Empowering Voices: Dyscovering Aphasia Journeys
episode
On the tip of my tongue - talking about Aphasia
38 min
4 speakers
6 chapters
transcribed 1 month ago
Transcript
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Transcript generated automatically by AI and may contain errors.
What is aphasia and why is awareness so low in the UK?
Ви проводи да протекід по плоти. Convey their opinions, have a debate. Have a good conversation.
Hi. Welcome everybody and we hope you enjoy this podcast called On the Tip of My Tongue. Now I'm Rob Edwards. And I'm Jonathan Hierons. And this podcast is a follow-up to a film which Jonathan made about aphasia. So what is aphasia? Well, it's a condition caused by some kind of injury to the brain, which is often could be a stroke, or could be just falling off a bike. And it affects your ability to use language in all its forms speaking, writing, reading, sending text, whatever. 350,000 people in the UK suffer from a debilitating condition called aphasia. Fewer than half this number suffer from Parkinson's, and yet Most people have heard of Parkinson's whilst almost nobody has heard of Aphasia. Before we get started, I'd like to tell you about an opportunity to reach a really engaged audience.
If your organisation supports people affected by stroke, aphasia, brain injury or disability, or if you simply want to align your brand with meaningful conversations, we'd love to hear from you. On the Tip of My Tongue has been downloaded more than a hundred thousand times by listeners who genuinely care about the topics we cover. We offer affordable in-podcast ads and sponsored episode opportunities, and because we read many of the adverts ourselves, your message feels like part of the conversation rather than an interruption. If you'd like to introduce your organization to our growing community, Visit HTTP colon double forward slash dot tip of my tonguefilm dot com and click partnership opportunities.
Now let's get on with today's episode.
My name is Julie Samuel. I'm the head of service and the lead speech and language therapist for Discover. I'm going to introduce the colleagues on the screen here. My name's Caroline MacDonald. I am the coordinator for Discover's Aphasia Ambassador Group. So I help support our ambassadors who are our members to go out into the community and Give talk. to spread awareness about aphasia and the work that Discover does to support them.
How does Dyscover support people with aphasia through conversation groups?
So I'm here in that capacity today. I'm also a speech and language therapy assistant, so I run some of our groups. Thank you, Caroline.
And Sarah? Hi I'm Sarah, I'm a Discover member. Um I I have been coming for six years to Discover. Brilliant. Thanks, Sarah. And Neo?
Uh my name is Neil. I love the uh uh people uh but uh uh uh uh hard uh uh speaking. Yeah.
Yeah. Brilliant. Thanks, Neil. And Dina.
Dina Graham and um thank you yes.
Brilliant. Thanks, Dina.
So let's talk a little bit about um Discover.
So we are a specialist charity. We started over thirty years ago. Started by a wonderful lady who is still very involved, our president and founder, still very much involved with Discover. She's a speech and language therapist and recognised there was a need for long term support, even all those years ago. Um, once the NHS has done their wonderful input, it's then finding some help for the many years thereafter. So she started communication groups, which we continue to do. Um, we do them both face to face and online. And basically they are opportunities for people with aphasia to get together, have conversations, supported and facilitated by speech and language therapy assistants and trained volunteers.
That's what we do. We provide that protected environment for people to um, convey their opinions, have a debate. Have a good conversation.
So how many members have you got at the moment then?
Uh we usually run around about the hundred mark. Very slightly. We run uh eight different groups um plus a reading group as well. Um, and obviously the support for the families too. So not just those sort of a hundred members, but the ripple effect, if you like, of significant others as well.
So the the actual groups themselves, do they do different things? Uh uh is that is an art group or that sort of thing?
The format is basically similar. They're all conversation groups. Um, but each week we have a topic Um, for example, this last week we're talking about ambition.
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Chapters
6 chapters
1
What is aphasia and why is awareness so low in the UK?
0:00–2:48
2
How does Dyscover support people with aphasia through conversation groups?
2:48–8:35
3
What are the personal stroke stories and recovery journeys of Sarah, Neil and Deena?
8:35–16:10
4
How does Dyscover help members overcome long‑term challenges like fatigue and noise?
16:10–24:21
5
What roles do ambassadors play and how does public speaking boost confidence?
24:21–36:55
6
How are online groups expanding reach and what impact has COVID had on delivery?
36:55–38:57