Owen Tripp: Why Can't I Find and Get to the Right Doctor?

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Eric Topol 0:06
Hello, this is Eric Topol from Ground Truths, and I'm delighted to welcome Owen Tripp, who is a CEO of Included Health. And Owen, I'd like to start off, if you would, with the story from 2016, because really what I'm interested in is patients and how to get the right doctor. So can you tell us about when you lost your hearing and your right ear back, what, nine years ago or so?
Owen Tripp 0:38
Yeah, it's amazing to say nine years, Eric, but obviously, as your listeners will soon understand, a pretty vivid memory in my past. So I sort of had been working as I do and noticed sort of a loss of hearing in my right ear. I'd never experienced any hearing loss before. And I went twice actually to a sort of national primary care chain that now owned by Amazon actually. And they described it as eustachian tube dysfunction, which you know is a pretty benign common thing that basically meant that sort of my tubes were blocked and that I needed to have some drainage. They recommended Sudafed to no effect. And it was only a couple of weeks later where I was walking actually some of the senior medical team at my company down to the San Francisco Giants game.
Owen Tripp 1:44
And I was describing this experience of hearing loss. And I said I was also losing a little bit of sensation in the right side of my ear. And they said, that is not eustachian tube dysfunction. And, well, I can let the story unfold from there. But basically... My colleagues helped me quickly put together a plan to get this properly diagnosed and treated. The underlying condition is called vestibular schwannoma, even more commonly known as an acoustic neuroma. So a pretty rare, benign brain tumor that exists on the vestibular nerve. And it would have cost my life had it not been treated.
Eric Topol 2:27
Yeah, so from what I gather, you saw an ENT physician, but that ENT physician was not really well-versed in this condition, which is, I guess, a bit surprising. And then eventually you got to the right ENT physician in San Francisco, is that right?
Owen Tripp 2:49
Well, the first doctor was probably an internal medicine doctor. And I think it's fair to say that he had probably not seen many, if any, cases. By the time I reached an ENT, they were interested in working me up for what's known as SSNHL, Sudden Sensory Neural Hearing Loss. which is basically a fancy term for you lose hearing for a variety of possible pathologies and reasons, but you go through a process of differential diagnosis to understand what's actually going on. You know, by the time that I reached that ENT, you know, the audio tests had showed that I had significant hearing loss in my right ear. And what an MRI would confirm was this mass that I just described to you, which was quite large.
Owen Tripp 3:44
It was already about a centimeter large and growing into the inner ear canal.
Eric Topol 3:49
Yeah. So I read that your Stanford brain scan suggested it was about size of a plum and that you then got the call that you. had this mass in your brain, a brain tumor, a brain stem tumor. So obviously that's a delicate operation to undergo. So the first thing was getting a diagnosis, and then the next thing was getting the right surgeon to work on your brain to resect this. So how did you figure out who was the right person? Because there's only a few thousand of these operations done every year, as I understand it.
Owen Tripp 4:27
That's exactly right. Yeah, very few. And without sort of putting your listeners to sleep too early in our discussion, what I'll say is that, you know, there are a lot of ways that you can actually do this. There are very few cases. Any any approach really requires that. either shrinking or removing that tumor entirely, you know, my size of tumor meant it was really only going to be a surgical approach. And there I had to decide amongst multiple potential approaches. And this is what's interesting, Eric. You know, you started saying you wanted to talk about the patient experience. You have to understand that I'm somebody, well, not a doctor. I lead a very large healthcare company. We provide millions of visits and services per year on very complex medical diagnoses down to more standard day-to-day fare.

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