Betsy Hicks Russ
👤 SpeakerAppearances Over Time
Podcast Appearances
But it's also – part of the behavior change has strongly been because –
He gives me the reasons for his meltdowns now.
And now that I'm understanding more about apraxia and just this complete lack of control for his body, the things sometimes the body does things that he doesn't mean to.
And where I used to go into a meltdown mode of what did I do wrong and what do I need to do to fix it?
Like that was my mode every single time.
And he's just like, it's not about you.
It's about me and my body.
And you need to leave me alone.
And just that alone has changed everything.
The meltdowns have gone from like hour long to five minutes because he just needs to be left alone to get it out.
So the telepathy tapes comes out.
And I like I literally at one point I was on episode four.
I pull over the car and I bring out the letter board, a number board, actually.
And I go, I'm thinking of a number of, you know, of a number.
What number is it?
And all four digits.
Joe hits it perfectly.
And I sat there and I just couldn't move.
And that's where I said, now what?