SMA News & Perspectives
Episodes
#156: Maylan Chavez and Sory Rivera: Friends and podcast hosts with SMA
16 Feb 2026
Contributed by Lukas
In episode 156, host Kevin Schaefer talks with Maylan Chavez and Sory Rivera, two friends with SMA who host the “Access Granted” podcast together....
#155: Jasmine Jackson, digital creator and mother with SMA
19 Dec 2025
Contributed by Lukas
In episode 155, host Kevin Schaefer talks with Jasmine Jackson from Vancouver, Washington. Jasmine is a development and marketing manager, digital cre...
#154: Coach Damon Vincent, adaptive fitness specialist
17 Nov 2025
Contributed by Lukas
In episode 154, host Kevin Schaefer talks with Coach Damon Vincent from Lafayette, Louisiana. Damon is an adaptive fitness specialist who works with c...
#153: Annie Heathcote, Entrepreneur and Speaker with SMA
25 Sep 2025
Contributed by Lukas
In episode 153, host Kevin Schaefer talks with Annie Heathcote from Mazomanie, Wisconsin. Annie is a multi-business owner, social media influencer, au...
#152: Kamil Goungor, Disability activist
28 Aug 2025
Contributed by Lukas
In episode 152, host Kevin Schaefer talks with Kamil Goungor from Athens, Greece. Kamil, who has SMA type II, works for the European Network on Indepe...
#151: Anton Paras, marketing executive in digital health
30 Jul 2025
Contributed by Lukas
In episode 151, host Kevin Schaefer talks with his colleague, Anton Paras. Anton is a marketing executive for Bionews Inc., the publisher of SMA News ...
#150: Jenna and Tanya Vega share their love story
01 Jul 2025
Contributed by Lukas
In episode 150, host Kevin Schaefer talks with Jenna and Tanya Vega from Palm Springs, California. Jenna and Tanya discuss their seven years together,...
#149: Jessica Keogh, Ed. D., Educator and Life Coach With SMA
21 May 2025
Contributed by Lukas
In episode 149, host Kevin Schaefer talks with Dr. Jessica Keogh from Philadelphia, Pennsylvania. An educator, disability advocate, and certified life...
#148: Ashley Fox and Madeline Engel discuss friendship and caregiving
16 Apr 2025
Contributed by Lukas
In episode 148, host Kevin Schaefer talks with Ashley Fox and Madeline Engel from California. Ashley has SMA, and Madeline became her best friend and ...
#147: Brandi Lewis, rare disease advocate and speaker
27 Feb 2025
Contributed by Lukas
In episode 147, host Kevin Schaefer talks with Brandi Lewis from Birmingham, Alabama. A blood disorder awareness educator, TEDx speaker, writer, and n...
#146: TJ Wall, graduate student with SMA
14 Jan 2025
Contributed by Lukas
In episode 146, host Kevin Schaefer talks with TJ Wall from Texarkana, Texas. TJ is working on his master’s in education at Texas A&M University, an...
#145: Carrie Manriquez, Mother of adult son with SMA
03 Dec 2024
Contributed by Lukas
In episode 145, host Kevin Schaefer talks with Carrie Manriquez from Sacramento, CA. Carrie is an elementary school principal, and her 24-year-old son...
#144: Doug McCullough, Advocate and Author With SMA
22 Oct 2024
Contributed by Lukas
In episode 144, host Kevin Schaefer talks with Doug McCullough from central New Jersey. The author of “A Billion People in the Shadows,” a new boo...
#143: Cory Lee, Travel Blogger and Influencer With SMA
10 Sep 2024
Contributed by Lukas
In episode 143, host Kevin Schaefer talks with Cory Lee from Lafayette, Georgia. A renowned expert on disabled traveling, he has visited all seven con...
#142: Savannah and Will Huff, Interabled Couple
06 Aug 2024
Contributed by Lukas
In episode 142, host Kevin Schaefer talks with Savannah and Will Huff from Thomasville, Georgia. Savannah, who has SMA type 3, met Will in 2018. Liste...
