
We did as much to keep our spirits up as one can.