Becky Quick

speaker

455 appearances 1 recordings 1 series first heard Jun 2026 last heard 16 Jun

Becky Quick’s voice in public audio — every appearance, attributed to the second.

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recordings per month · last 12 months

Recordings per month over the last 12 months — 1 in all, peaking in Jun 2026 with 1.

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There's nothing that any of us spend more time on than wanting our kids to have full, wonderful lives.

You have all these dreams about what their lives might be like.

And when we got the diagnosis for Syngap and.

First of all, the neurologist didn't even know what it was.

She said to me, it was a Friday.

She said, by the end of the week, and you'll probably know more than I do.

And I did because I immediately started not just looking online, but contacting every person I could and reporting it out.

And the prognosis was not great at all.

You know, it wasn't that she was going to die.

There are parents who get worse diagnoses.

It wasn't that she was going to die.

But the question was, how much would she ever develop?

And I remember doctors, a lot of whom who don't have a whole lot of wonderful bedside manner, telling me things like, well...

You know, she may not be a Fortune 500 CEO, but maybe she'll go to college before we even had our diagnosis.

And later them telling me maybe she had cerebral palsy.

You know, they throw out kind of off-the-cuff things about what might be wrong and sends you down the spiral as a parent.

The SYNGAP diagnosis...

was tough because most of these kids don't talk or don't talk.

You know, some of them do, but a lot of them don't.

She has a pretty severe form of it.

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