#141: Quinn Bucher, Theater Student With SMA
25 Jun 2024
Contributed by Lukas
In episode 141, host Kevin Schaefer talks with Quinn Bucher (he/they) from Athens, Ohio. A student at Earlham College studying theater, he talks about...
#140: Lucy Trevino, Academic and Advocate
06 Jun 2024
Contributed by Lukas
Note: This podcast includes thoughts about suicide. If you are struggling with thoughts of suicide, please contact the Suicide Prevention Lifeline in ...
#139: Dianna Warren, Ms. Wheelchair USA Ambassador
07 May 2024
Contributed by Lukas
In episode 139, host Kevin Schaefer talks with Dianna Warren from Canton, Ohio. Dianna is an ambassador for Ms. Wheelchair USA, and for 32 years she r...
#138: Nolan and Blake Shofner, Brother Entrepreneurs
09 Apr 2024
Contributed by Lukas
In episode 138, host Kevin Schaefer talks with Nolan, who lives with SMA, and Blake Shofner from Princeton, Illinois. The brothers discuss their dyn...
#137: Jared Wayland: Graphic Designer and Music Connoisseur
05 Mar 2024
Contributed by Lukas
In episode 137, host Kevin Schaefer talks with Jared Wayland from Ontario. Jared discusses growing up with SMA type 3 and becoming a husband and fathe...
#136: Shaniqua Granby Discusses Identity and Community
06 Feb 2024
Contributed by Lukas
In episode 136, host Kevin Schaefer talks with returning guest Shaniqua Granby as she shares life updates and discusses how she navigates struggles an...
#135: Ryan Kinnear, Fisherman and Hunter With SMA
09 Jan 2024
Contributed by Lukas
In episode 135, host Kevin Schaefer talks with Ryan Kinnear from Glendale, Arizona. An avid fisherman and outdoor enthusiast, he uses assistive techno...
#134: Dr. Edward Smith, Neurologist and SMA Specialist
05 Dec 2023
Contributed by Lukas
In episode 134, host Kevin Schaefer talks with Dr. Edward Smith from Hillsborough, North Carolina. Dr. Smith spent the majority of his career as a cli...
#133: Rebecca Mulhall, Parent of Twins With SMA
07 Nov 2023
Contributed by Lukas
In episode 133, host Kevin Schaefer talks with Rebecca Mulhall from Cleveland, Ohio. Rebecca has three kids, and her youngest two are twins with SMA. ...
#132: Collin Pollock, Business Owner With SMA
04 Oct 2023
Contributed by Lukas
In episode 132, host Kevin Schaefer talks with Collin Pollock from Garden Grove, California. Collin and his wife, Kyla, run a barbeque sauce business ...
#131: Candis Welch, Disability Advocate and Ms. Wheelchair California
05 Sep 2023
Contributed by Lukas
In episode 131, host Kevin Schaefer talks with Candis Welch from Los Angeles, California. A disability advocate, DEI practitioner, and consultant, Can...
#130: Andrew Cherico, College Student With SMA
01 Aug 2023
Contributed by Lukas
In episode 130, host Kevin Schaefer talks with Andrew Cherico from Orlando, Florida. Andrew is a sophomore at the University of Central Florida and is...
#129: Rylie Erbacher, Rare Artist With SMA
05 Jul 2023
Contributed by Lukas
In episode 129, host Kevin Schaefer talks with Rylie Erbacher and her mom, Stephanie, from Iowa. Rylie has SMA, and she was recently recognized as one...
#128: Jenna Coburn, Social Media Manager, LGBTQIA+ and Disability Advocate
07 Jun 2023
Contributed by Lukas
In episode 128, host Kevin Schaefer talks with Jenna Coburn from Palm Springs, California. Jenna is a social media and marketing manager for Access Me...
#127: Kevan Chandler, author, traveler, and nonprofit founder
02 May 2023
Contributed by Lukas
In episode 127, host Kevin Schaefer talks with Kevan Chandler, founder of the nonprofit organization We Carry Kevan. In 2016, Kevan used an adaptive b...
