29. MY UPDATE: What Happens When You Lose the Meds That Helped You Survive

This isn’t just about medication. It’s about the pattern so many ADHD mums find themselves in — chasing answers, finding partial relief, and then hitting a wall you never saw coming. In this raw, unfiltered episode, Jane shares the deeply personal story of what happened when her body could no longer tolerate ADHD medication — and how a lifetime of overlapping diagnoses, chronic conditions, and medical gaslighting shaped the road to that moment. From discovering she had lipedema after years of pain, to navigating a brutal and underfunded surgery system, this is an honest account of resilience, privilege, and the fight to be taken seriously in a medical landscape that often dismisses women’s health. It’s about grief for the tools you lose, hope for the ones you gain, and the messy truth of managing ADHD when your options suddenly shrink. 💬 In this episode, we cover: The moment ADHD meds stopped being an option — and what came next The hidden connection between neurodivergence and lipedema What lipedema actually is (and why it’s so often misdiagnosed) The physical and emotional toll of chronic pain What it’s like to navigate an inaccessible surgery system in Australia Why women’s pain is still minimised, dismissed, and underfunded The real cost — financial, physical, emotional — of managing an “invisible” disability What needs to change so ADHD mums aren’t left without safe, effective support 💭 This episode is for you if: – You’ve ever had to choose between functioning and your health– You’ve been dismissed or told to “just lose weight” when something was wrong– You want to understand the overlap between ADHD, autism, chronic pain, and women’s health neglect– You’re tired of hearing “we can’t help you” from the systems meant to support you Check out IG posts here. Listen to Part 2: The Lipedema Op: The Invisible Illness You Weren’t Supposed to Notice 📚 Resources & References Related Episodes: Connection Between ADHD, EDS and POTS Listen here on Spotify Listen here on Apple Lipedema surgery information ADHD Mums blog post  — Photos, personal journey, and practical tips for navigating the lipedema surgery system. Check your symptoms – Lipedema Foundation — Clear, accessible checklist to help identify potential signs of lipedema and start informed conversations with health providers. 💓 SVT (Supraventricular Tachycardia) Heart Foundation – Heart Arrhythmia & SVT — Evidence-based info on symptoms, diagnosis, and treatment for heart rhythm conditions including SVT. 🦓 Ehlers-Danlos Syndrome (EDS)...

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