Baroness Louise Casey

Probably around the summer, I think, if we can.

I think it's time to get on with it.

The other thing is that I'm not waiting.

So we recommended and asked the government to do three things.

I think it was March, April time.

I think that we need a new deal for people with motor neurone disease.

Only 5,000 people, interestingly, have motor neurone disease at any one time.

It's one of those interesting and very sad statistics, but it is quite a manageable number.

And should a young family, often the man in that family, get diagnosed with motor neurone disease, they enter this world of social care and it is utterly horrendous.

Horrendous because A, the disease is horrendous.

Your life expectancy is an average of 22 months.

So they live for less than on average two years once they get the diagnosis.

So it's a pretty rough one.

And of course, they sit in this world of social care and health.

which means it's multiple forms, multiple assessments, multiple, multiple, multiple, we know when you have motor neurone disease, what is going to happen to you.

And we don't need to put those families through some horrendous, oh, now she needs a wheelchair, six months ago she didn't, we're going to make her reapply.

And so we treat those families and those individuals differently.

the same as what's the lowest common denominator of the most bureaucratic and least we can do for people.

So I'm trying to drive that forward.

I also think that dementia is sitting there like this massive elephant in the room in the world of health and social care.