#126: Janelle Fiesta and Antoine Vuong, interabled couple
04 Apr 2023
Contributed by Lukas
In episode 126, host Kevin Schaefer talks with Janelle Fiesta and Antoine Vuong from Honolulu, Hawaii. They are an interabled couple who met when they...
#125: Brooklyn Nichols, child author with SMA, and her mother, Keanna
07 Mar 2023
Contributed by Lukas
In episode 125, host Kevin Schaefer talks with Brooklyn and Keanna Nichols from Athens, Alabama. Brooklyn is a middle schooler with SMA who co-authore...
#124: A conversation with an interabled couple, Steve and Brittany Bingman
21 Feb 2023
Contributed by Lukas
In episode 124, host Kevin Schaefer talks with Steve and Brittany Bingman from Mount Juliet, Tennessee. Steve is an administrative officer at the U.S....
#123: A Conversation With LaMondre Pough and Gabrielle Runyon, Two Black Disability Advocates
07 Feb 2023
Contributed by Lukas
In episode 123, host Kevin Schaefer talks with returning guests LaMondre Pough and Gabrielle Runyon, two Black Disabled advocates. In recognition of B...
#122: A Conversation With Rare Disease Advocates
17 Jan 2023
Contributed by Lukas
In episode 122, host Kevin Schaefer talks with three of his coworkers from BioNews Inc., the parent company of SMA News Today. Brittany Foster is BioN...
#121: Pidgie, Singer and Songwriter With SMA
04 Jan 2023
Contributed by Lukas
In episode 121, host Kevin Schaefer talks with Patricia Panzarino, who goes by her musician name, Pidgie. Pidgie is a singer and songwriter from Cape ...
#120: Dom Evans, Activist and Filmmaker
20 Dec 2022
Contributed by Lukas
In episode 120, host Kevin Schaefer talks with Dom Evans (he/they), LGBTQ and disability activist and filmmaker. Dom discusses his background, growing...
#119: Chaz Hayden Discusses His Debut Novel
06 Dec 2022
Contributed by Lukas
In episode 119, host Kevin Schaefer talks with Chaz Hayden, a young adult author with SMA. Chaz’s debut novel, The First Thing About You, tells the ...
#117: Delphine Andrews and Kevin Davis, Interabled Couple
01 Dec 2022
Contributed by Lukas
In episode 117, host Kevin Schaefer talks with Delphine Andrews and Kevin Davis from North Carolina. Delphine has SMA and she began dating Kevin in ea...
#118: Aging and SMA
22 Nov 2022
Contributed by Lukas
In episode 118, host Kevin Schaefer talks with work colleagues Michael Morale and DeAnn Runge about aging and SMA. They start by discussing Scholar Ro...
#116: Shaniqua Granby, Law Professional With SMA
18 Oct 2022
Contributed by Lukas
In episode 116, host Kevin Schaefer talks with Shaniqua Granby from Virginia Beach, Virginia. Shaniqua is an equal employment opportunity specialist, ...
#115: Jose Flores, Author and Motivational Speaker
04 Oct 2022
Contributed by Lukas
In episode 115, host Kevin Schaefer talks with Jose Flores from Miami, Florida. Jose is a bestselling author and motivational speaker who lives with S...
#114: Daniele Johnson, SMA Mom and Advocate
20 Sep 2022
Contributed by Lukas
In episode 114, host Kevin Schaefer talks with Daniele Johnson from Evansville, Indiana. Daniele and her husband’s youngest son, Anthony, has SMA ty...
#113: Dustin Swafford, Power Soccer Coach and Player
06 Sep 2022
Contributed by Lukas
In episode 113, host Kevin Schaefer talks with Dustin Swafford from Georgia. Dustin has been playing and coaching a power soccer team for years, and h...
#112: Lexi Villa, Social Media Influencer and Disability Advocate
16 Aug 2022
Contributed by Lukas
In episode 112, host Kevin Schaefer talks with Lexi Villa from Torrance, California. Lexi works in retail and shares her life with SMA on social media...
#111: Steven Verdile, Graphic Designer and Disabled Creative
02 Aug 2022
Contributed by Lukas
In episode 111, host Kevin Schaefer talks with Steven Verdile, a graphic designer and media creator from New York City. Steven is also the founder and...
