Foundation Fighting Blindness
Episodes
Eye on the Cure Podcast | Episode 32: Dr. Sandy Greenberg
23 Sep 2022
Contributed by Lukas
September 23, 2022. Dr. Sandy Greenberg talks to host Ben Shaberman about his incredible life's journey of going blind suddenly at the age of 19 to ea...
Eye on the Cure Podcast | Episode 31: Jean Bousquet
09 Sep 2022
Contributed by Lukas
September 9, 2022. Jean Bousquet, a certified orientation and mobility specialist with the Office of Rehabilitation Services in Rhode Island, talks to...
News | Belite Bio Launching Phase 3 Clinical Trial for Stargardt Disease Drug
29 Aug 2022
Contributed by Lukas
The company’s drug is designed to reduce accumulation of toxins that cause vision loss.
Eye on the Cure Podcast | Episode 30: Steven McCoy
19 Aug 2022
Contributed by Lukas
Host Ben Shaberman talks with Steven McCoy, who overcame early challenges as a kid with Usher syndrome, to become the first black, deaf-blind journali...
Eye on the Cure Podcast | Episode 29: David Gamm, MD, PhD
05 Aug 2022
Contributed by Lukas
August 5, 2022. Stem cell expert David Gamm, MD, PhD, talks with host Ben Shaberman about his innovative work in stem cell therapy development for ret...
Eye on the Cure Podcast | Episode 28: Brian Strem, PhD
22 Jul 2022
Contributed by Lukas
July 22, 2022. Brian Strem, PhD, CEO of Kiora Pharmaceuticals, talks to Ben Shaberman about his company's emerging gene-agnostic small molecule for re...
Eye on the Cure Podcast | Episode 27: Jeff Stern and Sally Temple
08 Jul 2022
Contributed by Lukas
July 8, 2022. Jeff Stern, MD, PhD, and Sally Temple, PhD, co-founders of the Neural Stem Cell Institute, talk with host Ben Shaberman about their disc...
VISIONS 2022 | Your Journey Toward Independent Mobility
07 Jul 2022
Contributed by Lukas
Speakers: Bill and Colleen Carty
VISIONS 2022 | Clinical & Research Updates: Age-Related Macular Degeneration (AMD)
07 Jul 2022
Contributed by Lukas
Speaker: Cathy Bowes Rickman, PhD and James Handa, MD
VISIONS 2022 | Clinical & Research Updates: Rare IRDs
07 Jul 2022
Contributed by Lukas
Achromatopsia, Choroideremia, Blue Cone Monochromacy, Cone-rod Dystrophy and X-linked Retinoschisis. Speakers: Christine Kay, MD and Robert Hufnagel, ...
VISIONS 2022 | Clinical & Research Updates: Retinitis Pigmentosa (RP)
07 Jul 2022
Contributed by Lukas
Speakers: Rachel Huckfeldt, MD, PhD and Jami Kern
VISIONS 2022 | Clinical & Research Updates: Usher Syndrome
07 Jul 2022
Contributed by Lukas
Speakers: Astra Dinculescu, PhD and Jacque Duncan, MD
VISIONS 2022 | Living Life To the Fullest: How Low Vision Occupational Therapy Can Help
07 Jul 2022
Contributed by Lukas
Speaker: Dana Aravich MS, OTR/L
VISIONS 2022 | Blind Athletes Breaking Barriers
07 Jul 2022
Contributed by Lukas
Speakers: Justin Bishop and Becca Meyers
VISIONS 2022 | RD Fund Biotech Overview
07 Jul 2022
Contributed by Lukas
Speaker: Rusty Kelley, PhD, MBA
VISIONS 2022 | Stem Cells in Retinal Disease
07 Jul 2022
Contributed by Lukas
Speaker: Mandeep Singh, MD, PhD
VISIONS 2022 | Gene & Genetic Technologies
07 Jul 2022
Contributed by Lukas
Speakers: Alina Dumitrescu, MD, Erin O'Neil, MD and Peter Quinn, PhD
Eye on the Cure Podcast | Episode 26: Rachel Wong, PhD
24 Jun 2022
Contributed by Lukas
June 24, 2022. Rachel Wong, PhD, professor and chair of the Department of Biological Structure at the University of Washington in Seattle, discusses t...
Eye on the Cure Podcast | Episode 25: Frank Bruni
10 Jun 2022
Contributed by Lukas
June 10, 2022. Frank Bruni, a popular NY Times columnist, book author, and Duke journalism professor, talks with host Ben Shaberman about his eclectic...
Eye on the Cure Podcast | Episode 24: Ash Jayagopal, PhD
06 May 2022
Contributed by Lukas
May 6, 2022. Host Ben Shaberman talks with Ash Jayagopal, chief scientific officer at Opus Genetics, a company launched by the Foundation Fighting Bli...
