Claire Ankuda
speaker
277 appearances
2 recordings
1 series
first heard Jan 2020
last heard May 2020
Claire Ankuda’s voice in public audio — every appearance, attributed to the second.
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Um, without having to, you know, know in advance where someone was at in terms of the predicted time to death.
Yeah, so we used a a scale called the SESTI, the Center for Epidemiologic Studies Depression Scale.
So it's an eight-item scale that asks about things like feeling sad, feeling lonely, not enjoying life, as well as measures like fatigue.
And the reason why we liked that scale is because in this paper, it allows us to look at each question individually.
to say, okay, is it just fatigue that's going up at the end of life, which we might expect from people getting sicker, or is it some of these other, you know, more psychological uh symptoms that are also going up at the end of life?
Um, it it did surprise us, especially because I think we are, I know we are vastly underestimating the rate of depression from this survey.
Um, because what we're doing is we're looking at people who answered the survey, and we know the sickest people weren't able to do that screening question.
We also know those are most likely the had the highest risk of depression.
So I think that is a very low estimate.
I think the reality is much higher and it
You know, it surprised me to see that that it's not just things like fatigue that it you know, forty percent of people in the last month of life report that they're lonely.
I think some of these numbers are just
heartbreaking um that we're seeing in terms of what people are saying their experiences like.
We did, yeah.
We actually saw um some of the strongest trajectories were in things like feeling sad and loneliness, which I would say cannot be explained by some of the physical manifestations of people's uh illness.
So I think one thing that's really important, and this is uh also I believe coming from work that Susan Block has done on um distinguishing
depression from what's expected is um the the trajectory of the the symptoms in people's day-to-day life.
Is this something that is coming and going or is this sort of depressive symptoms that are just not going going away um and that that uh are are not something that is coming in waves.
That's something that I think is very important to ask about.
Yeah, so I
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