#110: Author Ben Mattlin Discusses Disability Pride Month
19 Jul 2022
Contributed by Lukas
In episode 110, host Kevin Schaefer welcomes back to the podcast Ben Mattlin, an author and disability rights advocate. His upcoming book is called “...
#109: 2022 Cure SMA Conference Recap
05 Jul 2022
Contributed by Lukas
In episode 109, host Kevin Schaefer chats to several attendees from this year’s Cure SMA conference in Anaheim, California. Ashley Fox, Ryan Manriqu...
#108: A Mother Discusses the Approval of Evrysdi for Infants With SMA
21 Jun 2022
Contributed by Lukas
In episode 108, host Kevin Schaefer talks with Logan Nantz from southern Indiana. Logan’s daughter Hayden is two years old and has SMA. They discuss...
#107: A Conversation About Mental Health With LGBTQ+ and Disability Advocates
07 Jun 2022
Contributed by Lukas
In episode 107, host Kevin Schaefer talks about mental health with LGBTQ+ and disability advocates. Panelists include Ali Ramos (she/her), licensed so...
#106: A Conversation About Women’s Mental Health With Rare Disease and Disability Advocates
17 May 2022
Contributed by Lukas
In episode 106, host Kevin Schaefer talks with a group of rare disease and disability advocates about women’s mental health. Panelists include Charl...
#105: A Conversation About Men’s Mental Health With Rare Disease and Disability Advocates
03 May 2022
Contributed by Lukas
In episode 105, host Kevin Schaefer talks with rare disease and disability advocates about men’s mental health. Panelists include Paris Dancy, licen...
#104: Interview With Ben Lou, Mathematics Student With SMA
19 Apr 2022
Contributed by Lukas
In episode 104, host Kevin Schaefer talks with Ben Lou from San Diego, California. Ben is a student at MIT, planning to double major in math and physi...
#103: Clinical Trials and Advocacy with Stephen Mikita and Arya Singh
05 Apr 2022
Contributed by Lukas
In episode 103, host Kevin Schaefer talks with Stephen Mikita and Arya Singh, two individuals with SMA who have years of experience with clinical tria...
#102: Interview with Amber-Joi Watkins, SMA Mom and Advocate
15 Mar 2022
Contributed by Lukas
In this episode, host Kevin Schaefer talks to Amber-Joi Watkins, an SMA mom and advocate. Amber-Joi talks about raising her daughter, Celine, and beco...
Using Ultrasound May Help in SBMA Diagnosis & Dealing With Hospital Stays
02 Mar 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how men with spinal and bulbar muscular atrophy (SBMA) had abnormally small nerve...
#101: Interview with John Milligan, Asuragen Scientist & SMA Testing Expert
01 Mar 2022
Contributed by Lukas
In this episode, host Kevin Schaefer talks with John Milligan from Austin, Texas. John is a Senior Manager in RND at Asuragen, a biotechnology company...
SMA Screening Now Available to 87% of Newborns in US & Olympics Lacked Disability Representation
23 Feb 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how screening for spinal muscular atrophy is now available to 87% of all newborns...
Evrysdi for Infants Under 2 Months Old Given FDA Priority Review & Adapting to a New Wheelchair
16 Feb 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the FDA is reviewing a request that the use of Evrysdi, an oral and at-home S...
#100: Interview with Gabrielle Runyon, College Student with SMA and Disability Advocate
15 Feb 2022
Contributed by Lukas
In episode 100, host Kevin Schaefer talks with Gabrielle Runyon (she/her) from Louisville, Kentucky. Gabrielle is a sophomore at the University of Lou...
#99: SMA and Motherhood
01 Feb 2022
Contributed by Lukas
In episode 99, host Kevin Schaefer talks with two mothers from the SMA community. Trudy Citovic lives in Oregon, and her daughter Alina has SMA. As ...
Spine Surgery Effective in SMA Type 1 Children & Mentally Preparing For Surgery
27 Jan 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how surgery to correct kyphoscoliosis — an abnormal curvature of the spine foun...
