Navigating complex medical issues: one family's story of advocacy and hope

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Recorded18 Feb 2023

Publisherkevinmd.libsyn.com ↗

Handlerec:6196899

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In this episode, we have a special guest, Laura Fernando, a patient advocate, who shares her heart-wrenching story of her daughter Lily's medical journey with COVID-19 and other health conditions. Joining her and Lily is Linda Bluestein, an integrative medicine physician. Lily was a healthy 12-year-old when she contracted COVID-19 in June 2020. Despite recovering from the initial symptoms, her daughter never fully regained her health. She later contracted a tick-borne illness, and her health declined rapidly. Despite working hard in physical and occupational therapy, her daughter's health worsened when she contracted COVID-19 a second time in January 2022. Laura shares the struggles of finding a physician who understood her daughter's unique and complex medical needs and how one physician's actions led to a traumatic experience for her daughter and family. But, they eventually found hope and healing with an autonomic specialist team of a neurologist and a gastroenterologist who believed in her daughter and took the time to listen to their narrative and check her previous medical appointments. Through this episode, the guests discuss the importance of finding the right physician, advocating for yourself and your loved ones in the health care system, and the impact of trauma on the patient's and their family's mental and emotional well-being. Tune in to hear an inspiring story of hope and healing and how one family's perseverance led to a brighter future for their daughter. Laura and Lily Fernando are patient advocates. Linda Bluestein is an integrative medicine physician. They share their stories and discuss the KevinMD article, "My daughter and COVID: a tale of 3 doctors." The Podcast by KevinMD is brought to you by the Nuance Dragon Ambient eXperience. With a growing physician shortage, increasing burnout, and declining patient satisfaction, a dramatic change is needed to make health care more efficient and effective and bring back the joy of practicing medicine. AI-driven ambient clinical intelligence promises to help by revolutionizing patient and provider experiences with clinical documentation that writes itself. The Nuance Dragon Ambient eXperience, or DAX for short, is a voice-enabled, ambient clinical intelligence solution that automatically captures patient encounters securely and accurately at the point of care. Physicians who use DAX have reported a 50 percent decrease in documentation time and a 70 percent reduction in feelings of burnout, and 83 percent of patients say their physician is more personable and conversational. Rediscover the joy of medicine with clinical documentation that writes itself, all within the EHR. VISIT SPONSOR → https://nuance.com/daxinaction SUBSCRIBE TO THE PODCAST → https://www.kevinmd.com/podcast RATE AND REVIEW → https://www.kevinmd.com/rate FOLLOW ON INSTAGRAM → https://www.instagram.com/kevinphomd FOLLOW ON TIKTOK → https://www.tiktok.com/@kevinphomd GET CME FOR THIS EPISODE → https://earnc.me/CJVGLF Powered by CMEfy.

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