News | Encouraging Clinical Trial Results for Alkeus’ Stargardt Disease Treatment
02 May 2022
Contributed by Lukas
Alkeus Pharmaceuticals reported that its emerging treatment for Stargardt disease slowed the growth of retinal atrophy – i.e., the area of damage to...
Eye on the Cure Podcast | Episode 23: John Flannery, PhD
22 Apr 2022
Contributed by Lukas
April 22, 2022. John Flannery, PhD, a renowned gene therapy researcher from UC Berkeley and co-founder of Vedere Bio, talks with host, Ben Shaberman, ...
Eye on the Cure Podcast | Episode 22: Judge David Tatel
08 Apr 2022
Contributed by Lukas
April 8, 2022. Host Ben Shaberman chats with Judge David Tatel, who, since 1994, has served on the US Court of Appeals — DC Circuit. He was appointe...
Eye on the Cure Podcast | Episode 21: Katriona Taylor
25 Mar 2022
Contributed by Lukas
March 25, 2022. Jazz singer Katriona Taylor talks with host Ben Shaberman about her journey with Stargardt disease and her new album, Blind Passion, w...
Eye on the Cure Podcast | Episode 20: Dr. Nancy Holekamp
11 Mar 2022
Contributed by Lukas
March 11, 2022. Dr. Nancy Holekamp, a retinal specialist, clinical trial investigator, and key opinion leader in the retinal disease space, discusses ...
Eye on the Cure Podcast | Episode 19: Nieraj Jain, MD
25 Feb 2022
Contributed by Lukas
February 25, 2022. Host Ben Shaberman talks with Nieraj Jain, MD, a retinal surgeon and expert in inherited retinal diseases from Emory on a wide rang...
Eye on the Cure Podcast | Episode 18: Michael Stone
11 Feb 2022
Contributed by Lukas
February 11, 2022. Ben Shaberman talks with Michael Stone, a 17-time Ironman triathlete, about the adventures and challenges of being a prolific athle...
Eye on the Cure Podcast | Episode 17: Tom Reh, PhD
28 Jan 2022
Contributed by Lukas
January 28, 2022. Eye on the Cure host, Ben Shaberman, talks with world-renowned researcher Tom Reh, PhD, who is developing an approach to enable the ...
Eye on the Cure Podcast | Episode 16: Actor Ben Mehl
14 Jan 2022
Contributed by Lukas
January 14, 2022. Podcast host, Ben Shaberman, has a fun chat with Ben Mehl, an actor with Stargardt disease who plays a completely blind librarian on...
News | Ocugen to Launch Clinical Trial for Cross-Cutting RP Gene Therapy
13 Dec 2021
Contributed by Lukas
The clinical trial is for RHO and NR2E3 mutations, but the retinal gene therapy has the potential to benefit people with a variety of other mutated ge...
Eye on the Cure Podcast | Episode 15: Gordon Gund
10 Dec 2021
Contributed by Lukas
December 10, 2021. Gordon Gund, co-founder and chairman emeritus of the Foundation, joins host Ben Shaberman to share reflections on 50 years of fight...
Eye on the Cure Podcast | Episode 14: Michael Kalberer
19 Nov 2021
Contributed by Lukas
November 19. 2021. Michael Kalberer talks with Ben Shaberman about his perspective on living with cerebral palsy and Leber congenital amaurosis as wel...
Eye on the Cure Podcast | Episode 13: Dave Knop, PhD
05 Nov 2021
Contributed by Lukas
November 5, 2021. Ben Shaberman talks with Dave Knop, PhD, vice president of process development at AGTC, about how emerging gene therapies for inheri...
News | FDA Approves Genentech’s Susvimo for Treating Wet AMD
25 Oct 2021
Contributed by Lukas
The US Food & Drug Administration (FDA) has approved Susvimo, Genentech’s port delivery system (PDS) with ranibizumab, for the treatment of wet age-...
Eye on the Cure Podcast | Episode 12: Michael Young, PhD
22 Oct 2021
Contributed by Lukas
October 22, 2021. Michael Young, PhD, from Harvard Medical School, joins host Ben Shaberman to talk about the latest in stem cell research for retinal...
Eye on the Cure Podcast | Episode 11: Silvia Sorensen, PhD
08 Oct 2021
Contributed by Lukas
October 8, 2021. Silvia Sorensen, PhD, an associate professor at the University of Rochester in the Center for Community Health and Prevention, talks ...
Eye on the Cure Podcast | Episode 10: Dr. Naveed Shams, ProQR
24 Sep 2021
Contributed by Lukas
September 24, 2021. Dr. Naveed Shams, chief scientific officer at ProQR, discusses RNA therapies and ProQR's three clinical trials targeting: Leber co...
Eye on the Cure Podcast | Episode 9: Stephen Daiger, PhD
10 Sep 2021
Contributed by Lukas
September 10, 2021. Stephen Daiger, PhD, Director of the Laboratory for Molecular Diagnosis of Inherited Eye Diseases at UT Houston, discusses the cha...