Wheelchair Hockey Linked to Physical, Psychological Gains & Preserving Privacy When Living with SMA
24 Jan 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads an article about how men with spinal muscular atrophy or Duchenne muscular dystrophy ...
Scholar Rock Shares Design of Phase 3 Trial Testing of Apitegromab & Staying Organized With SMA
20 Jan 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock's global apitegromab trial, likely to open next year, will test its ...
#98: How to Manage Caregivers, a Chat with SMA Contributors DeAnn Runge and Michael Morale
18 Jan 2022
Contributed by Lukas
In episode 98, host Kevin Schaefer talks with fellow SMA News Today contributors about hiring and managing caregivers. Listen as Kevin talks with DeAn...
Spinraza May Restore Development of Motor Neurons & Why Finding Reliable SMA Carers Is Not Easy
17 Jan 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discuses how a study in symptomatic SMA children suggests Spinraza also works to return dev...
Son With SMA Inspires Character on ‘Ordinary Joe’ TV Show & How SMA Can Shape Creativity
13 Jan 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge reads an article about John Gluck, who has a type of muscular dystrophy, portrays versions o...
Evrysdi May Be Available in Early 2022 to Eligible UK Patients &Modifying a Wheelchair for SMA Needs
10 Jan 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how The National Institute for Health and Care Excellence has recommended that Ev...
Spinraza Improves Hand Dexterity in SMA Type 2 Children & Achieving Ambitions with SMA
06 Jan 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinraza improved fine manual dexterity in both hands of five children with S...
#97: Interview with Ali Ramos, a Social Worker and Disability and LGBTQ+ Activist.
04 Jan 2022
Contributed by Lukas
In episode 97, host Kevin Schaefer talks with Ali Ramos (she/her) from Amarillo, Texas. Ali is a licensed social worker and activist, focusing on both...
Spinraza Delays Do Not Directly Affect Children in Italy & Making Goals with SMA
03 Jan 2022
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads a news article on how the delays in Spinraza treatment due to the COVID-19 pandemic d...
Saliva Samples May Help Diagnose SMA & Moving Into a New Home with SMA
30 Dec 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how a study showed for the first time that genetic analysis of dried saliva spots...
Poor Spinraza Adherence Leads to More Illness, Healthcare Costs & December Can Be Bittersweet
27 Dec 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how not having Spinraza therapy as prescribed – called treatment non-adherence...
Treatment Delays May Be Less Important Than Family Support & Cherishing Togetherness During Holidays
23 Dec 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how delays of Spinraza treatment due to COVID-19 seem to affect children's funct...
Phase 3 Trial of Apitegromab on Track for This Year & Managing Technological Issues With SMA
20 Dec 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses Scholar Rock plans to initiate a pivotal trial of its muscle-targeted therapy in ...
Neurofilaments and Nerve-muscle Test Show SMA Severity & SMA Adults Struggle to Access Evrysdi
16 Dec 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses an article about how blood levels of neurofilaments and the results of a nerve-mu...
#96: Chat with SMA Columnist Halsey Blocher and her Mother & Caregiver, Heather Dye
14 Dec 2021
Contributed by Lukas
In this episode, host Kevin Schaefer talks with Halsey Blocher and Heather Dye from Fort Wayne, Indiana. Halsey is a columnist for SMA News Today, and...
Novartis Applauds Move to Reimburse Families for Zolgensma & Making Connections with SMA
13 Dec 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Novartis Pharmaceuticals Canada applauds the province of Quebec for its move ...
Acute Liver Failure Warning Added to Zolgensma Label & Time Management and SMA
09 Dec 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how the U.S. FDA has added acute liver failure to the list of concerns with use o...
Oral SMA Therapy Is Ideal and Aids Motor Skills and Breathing & Why No Changes in SMA is Good
06 Dec 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how better/stable motor function and breathing, along with oral use, is ranked hi...
#93: Interview With Garrett Lerner, Co-creator and Executive Producer of NBC Series “Ordinary Joe”
02 Nov 2021
Contributed by Lukas
In episode 93, host Kevin Schaefer talks with Garrett Lerner from Los Angeles, California. Garrett is the co-creator and co-showrunner of the NBC dram...
