Disabilities Research & Policy with Kenneth Bence

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Health Chatter 57 min 3 speakers 3 chapters transcribed 2 months ago
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Stan 0:15
Hello, everybody. Welcome to Health Chatter. We're going to do another show today on disabilities, but with a different twist. And we've got a great, great guest with us. We always have great guests, but Ken certainly is a wonderful colleague. and a good guest to talk about all the issues around disabilities, especially from a research and political standpoint. We've got a great crew, Mandy Levine-Wolf, Aaron Collins, Deandra Howard, Ariana Tordoff, Sheridan Nygaard. And of course there is Matthew Campbell who does all our production and gets it out to you, the listening audience. Clarence Jones is a partner in crime here. And unfortunately, he can't be with us today. He's doing a presentation. And actually in his presentation, he's recognizing health chatter.
Stan 1:10
So he says hi to everybody. And then there's Dr. Barry Baines, who provides our medical expertise par excellence. So thank you, Barry, for being with us. Ken, thank you. Human Partnership is our sponsor. You can check them out at humanpartnershipalliance.org. Great community health organizations. I actually, I checked their website just a couple of days ago. And wow, they do some amazing things that it's hard to keep up with, frankly. And Clarence is kind of the key person in many of those initiatives. So check them out. humanpartnershipalliance.org. And of course, check us out at healthchatterpodcast.com. You can see all our shows, read them via our transcripts and or listen to them. So check us out as well.
Stan 2:15
So today we've got a great guest. And boy, I tried to guess who, but I'm not really good at guessing anymore. Um, how long I've known, known you Ken, but, um, Ken bounce has been in the, in the healthcare field. Um, let's see if I can, I, if I can put this all together, I know he was at, he was at Medica and, uh, he was the president of the American or not the American, the Minnesota public health association. And, um, He was on our advisory council for the Cardiovascular Health Alliance at the Minnesota Department of Health when I was there.

What is the scope and mission of ARRM and Ken Bence’s role?

Stan 3:03
But now he's the Director of Research and Analysis and Policy for the Association of Residential Resources in Minnesota. It's A-R-R-M, Nonprofit Association Association. of over 200 providers, businesses, and advocates dedicated to leading the advancement of home and community-based services, supporting those with disabilities. And we're gonna really focus in on disabilities with a little twist that I'm sure Ken can provide for us. It's really great to have you. It's really, and it's good to connect as we always do somehow or other.
Kenneth Bence 3:52
It's really great to be here, Stan.
Stan 3:53
Thanks. Yeah, thanks for being with us today. So, all right, let's talk about disabilities. You know, first of all, you know what really struck me as I started to think about this is what really defines a disability? For instance, does it have to be chronic? Or what about an acute situation where you are, quote, disabled? So maybe you can help us kind of clarify what truly defines a disability?
Kenneth Bence 4:34
Well, it can be broad and it can be acute, as you say. When a person has an event that happens that then limits their physical or mental or emotional capability to live what their normal life would otherwise be. And so, you know, as you say, a person can be temporarily disabled following an injury or an accident or something. And I believe the Department of Transportation allows them to have a handicap sticker for their car for a period of time under those situations. But most commonly what we think about are those who are the chronically or the permanently disabled, whether it's physically or emotional and developmentally disabled, intellectually disabled. And so in the home and community-based sector where ARM works, it is really the permanently disabled that we focus on and what their needs are and what kind of supports they require to live a life that is fulfilling for them.
Stan 5:37
So... Why don't you tell us what ARM, A-R-R-M, actually does? How long they've been around? What's their focus and their aim? And for that matter, how do people with disabilities connect with the organization?

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