Eye on the Cure Podcast | Episode 8: Ben Shaberman, Genetic Testing
20 Aug 2021
Contributed by Lukas
August 27, 2021. Host Ben Shaberman provides an overview of the Foundation's no-cost genetic testing program for people in the U.S. with inherited ret...
Eye on the Cure Podcast | Episode 7: Bonnie Swenor, MPH, PhD
13 Aug 2021
Contributed by Lukas
August 13, 2021. Host Ben Shaberman talks with Bonnie Swenor, MPH, PhD, Director of the Johns Hopkins Disability Health Research Center, about her jou...
Eye on the Cure Podcast | Episode 6: Drs. Troyk and Lane
30 Jul 2021
Contributed by Lukas
July 30, 2021. Ben Shaberman interviews Drs. Philip Troyk and Frank Lane of the Illinois Institute of Technology about their clinical trial for the In...
Eye on the Cure Podcast | Episode 5: Morten Bonde
16 Jul 2021
Contributed by Lukas
July 16, 2021. Ben Shaberman chats with Morten Bonde, senior art director at Lego Group in Copenhagen and author of the book "Sentenced to Blindness –...
Eye on the Cure Podcast | Episode 4: Jill Dolgin, AGTC
02 Jul 2021
Contributed by Lukas
July 2, 2021. Jill Dolgin, the executive director of patient advocacy at AGTC, talks to Ben about her role in helping patients understand clinical res...
News | AGTC Reports Encouraging Results from Phase 1/2 Gene Therapy Clinical Trial for Achromatopsia
25 Jun 2021
Contributed by Lukas
News | AGTC Reports Encouraging Results from Phase 1/2 Gene Therapy Clinical Trial for Achromatopsia by Foundation Fighting Blindness
Eye on the Cure Podcast | Episode 3: Dr. Daniel Chung
18 Jun 2021
Contributed by Lukas
June 18, 2021. Host Ben Shaberman interviews Dr. Daniel Chung, chief medical officer at SparingVision, which is developing a gene-agnostic therapy to ...
Eye on the Cure Podcast | Episode 2: Sheila Nirenberg, PhD
28 May 2021
Contributed by Lukas
May 28, 2021. Sheila Nirenberg, PhD, a professor at Cornell and founder at Bionic Sight talks with Ben Shaberman about her company's innovative optoge...
Eye on the Cure Podcast | Episode 1: Welcome
14 May 2021
Contributed by Lukas
May 14, 2021. In the inaugural Eye on the Cure podcast, host Ben Shaberman explains why the retina is such a great target for therapy development and ...
News | AGTC Continues to Report Encouraging Data from its Phase 1/2 XLRP Gene Therapy Clinical Trial
10 May 2021
Contributed by Lukas
The company is planning the launch of a Phase 2/3 trial for its XLRP gene therapy
News | Microperimetry Emerging as a Valuable Tool in Measuring Treatment Efficacy in Clinical Trials
10 May 2021
Contributed by Lukas
Precise and Sensitive Outcome Measures are Essential for Getting Vision Treatments through Clinical Trials
News | ARVO 2021 Highlight: CRISPR/Cas9 Therapy Emerging for Dominant RP Caused by RP1 Mutations
05 May 2021
Contributed by Lukas
Gene-editing approaches are often better suited for autosomal dominant retinal diseases than gene replacement therapies
News | ARVO 2021 Highlight: Update on Clinical Trial of jCyte’s Cellular Therapy for RP
03 May 2021
Contributed by Lukas
Cellular treatment provided significant improvements in visual acuity for subpopulation of patients with better vision
News | SparingVision to Acquire Therapy for Resurrecting Dormant Cones for Vision Restoration
26 Apr 2021
Contributed by Lukas
The gene-agnostic approach shows promise for people with late-stage RP and related diseases.
Beacon Story | Ellen Gould | My Big Break
21 Feb 2021
Contributed by Lukas
Beacon Story | Ellen Gould | My Big Break by Foundation Fighting Blindness
Beacon Story | Tracy Minish | Five Generations
20 Feb 2021
Contributed by Lukas
Beacon Story | Tracy Minish | Five Generations by Foundation Fighting Blindness
Beacon Story | Charlie Kramer | Cane Signals
20 Feb 2021
Contributed by Lukas
Beacon Story | Charlie Kramer | Cane Signals by Foundation Fighting Blindness
Beacon Story | Dr. Shannon Boye | It's Possible
19 Feb 2021
Contributed by Lukas
Beacon Story | Dr. Shannon Boye | It's Possible by Foundation Fighting Blindness
Beacon Story | Carolyn Covington | Life After Blindness
18 Feb 2021
Contributed by Lukas
Beacon Story | Carolyn Covington | Life After Blindness by Foundation Fighting Blindness