Phase 3 Apitegromab Trial Planned for Non-ambulatory Types 2 And 3 & Latest Topics on Our Forums
28 Oct 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses an article on how Scholar Rock plans to initiate a Phase 3 trial of apitegromab i...
Neurofilament Blood Levels Likely to Predict Treatment Response in SMA
25 Oct 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a news article on how blood levels of phosphorylated neurofilament heavy chain, n...
Quality of Life Survey Aims to Help Inform SMA Community Needs & Situations That Could’ve Gone Wrong
21 Oct 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads the SMA News Today article, “New Quality of Life Survey Aims to Help Inform SMA Com...
#92: Discussing Disability and Employment
19 Oct 2021
Contributed by Lukas
In episode 92, host Kevin Schaefer talks with fellow SMA News Today contributors to discuss each other’s work experiences. October is recognized in ...
Pre-symptomatic Infants Retain Swallowing Ability in Evrysdi Trial
18 Oct 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, reads an article on how pre-symptomatic infants with SMA have retained the ability to swall...
Spinraza RESPOND Trial Enrolling Children Not Helped by Zolgensma
14 Oct 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Spinal Muscular Atrophy (SMA) children not helped by Zolgensma, are being enr...
Low Bone Density Puts SMA Children in China at Risk for Fractures & DeAnn Runge's Favorite Hobbies
11 Oct 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how low bone density puts Spinal Muscular Atrophy (SMA) children in China at risk...
Certain Abilities Decline in SMA Children Unable to Walk & Gaming to Find Accessibility
07 Oct 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how certain abilities decline in Spinal Muscular Atrophy (SMA) children who are u...
#91: Interview with Blake Watson, Web Designer and Developer
05 Oct 2021
Contributed by Lukas
In episode 91, host Kevin Schaefer talks with Blake Watson from Byram, Mississippi. Blake is a web designer and developer. He is currently a member of...
Trial of Spinraza at High Dose for Patients Who Have Used Evrysdi & Dealing With Your Period
04 Oct 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a trial planned of Spinraza at high dose in Spinal Muscular Atrophy (SMA) patient...
Blood NfL Levels May Mark SMA Severity, Therapy Efficacy in Very Young
30 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how blood neurofilament light chain (NfL) levels may mark Spinal Muscular Atrophy...
Variant in Androgen Receptor Might Be Useful in Treating SBMA
27 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a variant of an androgen receptor protein which may be useful in treating Spinal ...
Cure SMA And Cytokinetics Renew Joint Efforts to Raise Funds and Awareness
23 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how Cure SMA and Cytokinetics renew their joint efforts to raise funds and awaren...
#90: Interview With Judy Heumann, Disability Rights Activist
21 Sep 2021
Contributed by Lukas
In episode 90, host Kevin Schaefer talks with Judy Heumann, who’s originally from Brooklyn, New York. A pioneer of the disability rights movement, s...
SMA Caused by Mutation in ASAH1 Gene Reported in Romania
20 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses a first-ever case in Romania of Spinal Muscular Atrophy (SMA) caused by a mutatio...
2 SMN2-targeting Therapies Work Better Than 1 in Mouse Model
16 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how, according to a mouse model, two SMN 2 targeting therapies work better than o...
Indigenous Groups in Canada May Have Highest Rate of SBMA in World
13 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses indigenous groups in Canada having the highest rate of spinal and bulbar muscular...
Mothers Want to Improve Children’s Quality of Life & Making Friends as an Adult With SMA
09 Sep 2021
Contributed by Lukas
SMA News Today’s multimedia associate, Price Wooldridge, discusses how mothers of Spinal Muscular Atrophy (SMA) children and adolescents what to imp...
#89: Interview with Carole St-Laurent, A Children’s Author With SMA
07 Sep 2021
Contributed by Lukas
In episode 89, host Kevin Schaefer talks with Carole St-Laurent from Quebec, Rimouski. Carole is the author of multiple children’s books, for which ...