Ben Sasse

My wife and I flew to both places for 48 hours in the next six days and met all the docs and pounded on doors and said, teach us what we got to do to get in this automobile.

And two weeks later, we were admitted to a clinical trial at MD Anderson Houston.

And we're delivering super poison to my tumors and trying to beat the hell out of them.

Getting the tumors carpet bombed.

Thursday.

There's a company in Silicon Valley called revolution medicine and they have a drug, um, called tracks on race AB and that's my drug.

Um, and I'm able to take it orally as of now.

So I don't have a, uh,

infusion port right now.

So I take it orally, but it's a nasty drug.

It causes crazy stuff like my body can't grow skin.

And so I bleed out of a whole bunch of parts of me that shouldn't be bleeding.

I feel better than I deserve.

So I have a really good hospice doc.

I'm not dying right now, but I'm well in the category that you can be in those end-of-life months.

And she's spectacular.

She's just walking wisdom.

And she said to me early on,

When you're dying of an abdominal disease, you're really, you've got an algorithm that's managing four variables.

You have tumor-driven pain.